An exploration of the perceived effects of a support group for individuals with rheumatoid arthritis

McCarron, Amy

doi:10.1002/2327-6924.12146

Cited by 14 publications

(14 citation statements)

References 11 publications

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“…10,38 Most work situations involve social contacts, which enhance social participation. 40 Companionship at work or different types of social or voluntary networks appear to be important social arenas for social participation, and these findings are confirmed by other researchers. 22,31,35 These studies indicate the importance of remaining in employment and being able to continue with self-chosen hobbies.…”

Section: Discussionsupporting

confidence: 71%

“…39 As can be found in previous research, our study confirms the importance of having the ability to meet people on equal terms in different contexts, and one consequence of impaired physical functioning could be a reduced social participation and thus isolation. 40 Furthermore, symptoms such as pain and fatigue also affect the ability to participate. 25 The categories are separated parts of a whole, and occur in varying degrees for the same individual.…”

Section: Discussionmentioning

confidence: 99%

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Quality of life in patients with established rheumatoid arthritis: A phenomenographic study

et al. 2017

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Objective:Patients with rheumatoid arthritis perceive reduced quality of life in several domains, such as physical health, level of independence, environment and personal beliefs, compared with the healthy population. There is an increasing interest in quality of life in clinical and medical interventions. Few studies have explored patients’ individual conceptions of quality of life, and interviews can thus complement quantitative studies. There is a need for a deeper understanding of the patients’ experiences of quality of life, with regard to living with a long-term condition such as rheumatoid arthritis. The aim of this study was to explore the variation of ways in which patients with established rheumatoid arthritis understand the concept of quality of life.Methods:The study had a qualitative design with a phenomenographic approach, which was used to describe variations in how individuals experience their quality of life. The study is based on interviews with 22 patients with established rheumatoid arthritis enrolled in the BARFOT (better anti-rheumatic pharmacotherapy) study.Results:The concept of quality of life could be understood in three different ways: (1) independence in terms of physical functioning and personal finances, (2) empowerment in how to manage life and (3) participation as an experience of belonging in a social context.Conclusion:The different conceptions of quality of life reflect the complexity in the concept, including physical, psychological and social aspects. This complexity is important to have in mind when health professionals support patients in enhancing their quality of life.

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Section: Discussionsupporting

confidence: 71%

Section: Discussionmentioning

confidence: 99%

Quality of life in patients with established rheumatoid arthritis: A phenomenographic study

et al. 2017

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“…Then social support can also help people with RA to reduce pain and fatigue experienced (N. L. . It is also in accordance with research conducted by McCarron that social support has a positive effect on quality of life related to health (health-related quality of life) (Mccarron, 2015) The importance of the role of social support for people with chronic diseases, especially RA, makes the SAHARA community stand. The SAHARA community or Sahabat Rheumatoid Arthritis serves as a forum for people with RA to communicate, exchange information and thoughts and as a means of getting social support.…”

Section: Introductionsupporting

confidence: 84%

The Use of Theory of Planned Behavior Framework in Improving Self-Adherence of Rheumatoid Arthritis Patients

