An ask‐the‐expert service on a rheumatology web site: Who were the users and what did they look for?

Abstract

Objective. To analyze the inquiries sent to an online ask-the-rheumatologist service in order to identify the users' needs and requirements. Methods. The official web site of the German Competence Network Rheumatology (www.rheumanet.org) provided expert information for patients, relatives, and physicians. We analyzed the content of 1,133 inquiries posted over 5 years and the experts' answers were blinded for analyses. Results. Patients (60.0%), relatives (24.3%), and physicians (15.7%) addressed the experts. Inquiries were predominantly sent by women (62.2%). Distinct rheumatic diseases were mentioned in 40.5% of the inquiries, and 16.3% reported musculoskeletal symptoms without a definite diagnosis. The number of questions ranged from 1-7 per inquiry (mean ؎ SD 1.58 ؎ 0.9). Of the inquiries, 33.2% contained personal histories, 24.9% searched for a rheumatologist nearby, and 11.6% asked for a "second opinion." The questions covered a wide range of interests, including medication (30.8%), diagnosis-related issues (15.7%), laboratory tests (6.9%), (treatment) guidelines (6.2%), sexual and reproductive health issues (4.1%), and clinical trials (3.4%). In more than 50% of the inquiries, the information requested from the experts was already at least partly published on the web site. The experts' answers covered the users' questions completely in 91.8%, partly in 6.1%, and not at all in 2.1%. Conclusion. A standardized medical web site providing tailored and trustworthy information for all user groups gains from an ask-the-expert service. Only such an interactive online application is able to satisfy users' actual demands: searching for specific individualized information on the internet. Therefore, an ask-the-expert service contributes to optimized patient care. INTRODUCTIONOnline health information and communication services are increasingly used by patients, relatives, and physicians (1-5). Besides general health portals and e-communication with personal health care providers, web-based consultations in expert forums (ask-the-doctor services) have become increasingly important sources of information (1,2,(5)(6)(7)(8).Various reasons for the use of web-based expert services have been identified (1,2,5,9 -11). However, little is known about the users of an ask-the-doctor service, and about the communication between the users and the experts in rheumatology. The official web site of the German Competence Network Rheumatology was launched on www.rheumanet. org in 2000 and had ϳ17,000 users per month in 2006 (12). Due to an administrative reconstruction of the network, it was transferred to www.dgrh.de in 2007. The web site offers a large variety of standardized and trustworthy information for rheumatology patients, relatives, and physicians (12). It includes trustworthy information on rheumatic diseases, treatment (options), recommendations for disease monitoring, the ability to search for a local rheumatologist, a tool that provides a risk assessment for inflammatory rheumatic diseases, monthly chats between users an...

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