An audiovisual information resource to assist in the transition from completion of potentially curative treatment for cancer through to survivorship: A systematic development process

Karahalios, Amalia; Baravelli, Carl Michael; Carey, Mariko; Schofield, Penny; Pollard, Annabel; Aranda, Sanchia; Franklin, Jennie; Jefford, Michael

doi:10.1007/s11764-007-0022-1

Cited by 11 publications

(9 citation statements)

References 68 publications

(88 reference statements)

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“…It is critical that information resources are developed specifically for the post-treatment survivor phase, ideally employing a range of media to account for different preferences. Using the qualitative data reported in this paper, we have recently completed development of an informational DVD [24] and a companion booklet, designed for survivors who have completed potentially curative treatment. As information is required by all patients [28], developing these resources is a necessary first step.…”

Section: Discussionmentioning

confidence: 99%

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Survivorship issues following treatment completion—results from focus groups with Australian cancer survivors and health professionals

et al. 2008

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Section: Discussionmentioning

confidence: 99%

“…This study provides a qualitative, in depth exploration of the issues, and potential solutions, faced by Australian cancer survivors from two different perspectives: the survivor and the health care professional. The results of this research were used to develop a DVD resource for cancer patients completing treatment for cancer [24].…”

Section: Introductionmentioning

confidence: 99%

Survivorship issues following treatment completion—results from focus groups with Australian cancer survivors and health professionals

et al. 2008

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“…The package includes a DVD (Just Take It Day to Day) [19], a booklet ( Life After Cancer ) [20], and a Question Prompt List (QPL). The QPL is a list of 70 questions covering common issues cancer survivors encounter in the first year following treatment.…”

Section: Methodsmentioning

confidence: 99%

Evaluating a nurse-led survivorship care package (SurvivorCare) for bowel cancer survivors: study protocol for a randomized controlled trial

Jefford

Aranda

Gough

et al. 2013

Trials

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BackgroundColorectal cancer (CRC) is the most common cancer affecting both men and women in Australia. The illness and related treatments can cause distressing adverse effects, impact on emotional and psychological well-being, and adversely affect social, occupational and relationship functioning for many years after the end of treatment or, in fact, lifelong. Current models of follow-up fail to address the complex needs arising after treatment completion. Strategies to better prepare and support survivors are urgently required. We previously developed a nurse-led supportive care program (SurvivorCare) and tested it in a pilot study involving 10 CRC survivors. The intervention was found to be highly acceptable, appropriate, relevant and useful.Methods/designThis study is a multisite, randomised controlled trial, designed to assess the impact of the addition of the SurvivorCare intervention to usual post-treatment care, for people with potentially cured CRC. SurvivorCare comprises the provision of survivorship educational materials, a tailored survivorship care plan, an individually tailored nurse-led, face-to-face end of treatment consultation and three subsequent telephone calls. Eligible patients have completed treatment for potentially cured CRC. Other eligibility criteria include stage I to III disease, age greater than 18 years and adequate understanding of English. All consenting patients complete questionnaires at three time points over a six-month period (baseline, two and six months). Measures assess psychological distress, unmet needs and quality of life.DiscussionThis supportive care package has the potential to significantly reduce individual suffering, whilst reducing the burden of follow-up on acute cancer services through enhanced engagement with and utilisation of general practitioners and community based services. If the intervention is successful in achieving the expected health benefits, it could be disseminated readily. All training and supporting materials have been developed and standardised. Furthermore, the intervention could easily be adapted to other cancer or chronic disease settings.Trial registrationAustralian New Zealand Clinical Trial Registry ACTRN12610000207011.

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“…The DVD has been evaluated and is highly endorsed by survivors and by clinicians. 40 The accompanying booklet is highly acceptable to survivors, who found it informative, easy to understand, and reassuring. 31 The booklet is available from the Cancer Council Victoria Web site (www.cancervic.org.au) or through http:// cancervic.org.au/downloads/booklets/Life-after-cancer.pdf.…”

Section: Developing Information Materials For Survivorsmentioning

confidence: 99%

Development and Pilot Testing of a Nurse-Led Posttreatment Support Package for Bowel Cancer Survivors

et al. 2011

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An audiovisual information resource to assist in the transition from completion of potentially curative treatment for cancer through to survivorship: A systematic development process

Abstract: The DVD is expected to be a useful resource for CS living beyond effective treatment for cancer.

Cited by 11 publications

References 68 publications

Survivorship issues following treatment completion—results from focus groups with Australian cancer survivors and health professionals

Survivorship issues following treatment completion—results from focus groups with Australian cancer survivors and health professionals

Evaluating a nurse-led survivorship care package (SurvivorCare) for bowel cancer survivors: study protocol for a randomized controlled trial

Development and Pilot Testing of a Nurse-Led Posttreatment Support Package for Bowel Cancer Survivors

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