An Expert Patient Program as a Tool to Empower People With Multiple Sclerosis

Abstract

Engaging and empowering people & communities Strategy 2: Strengthening governance & accountability Strategy 3: Reorienting the model of care Strategy 4: Coordinating services within and across sectors Strategy 5: Creating an enabling environment Strategic direction 1: Empowering and engaging people Engaging and empowering individuals and families Bolstering participatory governance Defining service priorities based on life-course needs, respecting social preferences Coordinating care for individuals Strengthening leadership and management for change Strategic Approaches"All people have equal access to quality health services that are coproduced in a way that meets their life course needs and respects social preferences, are coordinated across the continuum of care, and are comprehensive, safe, effective, timely, efficient and acceptable; and all carers are motivated, skilled and operate in a supportive environment"

The Effect of Distance Empowerment Program on Self-efficacy Among Multiple Sclerosis Patients

“…Among the potential benefits of this program, we can mention the improvement in knowledge and quality of life and the normalization of people's health. 23 On the basis of this, the use of empowerment programs in people with chronic diseases may lead to greater adaptation of the person to the disease and improvement of the person's living conditions. By designing this program, we were able to improve people's belief in their own abilities (self-efficacy) and improve people's performance.…”

Preferences Toward Attributes of Disease-Modifying Therapies: The Role of Nurses in Multiple Sclerosis Care

“… 5 , 6 , 26 By focusing on coordinating the care of MS patients throughout the disease trajectory, nurses can capture different types of information and support neurologists in the treatment decision-making process. 5 , 6 , 27 , 28 …”

Qualitative study identifies life shifts and stress coping strategies in people with multiple sclerosis

“…Our research could be used to develop interventions where the areas emotional, work, social interaction and lifestyle, physical aspects of life and the medical context could be focused on . Sanchez et al 34 identified needs and demands of people with MS as well. They could show the importance of empowering people with MS.…”