An analysis over time (1990–2000) of the experiences of living with HIV

Pierret, Janine

doi:10.1016/j.socscimed.2007.06.017

Cited by 37 publications

(33 citation statements)

References 22 publications

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“…The advent of antiretroviral treatments replaced these uncertainties with contingencies associated with the prospect of a longer and relatively healthy life with HIV. This was sometimes experienced as debilitating, especially for those who had already experienced ill health (Barroso, 1997;Sowell, et al, 1998;Brashers, et al, 1999;Anderson, et al, 2000;Pierret, 2007). The imperative to manage uncertainty and risk also became part of the work of forging new HIV positive identities (Green & Sobo, 2000;Halkitis, et al, 2005;Flowers, et al, 2006;Baumgartner, 2007) and this imperative is operationalised within regulatory regimes for people with HIV (Kinsman, 1996;Lupton, 1999;Adam, 2005;Keogh, 2008;Patton, 2011).…”

Section: Anticipating Tasp: Public Health Perspectives Vs Those Of Pmentioning

confidence: 99%

Embodied, clinical and pharmaceutical uncertainty: people with HIV anticipate the feasibility of HIV treatment as prevention (TasP)

Keogh

2016

Critical Public Health

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Evidence of the efficacy of HIV treatment as prevention (TasP) precipitated a highly optimistic global response and a radical re-design of HIV policy. Sociologists and others have framed TasP within promissory or enterprising discourses which require HIV prevention planners and people with HIV to engage in anticipatory assessments of risk and uncertainty. In 2013, I conducted focus groups with people with HIV in London, UK to explore their understandings and anticipations of TasP.An environment of economic constraint obliged participants to triage clinical need and presentation and they expressed scepticism about the sustainability of pharmaceutical investment in treatment innovation. These perceptions were informed by an embodied knowledge of HIV which implies a construction of health as a form of capital that is finite and must be conserved. This is contrasted with a bio-medical construction of health as a form of capital that can be exponentially generated through investment. The imperative of conservation entailed by people with HIV's anticipations contrasts with the speculative economy of biomedical production entailed in planners' anticipations of TasP.Rather than researching 'TasP acceptability' and considering whether people with HIV's behaviours constitute an obstacle to TasP's effectiveness, we should recognise that people with HIV are already involved in shaping what TasP is, what it will be and ultimately how it 'works'.

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Section: Anticipating Tasp: Public Health Perspectives Vs Those Of Pmentioning

confidence: 99%

Embodied, clinical and pharmaceutical uncertainty: people with HIV anticipate the feasibility of HIV treatment as prevention (TasP)

Keogh

2016

Critical Public Health

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“…ExPERIMEnTIng WITH TREATMEnT And COnTROLLIng SIdE EFFECTS As described in other chronic diseases (Conrad 1985;Collin 2002Collin , 2003Haxaire 2002;Pierret 2007), the occasional or prolonged failure to take drugs, whether acci- dental or voluntary, allowed high blood pressure patients to experiment with the effects on the body of treatment interruption and thus to gain knowledge about the disease. Several interviewees stated that they did not take the drug on certain days in order to limit the adverse effects with consequences on family and social life (effects on sexuality, incapacitating effects of diuretics linked to increased urination, fatigue affecting the quality of life).…”

Section: Self-regulation Of Treatmentmentioning

confidence: 99%

“…InTEgR ATIng TREATMEnT InTO dAILY LIFE Loyalty to a drug has also been found in ordinary practices among people who have integrated drug intake into their daily activities, favouring the perpetuation of drug use already described for long-term treatments (Fainzang 2001;Sow and desclaux 2004;Pierret 2007). This translates into an intake routinization, often organized around meals.…”

Section: Accepting "Individualized" Treatment Drug Loyaltymentioning

confidence: 99%

“…Based on the work of Conrad (1985) and from a patient-centred approach, some social scientists consider the varying levels of adherence as individual strategies that regulate the patients' day-to-day relationship with the drug and their drug consumption (Lerner 1997;Collin 1999Collin , 2002Collin , 2003Haxaire 2002;Pierret 2007). They study the "medication practice" in order to understand "the meanings of medication in people' s everyday lives" (Conrad 1985).…”

