An innovative and reliable way of measuring health-related quality of life and mental distress in the deaf community

Fellinger, Johannes; Holzinger, Daniel; Dobner, Ulrike; Gerich, Joachim; Lehner, Roland; Lenz, Gerhard; Goldberg, David

doi:10.1007/s00127-005-0862-9

Cited by 45 publications

(38 citation statements)

References 7 publications

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“…General health-related quality of life (HRQoL) measures, like the Medical Outcomes Study Short Form 36 Item survey (SF-36), measure satisfaction and functioning in a number of domains, including physical, mental and social, and, often, limitations and general health [20]. The QoL results can be used as a health predictor, determinant or outcome and have been shown to be correlated with fatal and non-fatal health outcomes and health care utilization [21][22][23][24][25]. We believe measuring HRQoL in this context will help us to understand the impact of the conflict on health and, subsequently, to improve public health planning and programming.…”

Section: Introductionmentioning

confidence: 99%

The quality of life of Palestinians living in chronic conflict: assessment and determinants

et al. 2008

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This study assessed the quality of life (QoL) of Palestinians living in conditions of chronic conflict and examined its determinants. An adapted World Health Organization quality of life (WHOQoL-Bref) instrument was used in a representative sample of 1,008 adults. Factor analysis and multiple regression were conducted to determine associations between demographic and socioeconomic characteristics and scores of extracted principal determinants, and estimated overall and domain-specific QoL scores. Men, older persons and those less educated reported lower QoL than their counterparts. Negative associations were also found with higher distress and fear levels, and lower financial and freedom status. The chronic and entrenched conflict over generations resulted in lower QoL for the population of the Occupied Palestinian Territory.

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Section: Introductionmentioning

confidence: 99%

The quality of life of Palestinians living in chronic conflict: assessment and determinants

et al. 2008

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“…Paper versions have been employed in the majority of prior studies involving the WHOQOL-BREF, although recently computer-based formats have been reported (Baumann, Ionescu, & Chau, 2011;Fellinger et al, 2005;Mason, Skevington, & Osborn, 2004;Skevington & Day, unpublished). Arguably, having two data collection formats in this study may have introduced an additional variable, however, Chen et al (2009) found no significant differences between domain scores collected either electronically or using paper and pencil.…”

Section: Discussionmentioning

confidence: 99%

Using guided individualised feedback to review self-reported quality of life in health and its importance

Llewellyn

Skevington

2014

Psychology & Health

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This pilot study investigated the effects of providing guided, individualised feedback on subjective quality of life (QoL), using results from the multi-dimensional WHOQOL-BREF profile.Participants (n=129; 85 chronically ill) were recruited in the community, and primary care. They were randomized to receive written or verbal guidance on interpreting a new graphical summary profile, which simultaneously presented (a) their individual self-ratings of QoL, and (b) the importance attributed to each QoL dimension. Before and after feedback, participants completed health status, subjective QoL, QoL importance, goal-oriented QoL, and mood measures.Receiving individualised feedback was associated with increased psychological QoL, with modest effect size. No effects were found for physical, social or environmental QoL or QoL importance, health status, mood or goal-oriented QoL. There were no differences between modes of delivering guidance, indicating equal effectiveness. Chronic illness participants reported poorer QoL, moved more slowly towards their QoL goals, and had larger differences between core QoL and QoL Importance than healthy participants.Guided individualised empirical feedback about QoL judgements could be used to promote psychological wellbeing. Although professional interpretation of feedback is unnecessary, if shared, patients' profiled WHOQOL information could support selfmonitoring, self-management, and clinical decision-making.

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“…Other examples of the new uses of the web are in collecting sensitive data (sexual behaviour diary) from a population of university women, and structured treatment programs and preventive intervention for people with mental health concerns [45,46]. A group for whom the web could potentially be an appropriate survey mode is deaf individuals [47]. Computerized administration also allows researchers to obtain sample sizes that far exceed those obtained with most traditional techniques [48].…”

Section: Data Qualitymentioning

confidence: 98%

New times, new needs; e-epidemiology

2007

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The successful and systematic collection of demographic and lifestyle data is central in the process of any epidemiological study. The traditionally used methods such as face-to-face and telephone interviews as well as paper-questionnaires are increasingly failing to produce good qualitative results within financially feasible limits. Tools that are better suited for the present dynamic populations are needed and the Internet presents a powerful alternative for the collection of data with several intrinsic features still unexplored.

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An innovative and reliable way of measuring health-related quality of life and mental distress in the deaf community

Abstract: For deaf individuals whose preferred communication is sign language, quality of life and mental distress can be effectively and reliably assessed with the use of carefully translated and adapted common instruments.

Cited by 45 publications

References 7 publications

The quality of life of Palestinians living in chronic conflict: assessment and determinants

The quality of life of Palestinians living in chronic conflict: assessment and determinants

Using guided individualised feedback to review self-reported quality of life in health and its importance

New times, new needs; e-epidemiology

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