An Integrated Adult Congenital Heart Disease Psychology Service

Ferguson, Meaghan; Kovacs, Adrienne H.

doi:10.1111/chd.12331

Cited by 42 publications

(21 citation statements)

References 27 publications

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“…It is important to investigate whether the modification of illness perceptions results in improved QOL among Fontan patients. Further, as it is possible that strengthening patients' abilities to manage CHD‐related beliefs and improving QOL may have positive effects on their physical health, investing resources into psychological services, including integrated health models, should be considered. While treatments targeting illness perceptions have demonstrated promising findings for other cardiac populations, there are currently no evidence‐based interventions that address psychosocial well‐being in CHD.…”

Section: Discussionmentioning

confidence: 99%

A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation

Holbein

Fogleman

Hommel

et al. 2018

Congenital Heart Disease

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Section: Discussionmentioning

confidence: 99%

A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation

Holbein

Fogleman

Hommel

et al. 2018

Congenital Heart Disease

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“…In patients with CHD presenting for psychological services, anxiety concerns were observed to be more prominent than mood disturbance. 416 In another sample, 20% of patients with CHD reported symptoms consistent with posttraumatic stress disorder. 417 Thus, it is important to be mindful of the potential for both mood and anxiety disorders when considering the psychological impact of living with CHD.…”

Section: Psychosocial Prevalencementioning

confidence: 97%

Diagnosis and Management of Noncardiac Complications in Adults With Congenital Heart Disease: A Scientific Statement From the American Heart Association

Lui¹,

Saïdi²,

Bhatt³

et al. 2017

Circulation

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158

129

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ABSTRACT:Life expectancy and quality of life for those born with congenital heart disease (CHD) have greatly improved over the past 3 decades. While representing a great advance for these patients, who have been able to move from childhood to successful adult lives in increasing numbers, this development has resulted in an epidemiological shift and a generation of patients who are at risk of developing chronic multisystem disease in adulthood. Noncardiac complications significantly contribute to the morbidity and mortality of adults with CHD. Reduced survival has been documented in patients with CHD with renal dysfunction, restrictive lung disease, anemia, and cirrhosis. Furthermore, as this population ages, atherosclerotic cardiovascular disease and its risk factors are becoming increasingly prevalent. Disorders of psychosocial and cognitive development are key factors affecting the quality of life of these individuals. It is incumbent on physicians who care for patients with CHD to be mindful of the effects that disease of organs other than the heart may have on the well-being of adults with CHD. Further research is needed to understand how these noncardiac complications may affect the long-term outcome in these patients and what modifiable factors can be targeted for preventive intervention.

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“…Additionally, there is insufficient access to psychological and social support provided by social workers and psychologists 17 as well as a need to integrate psychology into ACHD programs. 22 Our study underlined the significance of this issue both from the patient and provider perspective who emphasized the social and psychological impact of ACHD that interferes with daily functioning.…”

Section: Discussionmentioning

confidence: 73%

Historical investigation of medical treatment for adult congenital heart disease: A Canadian perspective

Lapum

Fredericks

Bailey

et al. 2018

Congenital Heart Disease

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Objective:The number of adults with congenital heart disease (CHD) has increased substantially because of medical advances that are extending life expectancy beyond childhood. A historical investigation is timely not only because of this significant demographic shift, but also because stakeholder engagement is increasingly important in shaping research directions. The study questions were: From the perspective of stakeholders, what is known about the medical treatment for the adult CHD cohort in Canada and how has it changed over time?Design/Methods: We harnessed the use of historical research methods and conducted interviews with 21 key informants in order to articulate a contextualized understanding of the evolution of adult CHD treatment in Canada. The informants recruited were currently or previously located in and/or involved in treatment in seven provinces and two territories across Canada including patients, families, advocates, researchers, and practitioners located in disciplines that included cardiology, cardiovascular surgery, nursing, psychology, dietetics, and kinesiology.Results: Alongside findings that highlighted the significant demographic shift, the findings highlight key themes related to temporal shifts in treatment, emergence of organizational structures and use of evidence, comprehensive approaches to care, and future directions. A critical finding that requires immediate attention is the significantly disproportionate resources to the number of adults living with CHD, and as a result, the real risk of premature death for this population. Conclusions:The insights provided behoove the community of stakeholders to think creatively on how to draw attention to the inadequacy of resources and the unique and diverse needs of this population.

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An Integrated Adult Congenital Heart Disease Psychology Service

Cited by 42 publications

References 27 publications

A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation

A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation

Diagnosis and Management of Noncardiac Complications in Adults With Congenital Heart Disease: A Scientific Statement From the American Heart Association

Historical investigation of medical treatment for adult congenital heart disease: A Canadian perspective

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