An e-health strategy to facilitate care of breast cancer survivors: A pilot study

Tiong, Siaw Sze; Koh, Eng Siew; Delaney, Geoff P.; Lau, Annie; Adams, Diana; Bell, Vicki; Sapkota, Pharmila; Harris, Therese; Girgis, Afaf; Przezdziecki, Astrid; Lonergan, Denise; Coiera, Enrico

doi:10.1111/ajco.12475

Cited by 16 publications

(24 citation statements)

References 23 publications

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“…Thus, maximising the benefits of these existing services. The emphasis is on improving the efficiency and effectiveness of eHealth solutions and healthcare services [44], [45], [46] along with the responsibility to develop process support and change management. The argument here is that there are already enough eHealth solutions in use in everyday practice, but how can we improve upon these solutions so that they are being utilised well into the long term [47].…”

Section: Opportunitiesmentioning

confidence: 99%

A systematic review of reviews to identify key research opportunities within the field of eHealth implementation

2018

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This paper is a systematic review of the relevant literature surrounding the implementation and utilisation of eHealth in order to identify key challenges and opportunities to future eHealth applications. NHS Evidence, PubMed, IEEE Explorer, Cochrane Library and JMIR Publications were all searched for reviews published between the dates 1 January 2010 and 30 June 2017. 47 papers met the final inclusion criterion. The published literature focused on a wide array of challenges, categorised into five areas, facing the implementation and utilisation of eHealth and from this, four areas of opportunity to advance eHealth were identified. The five challenge areas are (C1) Stakeholders and System Users, (C2) Technology and Interoperability, (C3) Cost-Effectiveness and Start-up Costs, (C4) Legal Clarity and Legal Framework and (C5) Local Context and Regional Differences. The four opportunity areas are (O1) Participation and Contribution, (O2) Foundation and Sustainability, (O3) Improvement and Productivity and (O4) Identification and Application. The literature analysed in this systematic review identifies design and implementation priorities that can guide the development and utilisation of future eHealth initiatives.

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Section: Opportunitiesmentioning

confidence: 99%

A systematic review of reviews to identify key research opportunities within the field of eHealth implementation

2018

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“…Personally controlled health management systems (PCHMS), which may include a personal health record (PHR), health management tools, and information resources, have been advocated as a next-generation technology to improve health behaviors and outcomes [ 1 ]. Trials of PCHMS have been undertaken in various health settings, including in vitro fertilization [ 2 ], hypertension [ 3 ], diabetes [ 4 , 5 ], influenza vaccination [ 6 , 7 ], sexually transmitted infection [ 8 ], medication accuracy [ 9 ], breast cancer management [ 10 ], and physical and emotional well-being [ 11 , 12 ]. However, there is mixed evidence for whether consumers will use these systems over the long term and whether they ultimately lead to improved health outcomes and behaviors [ 2 - 7 , 9 - 12 ].…”

Section: Introductionmentioning

confidence: 99%

“Why Didn’t it Work?” Lessons From a Randomized Controlled Trial of a Web-based Personally Controlled Health Management System for Adults with Asthma

