An educative support group for female family caregivers: impact on caregivers psychological distress and patient's neuropsychiatry symptoms

Javadpour, Ali; Ahmadzadeh, Laaya; Bahredar, Mohammad Jafar

doi:10.1002/gps.2138

Cited by 29 publications

(26 citation statements)

References 6 publications

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“…[30][31][32] It is notable in this regard that we found women are more burdened than men with family caregiving demands regarding time, and experience the greatest subjective burdens associated with caregiving. These findings are consistent with previous more focused studies of caregivers of relatives with one particular type of condition.…”

Section: Discussionmentioning

confidence: 76%

Family burden related to mental and physical disorders in the world: results from the WHO World Mental Health (WMH) surveys

Viana

Gruber

Shahly

et al. 2013

Rev. Bras. Psiquiatr.

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Objective: To assess prevalence and correlates of family caregiver burdens associated with mental and physical conditions worldwide. Methods: Cross-sectional community surveys asked 43,732 adults residing in 19 countries of the WHO World Mental Health (WMH) Surveys about chronic physical and mental health conditions of first-degree relatives and associated objective (time, financial) and subjective (distress, embarrassment) burdens. Magnitudes and associations of burden are examined by kinship status and family health problem; population-level estimates are provided. Results: Among the 18.9-40.3% of respondents in high, upper-middle, and low/lower-middle income countries with first-degree relatives having serious health problems, 39.0-39.6% reported burden. Among those, 22.9-31.1% devoted time, 10.6-18.8% had financial burden, 23.3-27.1% reported psychological distress, and 6.0-17.2% embarrassment. Mean caregiving hours/week was 12.9-16.5 (83.7-147.9 hours/week/100 people aged 18+). Mean financial burden was 15.1% of median family income in high, 32.2% in upper-middle, and 44.1% in low/lower-middle income countries. A higher burden was reported by women than men, and for care of parents, spouses, and children than siblings. Conclusions: The uncompensated labor of family caregivers is associated with substantial objective and subjective burden worldwide. Given the growing public health importance of the family caregiving system, it is vital to develop effective interventions that support family caregivers.

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Section: Discussionmentioning

confidence: 76%

Family burden related to mental and physical disorders in the world: results from the WHO World Mental Health (WMH) surveys

Viana

Gruber

Shahly

et al. 2013

Rev. Bras. Psiquiatr.

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“…Individually tailored non-pharmacological approaches for management of behavioral disruptions, including sundowning, considered to be the first-line therapy, and should be attempted before pharmacologic interventions 133,134. The following management options has been suggested as possible interventions for behavioral abnormalities in dementia, which theoretically might be effective for sundowning as well: light therapy,73-82,135 music therapy,136 aromatherapy,137 caregiver education,138 multisensory stimulation,139 and simulated presence therapy 140. Other recommendations include reduction of noisy background, minimizing unnecessary noise (e.g., noise from visitors, loud speakers, banging of dishes, loud staff conversation), offering simple instructions for meals and bathing, adherence to a stable daily routine 2,62,63,141.…”

Section: Resultsmentioning

confidence: 99%

Sundown Syndrome in Persons with Dementia: An Update

Khachiyants

Trinkle

Son

et al. 2011

Psychiatry Investig

154

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"Sundowning" in demented individuals, as distinct clinical phenomena, is still open to debate in terms of clear definition, etiology, operationalized parameters, validity of clinical construct, and interventions. In general, sundown syndrome is characterized by the emergence or increment of neuropsychiatric symptoms such as agitation, confusion, anxiety, and aggressiveness in late afternoon, in the evening, or at night. Sundowning is highly prevalent among individuals with dementia. It is thought to be associated with impaired circadian rhythmicity, environmental and social factors, and impaired cognition. Neurophysiologically, it appears to be mediated by degeneration of the suprachiasmatic nucleus of the hypothalamus and decreased production of melatonin. A variety of treatment options have been found to be helpful to ameliorate the neuropsychiatric symptoms associated with this phenomenon: bright light therapy, melatonin, acetylcholinesterase inhibitors, N-methyl-d-aspartate receptor antagonists, antipsychotics, and behavioral modifications. To decrease the morbidity from this specific condition, improve patient's well being, lessen caregiver burden, and delay institutionalization, further attention needs to be given to development of clinically operational definition of sundown syndrome and investigations on etiology, risk factors, and effective treatment options.

