An evaluation study of a pilot group education programme for inflammatory bowel disease

Sephton, Mark; Kemp, Karen; Ridgway, Victoria

doi:10.1136/flgastro-2015-100620

Cited by 8 publications

(9 citation statements)

References 22 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…In particular, patients require greater information at the time of their diagnosis. This finding is comparable to research in other chronic diseases, in particular IBD where there has been development of knowledge measurement tools and research highlighting the positive effects of a patient education . Patients clearly value the role of a face‐to‐face consultation with a knowledgeable health‐care professional.…”

Section: Discussionsupporting

confidence: 72%

Barrett's oesophagus: A qualitative study of patient burden, care delivery experience and follow‐up needs

Britton

Hamdy

McLaughlin

et al. 2018

Health Expectations

View full text Add to dashboard Cite

BackgroundBarrett's oesophagus (BO), a precursor to oesophageal adenocarcinoma, requires long‐term endoscopic surveillance. The rising incidence of this chronic disease has implications for service provision and patient burden. Few studies have explored BO patients’ personal burden, care delivery experience and participation in health‐care delivery decisions.ObjectiveTo identify and explore factors impacting BO patients’ health‐related quality of life, follow‐up needs and views on new models of follow‐up care.DesignAn exploratory qualitative approach was adopted using semi‐structured, in‐depth, one‐to‐one interviews, audio‐recorded and transcribed verbatim. Patients undergoing BO surveillance, at a single NHS hospital, were recruited using purposive sampling with the aim of achieving maximum variation. Data were analysed using framework analysis approach, supported by NVivo Pro 11.ResultsData saturation occurred after 20 participant interviews. Ten subthemes and three main themes emerged from the analysis: (a) burden of disease—symptom control, worry of oesophageal cancer and surveillance endoscopy; (b) follow‐up experiences—follow‐up care, at this NHS hospital, was found to be inconsistent and often inadequate to meet patients’ needs, in particular a lack of disease‐specific information; and (c) follow‐up needs—participants sought enhanced communication, organization and structure of care. They highly valued face‐to‐face interaction with a specialist, and the concept of direct secondary care access in‐between endoscopies was reassuring to participants.ConclusionsThis qualitative research provides an in‐depth account of the patients’ perspective of BO, the effectiveness of follow‐up care and patient opinion on new follow‐up systems.

show abstract

Section: Discussionsupporting

confidence: 72%

Barrett's oesophagus: A qualitative study of patient burden, care delivery experience and follow‐up needs

Britton

Hamdy

McLaughlin

et al. 2018

Health Expectations

View full text Add to dashboard Cite

show abstract

“…On the basis of the findings of this study, we recommend the continued use of face‐to‐face education by IBD doctors and nurses, as well as written patient information material as first‐line patient education. The difficulties of delivering face‐to‐face education in a busy clinic environment could be overcome by setting up dedicated patient education programs, which have been shown to be successful . Patients should be guided towards official patient information websites from healthcare organisations and patient support organisations.…”

Section: Discussionmentioning

confidence: 99%

The relationship between different information sources and disease‐related patient knowledge and anxiety in patients with inflammatory bowel disease

Selinger

Carbery

Warren

et al. 2016

Aliment Pharmacol Ther

View full text Add to dashboard Cite

Summary Background Patient education forms a cornerstone of management of inflammatory bowel disease (IBD). The Internet has opened new avenues for information gathering. Aim To determine the relationship between different information sources and patient knowledge and anxiety in patients with IBD. Methods The use of information sources in patients with IBD was examined via questionnaire. Anxiety was assessed with the hospital anxiety and depression scale and disease‐related patient knowledge with the Crohn's and colitis knowledge score questionnaires. Associations between these outcomes and demographics, disease‐related factors, and use of different information sources were analysed using linear regression analysis. Results Of 307 patients (165 Crohn's disease, 142 ulcerative colitis) 60.6% were female. Participants used the hospital IBD team (82.3%), official leaflets (59.5%), and official websites (53.5%) most frequently in contrast to alternative health websites (9%). University education (P < 0.001), use of immunosuppressants (P = 0.025), Crohn's and Colitis UK membership (P = 0.001), frequent use of the hospital IBD team (P = 0.032), and frequent use of official information websites (P = 0.005) were associated with higher disease‐related patient knowledge. Female sex (P = 0.004), clinically active disease (P < 0.001), frequent use of general practitioners (P = 0.014), alternative health websites (homoeopathy, nutritionists, etc.) (P = 0.004) and random links (P = 0.016) were independently associated with higher anxiety. Conclusions Different patient information sources are associated with better knowledge or worse anxiety levels. Face‐to‐face education and written information materials remain the first line of patient education. Patients should be guided towards official information websites and warned about the association between the use of alternative health websites or random links and anxiety.

show abstract

“…7,8 Many groups have explored the benefits of educational interventions on patient knowledge, including prior studies of workshops, lectures, handbooks, group sessions, and face-to-face instruction. [12][13][14][15][16][17] One of the first studies, done across 9 communities in the United States, offered workshops with associated questionnaires and face-to-face sessions with patients and their families. 4 Although less than 10% of participants completed all questionnaires, significant improvements were demonstrated in participants' IBD knowledge, which were maintained for at least 3 months.…”

Section: Introductionmentioning

confidence: 99%

Inflammatory Bowel Disease Telemedicine Clinical Trial: Impact of Educational Text Messages on Disease-Specific Knowledge Over 1 Year

Abutaleb

Buchwald

Chudy-Onwugaje

et al. 2018

Inflammatory Bowel Diseases

View full text Add to dashboard Cite

Telemedicine improves IBD-specific knowledge through text messaging, although the improvement is not additive with greater frequency of text messages. However, after adjustment for confounding variables, telemedicine is not superior to education given through standard visits at referral centers. Further research is needed to determine if revised systems with different modes of delivery and/or frequency of messages improve disease knowledge.

show abstract

An evaluation study of a pilot group education programme for inflammatory bowel disease

Abstract: This is the first qualitative study to report on the effects of providing a group patient education within IBD. The results identify new and interesting psychosocial elements that existing quantitative studies have failed to identify.

Cited by 8 publications

References 22 publications

Barrett's oesophagus: A qualitative study of patient burden, care delivery experience and follow‐up needs

Barrett's oesophagus: A qualitative study of patient burden, care delivery experience and follow‐up needs

The relationship between different information sources and disease‐related patient knowledge and anxiety in patients with inflammatory bowel disease

Inflammatory Bowel Disease Telemedicine Clinical Trial: Impact of Educational Text Messages on Disease-Specific Knowledge Over 1 Year

Contact Info

Product

Resources

About