An examination of the influence of patient race and ethnicity on expressed interest in learning about cancer clinical trials

Markman, Maurie; Petersen, Judy; Montgomery, Robert B.

doi:10.1007/s00432-007-0263-4

Cited by 33 publications

(24 citation statements)

References 17 publications

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“…Individuals who had participated in the NexCura (Seattle, WA) oncology decision-support program 9 and previously agreed to receive information on potential future surveys were contacted by e-mail regarding their willingness to complete a questionnaire dealing with treatment-related medical expenses. Patients were specifically informed that any information they provided would be examined and reported only in the aggregate, and no individual identifiers would be provided to any researcher or other third party.…”

Section: Methodsmentioning

confidence: 99%

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Impact of the Cost of Cancer Treatment: An Internet-Based Survey

Markman

Luce

2010

JOP

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Purpose: Despite considerable discussion in the medical literature and lay press regarding the increasing cost of cancer care, there is limited information available on the perceived impact of treatment costs on individual patients and their families. Methods:To directly address this issue, patients with cancer who had participated in an Internet-based oncology decisionsupport program and agreed to receive information concerning potential future surveys were asked via e-mail to complete a questionnaire dealing with treatment-related medical expenses.

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Section: Methodsmentioning

confidence: 99%

“…9 Reported here are the results of the responses to this survey received from this patient population.…”

Section: Introductionmentioning

confidence: 99%

Impact of the Cost of Cancer Treatment: An Internet-Based Survey

Markman

Luce

2010

JOP

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“…1) The African American percentage of the population as of the 2000 US census was 12.9%. 24 2) The Hispanic percentage of the population as of the 2000 US census was 12.5%. Table 3 Comparison population.…”

Section: Sensitivity Analysismentioning

confidence: 97%

“…23 Also, a survey of Hispanic Americans with cancer found that they are more interested in learning about clinical trials than non-Hispanic whites. 24 Despite this willingness to participate, underrepresentation of Hispanic Americans has been repeatedly documented. 9,11,25 Several hypotheses have been postulated to explain this phenomenon.…”

Section: Sensitivity Analysismentioning

confidence: 99%

Enrollment of women and minorities in NINDS trials

Burke¹,

Brown²,

Lisabeth³

et al. 2011

Neurology

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Objective: To determine policy-associated changes over time in 1) the enrollment of women and minorities in National Institute of Neurological Disorders and Stroke (NINDS)-funded clinical trials and 2) the trial publication reporting of race/ethnicity and gender.Methods: All NINDS-funded phase III trials published between 1985 and 2008 were identified.Percent of African Americans, Hispanic Americans, and women enrolled in the trials was calculated for those trials with available data. Z tests were used to compare reporting and enrollment data from before (period 1) and after (period 2) 1995 when NIH enacted their policies regarding race, ethnicity, and gender. Percent of main trial publications reporting enrollment of African Americans, Hispanic Americans, and women was also calculated. Results:Of the 56 trials identified, 100%, 48%, and 25% reported enrollment by gender, race, and ethnicity. Women constituted 42.1% of the trial population. Enrollment of women increased over time (36.9% period 1; 49.0% period 2, p Ͻ 0.001). African Americans constituted 19.8% of the enrollees in trials with available data and enrollment increased over time (11.6% period 1; 30.7% period 2, p Ͻ 0.001). Hispanic Americans constituted 5.8% of subjects in trials with available data and enrollment decreased over time (7.4% period 1; 5.0% period 2, p Ͻ 0.001).

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“…Public awareness, perceptions, and consequent attitudes toward clinical research may impact regulatory policies, guide research priorities, and shape growth in the sector; however, distrust, lack of awareness, and misconceptions of clinical research have been identified as key barriers to participation in clinical trials [61][62][63][64][65]. The PARTAKE initiative is based on the premise that an informed, participating public is invaluable for the following ethical, methodological, and operational reasons:…”

Section: Partakementioning

confidence: 99%