Lau

Arguel²,

Dennis

et al. 2015

J Med Internet Res

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BackgroundPersonally controlled health management systems (PCHMS), which may include a personal health record (PHR), health management tools, and information resources, have been advocated as a next-generation technology to improve health behaviors and outcomes. There have been successful trials of PCHMS in various health settings. However, there is mixed evidence for whether consumers will use these systems over the long term and whether they ultimately lead to improved health outcomes and behaviors.ObjectiveThe aim was to test whether use of a PCHMS by consumers can increase the uptake or updating of a written asthma action plan (AAP) among adults with asthma.MethodsA 12-month parallel 2-group randomized controlled trial was conducted. Participants living with asthma were recruited nationally in Australia between April and August 2013, and randomized 1:1 to either the PCHMS group or control group (online static educational content). The primary outcome measure was possession of an up-to-date written AAP poststudy. Secondary measures included (1) utilizing the AAP; (2) planned or unplanned visits to a health care professional for asthma-related concerns; (3) severe asthma exacerbation, inadequately controlled asthma, or worsening of asthma that required a change in treatment; and (4) number of days lost from work or study due to asthma. Ancillary analyses examined reasons for adoption or nonadoption of the intervention. Outcome measures were collected by online questionnaire prestudy, monthly, and poststudy.ResultsA total of 330 eligible participants were randomized into 1 of 2 arms (intervention: n=154; control: n=176). Access to the PCHMS was not associated with a significant difference in any of the primary or secondary outcomes. Most participants (80.5%, 124/154) did not access the intervention or accessed it only once.ConclusionsDespite the intervention being effective in other preventive care settings, system use was negligible and outcome changes were not seen as a result. Consumers must perceive the need for assistance with a task and assign priority to the task supported by the eHealth intervention. Additionally, the cost of adopting the intervention (eg, additional effort, time spent learning the new system) must be lower than the benefit. Otherwise, there is high risk consumers will not adopt the eHealth intervention.Trial RegistrationAustralian New Zealand Clinical Trials Registry (ANZCTR): ACTRN12612000716864; https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=362714 (Archived by WebCite® at http://www.webcitation.org/6dMV6hg4A)

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“…The written materials and animated video were incorporated into an app called Healthy.me Gout . Healthy.me Gout is a modified version of Healthy.me , a general health app that has been shown to improve influenza vaccination rates and address the needs of breast cancer survivors [18-20]. Healthy.me Gout was developed after interviews with patients regarding their current gout management [21], a review of commercially available apps for patient self-management of gout [15], and subsequent feedback from gout patients on these apps and the generic version of Healthy.me [22].…”

Section: Methodsmentioning

confidence: 99%

mHealth App Patient Testing and Review of Educational Materials Designed for Self-Management of Gout Patients: Descriptive Qualitative Studies

Nguyen

Frensham

Wong

et al. 2018

JMIR Mhealth Uhealth

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BackgroundGout is a form of chronic arthritis caused by elevated serum uric acid (SUA) and culminates in painful gout attacks. Although effective uric acid-lowering therapies exist, adherence is low. This is partly due to the lack of support for patients to self-manage their disease. Mobile health apps have been used in the self-management of chronic conditions. However, not all are developed with patients, limiting their effectiveness.ObjectiveThe objective of our study was to collect feedback from gout patients to design an effective gout self-management app.MethodsTwo descriptive qualitative studies were conducted. In Study 1, researchers developed a short educational video and written materials about gout management, designed to be embedded into an app; 6 interviews and 1 focus group were held with gout patients to gather feedback on these materials. Usability testing in Study 2 involved additional gout patients using a pilot version of Healthy.me Gout, a gout self-management app, for 2 weeks. Following the trial, patients participated in an interview about their experiences using the app.ResultsPatients viewed the gout educational material positively, appreciating the combined use of video, text, and images. Patients were receptive to using a mobile app to self-manage their gout. Feedback about Healthy.me Gout was generally positive with patients reporting that the tracking and diary features were most useful. Patients also provided suggestions for improving the app and educational materials.ConclusionsThese studies involved patients in the development of a gout self-management app. Patients provided insight to improve the app’s presentation and usability and general lessons on useful features for chronic disease apps. Gout patients enjoyed tracking their SUA concentrations and gout attack triggers. These capabilities can be translated into self-management apps for chronic diseases that require monitoring of pathological values, medication adherence, or symptoms. Future health app design should integrate patient input and be developed iteratively to address concerns identified by patients.

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An e-health strategy to facilitate care of breast cancer survivors: A pilot study

Abstract: This pilot study suggested the potential of an e-health strategy such as Healthy.me in addressing the needs of a growing breast cancer survivor population. Ongoing development of a more robust e-health resource and integration with primary care models is warranted.

Cited by 16 publications

References 23 publications

A systematic review of reviews to identify key research opportunities within the field of eHealth implementation

A systematic review of reviews to identify key research opportunities within the field of eHealth implementation

“Why Didn’t it Work?” Lessons From a Randomized Controlled Trial of a Web-based Personally Controlled Health Management System for Adults with Asthma

mHealth App Patient Testing and Review of Educational Materials Designed for Self-Management of Gout Patients: Descriptive Qualitative Studies

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