An analysis of caregiver burden of patients with hemodialysis and peritoneal dialysis

Abstract

Since caregivers have roles and responsibilities in all phases from the diagnosis of the disease to discharge and homecare, their care burdens increase. The problems experienced by caregivers, whose care burden increase and accordingly whose life quality is deteriorated, complicate the treatment-receiving patient's adaptation to the disease. This study was performed to determine the burden to primary caregivers of patients undergoing dialysis. This descriptive study was conducted with the family caregivers of 114 patients from Erzurum Ataturk University's Medical Faculty Nephrology Department: 54 were relatives of patients receiving hemodialysis and 60 were relatives of patients receiving peritoneal dialysis during August to December 2014. The percentage of the patients with low levels of caregiver burden is 13% in the hemodialysis group, while it is 35% in the peritoneal dialysis group. These findings are statistically significant. To conclude, chronic diseases affect not only patients, but also their relatives who care for them. Nursing care needs to include both patients and their relatives and support them. It is hoped that this study will guide nursing care in this direction.

Informal caregivers’ experiences of caring for people receiving dialysis: A mixed‐methods systematic review

“…; Cantekin et al . ). Three studies also compared type of dialysis therapy and caregiver burden (Belasco et al .…”

“…; Cantekin et al . ), with those caring for patients receiving HD having a higher burden than PD (Cantekin et al . ) and kidney transplantation (Avşar et al .…”

“…), with those caring for patients receiving HD having a higher burden than PD (Cantekin et al . ) and kidney transplantation (Avşar et al . ) (33.3% and 14.7% vs. 16.7% and 0%, respectively).…”

Known unknowns: Examining the burden of neurocognitive impairment in the end‐stage renal failure population

“…The secondary impacts on family, carers and healthcare workers are particularly unknown, specifically at lower levels of NCI where impacts are difficult to quantify and the condition commonly unrecognised. The applicability of these observations to the co‐morbid renal failure context is similarly challenging, though likely amplified where a chronic, time‐consuming maintenance therapy and persistent illness state already see significantly reduced life expectancies with care requirements grossly higher than the general population . Studies in non‐renal failure clinical trial populations have observed those with executive dysfunction in particular are up to three times less likely to complete trial follow‐up compared to patients with isolated memory or global cognitive deficits .…”

Brazilian study of adaptation and psychometric properties of the Coping Health Inventory for Parents

“…There is evidence that the parents feel they are not prepared to deal with the new situation in the family and, as a result, they seem to become more vulnerable to stress factors (Cantekin et al 2015;Favero-Nunes and Santos 2010). In fact, studies show that changes in the family routine, frequent in this context, can wear on the emotional, physical, and social stability of the caregivers, which can trigger psychopathologies such as stress, depression, and anxiety disorders (Chamak and Bonniau 2013;Favero-Nunes and Santos 2010;Zablotsky et al 2013).…”