Arliansyah

Setiawan²

2022

Psikostudia

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Rheumatoid Arthritis (RA) is a chronic disease that requires sufferers to have self-adherence in carrying out treatment. Unfortunately, initial interviews with RA sufferers showed that there were still many of them who lacked self-adherence, which resulted in the worsening of their health condition. This study aims to improve self-adherence RA patients through the Theory of Planned Behavior (TPB) framework which is designed to be an outreach activity. The counseling is carried out in one day and is divided into 3 sessions, each session having a duration of 20 to 40 minutes. Participants in the study were 12 members of the Sahabat Rheumatoid Arthritis (SAHARA) community who were RA sufferers as well as agents of change for other RA sufferers who had not yet joined the community. The results showed that the participants experienced a significant increase in self-adherence (p = 0.005 < 0.05). These results prove that counseling activities designed using the Theory of Planned Behavior framework can increase self-adherence of Rheumatoid Arthritis sufferers in undergoing treatment. Rheumatoid Arthritis (RA) adalah salah satu penyakit kronis yang membuat penderitanya harus memiliki kepatuhan diri dalam menjalankan pengobatan. Sayangnya wawancara awal kepada penderita RA menunjukkan bahwa masih banyak diantara mereka yang kurang memiliki kepatuhan diri sehingga berimbas pada semakin parahnya kondisi kesehatan mereka. Penelitian ini bertujuan untuk meningkatkan kepatuhan diri penderita RA melalui kerangka kerja Theory of Planned Behavior (TPB) yang di rancang menjadi sebuah kegiatan penyuluhan. Penyuluhan tersebut dilaksanakan dalam satu hari dan terbagi menjadi 3 sesi yang masing-masing sesinya memiliki durasi 20 hingga 40 menit. Partisipan dalam penelitian adalah anggota komunitas Sahabat Rheumatoid Arthritis (SAHARA) berjumlah 12 orang yang merupakan penderita RA sekaligus agen perubahan bagi penderita RA lainnya yang belum tergabung dalam komunitas. Hasil penelitian menunjukkan bahwa partisipan mengalami peningkatan kepatuhan diri yang signifikan (p 0.005 < 0.05). Hasil tersebut membuktikan bahwa kegiatan penyuluhan yang dirancang menggunakan kerangka kerja Theory of Planned Behavior mampu meningkatkan kepatuhan diri penderita Rheumatoid Arthritis dalam menjalani pengobatan.

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“…8 In a qualitative study of patients with rheumatoid arthritis, participants in a support group reported improvements in QOL associated with increased knowledge and self-e cacy. 9 Our mixed-methods study therefore aimed to evaluate whether in-person support group participation could reduce UI symptoms and improve quality of life as measured quantitatively by validated questionnaires and qualitatively by extracting themes by grounded theory analysis of support group transcripts. Data obtained from validated questionnaires were not able to demonstrate improved treatment outcomes in women with urinary incontinence.…”

Section: Discussionmentioning

confidence: 99%

“…Validated questionnaires have been employed in urology evaluating continence outcomes, treatment satisfaction, and quality of life. [8][9][10] A secondary outcome was to measure the feasibility and acceptability in continued support group sessions. A written survey was administered at the beginning of each support group session which incorporated open-ended warm-up questions regarding urinary incontinence and concluded with the assessment of the level of support group comfort on a scale from 1-5, with 1 being "least comfortable" and 5 as "most comfortable".…”

Section: Study Outcomesmentioning

confidence: 99%

The Role of in-Person Support Groups in the Management of Urinary Incontinence in Women from a Mixed-Methods, Randomized Pilot Study

Toma

Carolan

Buckner‐Petty

et al. 2021

Preprint

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Background To assess the feasibility and acceptability of in-person support groups as a potential intervention for female patients with urinary incontinence. Methods Women over the age of 18 seeking treatment for UI were randomized to standard care with support group participation or to standard care alone. All participants completed validated questionnaires at the beginning and conclusion of the study. Questionnaires were analyzed with repeated measures of ANOVA models in an intention-to-treat manner. Three moderated support group sessions were held and audio recorded. Recordings were transcribed and categorized by frequency into themes using grounded theory methodology. Results A total of 10 control and 8 intervention participants agreed to participate. Seven women attended all three support group sessions and were included in the final analysis. Transcripts from support group sessions observed women identified most with (1) urinary incontinence (UI) as a chronic disease, (2) shame managing UI, and (3) social constraints of toileting. Support participants self-reported appreciation of support group participation and desire for on-going sessions. Analysis of the questionnaires did not demonstrate statistically significant differences. Conclusion Data ascertained from questionnaires was unable to demonstrate a meaningful effect in improved treatment outcomes for control and intervention participants. Grounded theory analysis of transcripts identified four primary themes: (1) appreciation of the support group, (2) UI as a gendered issue, (3) lack of public awareness, and (4) history of negative provider interactions. All support group participants self-reported interest in attending future support group sessions.

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An exploration of the perceived effects of a support group for individuals with rheumatoid arthritis

Cited by 14 publications

References 11 publications

Quality of life in patients with established rheumatoid arthritis: A phenomenographic study

Quality of life in patients with established rheumatoid arthritis: A phenomenographic study

The Use of Theory of Planned Behavior Framework in Improving Self-Adherence of Rheumatoid Arthritis Patients

The Role of in-Person Support Groups in the Management of Urinary Incontinence in Women from a Mixed-Methods, Randomized Pilot Study

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