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“…Other studies, not included in this systematic review because they were not randomized trials, also showed a statistically significant positive impact of educational programs in reducing caregiver burden (28)(29)(30)(31) .…”

Section: * Ig -Intervention Group and Cg -Control Groupmentioning

confidence: 96%

Effectiveness of educational programs on reducing the burden of caregivers of elderly individuals with dementia: a systematic review

Marim¹,

Silva²,

Taminato³

et al. 2013

Rev. Latino-Am. Enfermagem

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Objective: This study's objective was to analyze the effectiveness of educational and support programs for caregivers on reducing their burden. Method: The method used was a systematic review. The following were searched; MEDLINE, LILACS, Embase, Cochrane, Web of Science, SciELO and CINAHL. Results: Seven randomized clinical studies were included. These studies compared an educational program with standard care delivery, assessing the burden of caregivers through the Zarit Burden Interview. After the analysis of sensitivity, four studies were grouped in the meta-analysis showing a statistically significant reduction in caregiver burden among the participants of educational and support programs. Conclusion: The evidence obtained in this study suggests that educational and support programs have a positive impact on the reduction of caregiver burden when compared to standard care. Therefore, the inclusion of these programs in institutions providing care to the elderly is effective and should be encouraged. These programs should also share non-pharmacological management strategies for the behavioral and psychological symptoms of dementia.Descriptors: Dementia; Caregivers; Aged; Geriatric Nursing. Descritores: Demência; Cuidadores; Idoso; Enfermagem Geriátrica. Efectividad de programas educativos en la sobrecarga de cuidadores de pacientes con diagnóstico de demencia: revisión sistemáticaObjetivo: El objetivo de este estudio fue analizar la eficacia de programas de educación y apoyo a cuidadores para reducir su sobrecarga. Método: El método utilizado fue una revisión sistemática. Consultamos el MEDLINE, LILACS, Embase, Cochrane, CINAHL y Web of Science.Resultados: Se incluyeron los ensayos controlados aleatorios que compararon el programa de educación con la atención habitual, con evaluación de la carga del cuidador a través de la Escala de Zarit Burden. Tras el análisis de sensibilidad, cuatro estudios se combinaron en un metaanálisis, que muestra una mayor reducción de la carga del cuidador entre los participantes de los programas educativos y de apoyo, con significación estadística. Conclusión: La evidencia en este estudio indica que los programas educativos y de apoyo son favorables para la reducción de la carga del cuidador. La inclusión de este tipo de programas en las instituciones dedicadas al cuidado de los ancianos es eficaz y debe fomentarse. Se puede inferir que estos programas deben incluir el intercambio de estrategias de manejo no-farmacológico para los síntomas conductuales y psicológicos de la demencia.Descriptores: Demencia; Cuidadores; Anciano; Enfermería Geriátrica. IntroductionPopulation aging in Brazil has been increasingly evident throughout recent decades, i.e. the elderly population has been growing faster than other age groups. According to the census published by the Brazilian Institute of Geography and Statistics (IBGE) in 2002, the population over 60 years-old had increased 35.6% between 1999 and that year, with this age group coming to represent 7.9% of the Brazilian population.The ce...

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An educative support group for female family caregivers: impact on caregivers psychological distress and patient's neuropsychiatry symptoms

Abstract: This study supports the use of a non-pharmacologic intervention focusing on education in a feasible and cost benefit setting for dementia caregivers.

Cited by 29 publications

References 6 publications

Family burden related to mental and physical disorders in the world: results from the WHO World Mental Health (WMH) surveys

Family burden related to mental and physical disorders in the world: results from the WHO World Mental Health (WMH) surveys

Sundown Syndrome in Persons with Dementia: An Update

Effectiveness of educational programs on reducing the burden of caregivers of elderly individuals with dementia: a systematic review

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