Section: Article Publié En Français Dans La Revue Pratiques Et Organimentioning

confidence: 99%

“…Moreover, this substitution rarely involves just one generic drug that remains constant, but different generic brands based on the pharmacy' s supply, creating a lack of reference points (name, colour and shape of tablets) for patients. It compromises the product identification process for building a strong connection between the drug and the individual who takes it.InTEgR ATIng TREATMEnT InTO dAILY LIFE Loyalty to a drug has also been found in ordinary practices among people who have integrated drug intake into their daily activities, favouring the perpetuation of drug use already described for long-term treatments (Fainzang 2001;Sow and desclaux 2004;Pierret 2007). This translates into an intake routinization, often organized around meals.…”

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confidence: 99%

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Anthropological Approach to Adherence Factors for Antihypertensive Drug Therapy

Sarradon-Eck¹,

Egrot²,

Blanc³

et al. 2010

hcpol

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Objective: uncontrolled high blood pressure leads clinicians to wonder about adherence degree among hypertensive patients. In this context, our study aims to describe and analyze patients' experience of antihypertensive drugs in order to shed light on the multiple social and symbolic logics, forming part of the cultural factors shaping personal medication practices. Methods: The medical inductive and comprehensive anthropological approach implemented is based on an ethnographic survey (observations of consultations and interviews). Semi-structured interviews were conducted with 68 hypertensive patients (39 women and 29 men, between the ages of 40 and 95, of whom 52 were over 60) who had been receiving treatment for over a year. Results: Antihypertensive drugs are reinterpreted when filtered through the cultural model of physiopathology (the body as an engine). This symbolic dimension facilitates acceptance of therapy but leads to a hierarchization of other prescribed drugs and of certain therapeutic classes (diuretics). Prescription compliance does not solely depend on the patient' s perception of cardiovascular risk, but also on how the patient fully accepts the treatment and integrates it into his or her daily life; this requires identification with the product, building commitment and self-regulation of the treatment (experience, managing treatment and control of side effects, intake and treatment continuity). Following the prescription requires a relationship based on trust between the doctor and patient, which we have identified in three forms: reasoned trust, emotional trust and conceded trust. Conclusion: Consideration and understanding of these pragmatic and symbolic issues by the treating physician should aid practitioners in carrying out their role as medical educators in the management of hypertension. This paper was originally published in French, in the journal Pratiques et organisation des soins 39(1): 3-12. RésuméObjectif : Les hypertensions artérielles non contrôlées conduisent les cliniciens à s'interroger sur les niveaux d' observance des hypertendus traités. dans ce contexte, notre étude visait à décrire et à analyser l' expérience des hypotenseurs par les hypertendus, afin de mettre à jour les logiques plurielles, sociales et symboliques, permettant de comprendre ce qui construit culturellement les pratiques médicamenteuses des individus. Méthodes : La démarche anthropologique, inductive et compréhensive, mise en oeuvre reposait sur une enquête ethnographique (observations de consultations et entretiens). nous avons interviewé 68 hypertendus (39 femmes et 29 hommes, âgés de 40 à 95 ans, 52 d' entre eux ayant plus de 60 ans) traités depuis plus d'un an. HEALTHCARE POLICY Vol.5 No.4, 2010 [e159] Anthropological Approach of Adherence Factors for Antihypertensive DrugsRésultats : Le médicament hypotenseur était réinterprété au travers du filtre des représentations populaires de la physiopathologie (corps machine). Cette dimension symbolique facilitait l' adhésion thérapeutique, mais cond...

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Modern Symbolic Interaction Theory and Health

Charmaz

Belgrave

2013

Medical Sociology on the Move

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An analysis over time (1990–2000) of the experiences of living with HIV

Cited by 37 publications

References 22 publications

Embodied, clinical and pharmaceutical uncertainty: people with HIV anticipate the feasibility of HIV treatment as prevention (TasP)

Embodied, clinical and pharmaceutical uncertainty: people with HIV anticipate the feasibility of HIV treatment as prevention (TasP)

Anthropological Approach to Adherence Factors for Antihypertensive Drug Therapy

Modern Symbolic Interaction Theory and Health

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