American Academy of Nursing Expert Panel consensus statement on nursing's roles in ensuring universal palliative care access

Rosa, William E.; Buck, Harleah G.; Squires, Allison; Kozachik, Sharon; Huijer, Huda Abu Saad; Bakitas, Marie; Boit, Juli Mc Gowan; Bradley, Patricia; Cacchione, Pamela Z.; Chan, Garrett K.; Crisp, Nigel; Dahlin, Constance; Daoust, Pat; Davidson, Patricia M.; Davis, Sheila; Doumit, Myrna; Fink, Regina; Herr, Keela; Hinds, Pamela S.; Hughes, Tonda L.; Karanja, Viola; Kenny, Deborah J.; King, Cynthia R.; Klopper, Hester C.; Knebel, Ann R.; Kurth, Ann; Madigan, Elizabeth A.; Malloy, Pamela; Matzo, Marianne; Mazanec, Polly; Meghani, Salimah H.; Monroe, Todd B.; Moreland, Patricia; Paice, Judith A.; Phillips, J. Craig; Rushton, Cynda Hylton; Shamian, Judith; Shattell, Mona; Snethen, Julia; Ulrich, Connie M.; Wholihan, Dorothy; Wocial, Lucia D.; Ferrell, Betty

doi:10.1016/j.outlook.2021.06.011

Cited by 13 publications

(18 citation statements)

References 31 publications

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“…Nurse-led advocacy in collaboration with community-based stakeholders (eg, faith communities, local health facilities, social services, traditional medicine leaders) at the institutional, regional, and national levels to decision-makers that highlight the importance of palliative care and economic and health system benefits could draw increased attention and funding to the PIH palliative care program initiative. [31][32][33][34][35]…”

Section: Discussionmentioning

confidence: 99%

“…However, palliative clinicians have the potential to identify holistic needs of both the seriously ill and their families, ensuring timely referral to social and welfare services that can streamline transitions in care and promote a more dignified illness trajectory and end of life. Nurse-led advocacy in collaboration with community-based stakeholders (eg, faith communities, local health facilities, social services, traditional medicine leaders) at the institutional, regional, and national levels to decision-makers that highlight the importance of palliative care and economic and health system benefits could draw increased attention and funding to the PIH palliative care program initiative 31-35 …”

Section: Discussionmentioning

confidence: 99%

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“I Am a Human”

Lusaka

Kpoeh

Crowell

et al. 2023

J Hosp Palliat Nurs

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Liberia is a postwar, post-Ebola, and low-income nation in West Africa with minimal to no palliative care access. In 2017, Partners In Health in collaboration with the Liberian Ministry of Health invested in the development of a nurse-led, community-based palliative care team in southeastern Maryland County at JJ Dossen Memorial Hospital. Between 2017 and 2022, the 9-member team (8 nurses, 1 physician assistant) has enrolled 142 patients under their care. This is a qualitative process evaluation eliciting the experiences, perspectives, and attitudes of patients with cancer to inform future palliative care program delivery improvement and development. Using an exploratory design, n = 8 participants were interviewed using a semi-structured guide. The sample had a mean age of 48 years with an average palliative care clinic enrollment period of 22.5 weeks at the time of interview. The interdisciplinary coding team used an applied thematic text analysis approach and identified 5 themes: history and disease progression, follow-up clinic services, psychological distress and its sources, social support, and spiritual and cultural beliefs. Implications emphasize the need for increased community engagement, primary palliative care capacity development of clinical colleagues in the region, and the support of local and national decision-makers to prioritize palliative care service expansion.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

“I Am a Human”

Lusaka

Kpoeh

Crowell

et al. 2023

J Hosp Palliat Nurs

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“…Practicing nurses and transitioning nurses should also have access to palliative care education and training and recognize the need for specialist palliative care consultation when appropriate. 45,46 The collective burden of the pandemic-a time of increased loss and ethical dilemmas-has demonstrated the importance of palliative care education and the need to improve nursing care for patients with serious illnesses and their families. ▼…”

Section: Discussionmentioning

confidence: 99%

Integrating Palliative Care into Nursing Care

Campos

Levoy

Pandey

et al. 2022

AJN, American Journal of Nursing

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The need for palliative care in our health care system has exponentially increased in the past few years as a result of the COVID-19 pandemic, the aging population, and the increasing number of people living with serious illnesses. While nurses play a critical role in delivering palliative care, many lack confidence and knowledge, causing practice gaps in the clinical and psychological management of seriously ill patients. The collective burden of the pandemic has demonstrated the importance of palliative care education and training, specifically in communication, symptom management, and continuing education. All nurses, including nursing students, transitioning nurses, and practicing nurses, should be trained to offer generalist (or primary) palliative care, in accordance with the American Association of Colleges of Nursing Essentials: Core Competencies for Professional Nursing Education. Provision of holistic, relationship-based, and integrated palliative care for patients and their families is an ethical obligation for all nurses.

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“…In principle, PC should be provided on the basis of the needs of patients and their families, regardless of prognosis or disease stage 10,18 . In particular, nonhospice PC interventions are not provided only to terminally ill or end-of-life patients 7 .…”

Section: Discussionmentioning

confidence: 99%

“…In principle, PC should be provided on the basis of the needs of patients and their families, regardless of prognosis or disease stage. 10,18 In particular, nonhospice PC interventions are not provided only to terminally ill or end-of-life patients. 7 Above all, HF is a progressive condition, and it is difficult to accurately predict life expectancy due to the disease itself or associated complications.…”

Section: Discussionmentioning

confidence: 99%

Palliative Care for Patients With Heart Failure

Kim¹,

Kim²,

Lee³

et al. 2022

J Hosp Palliat Nurs

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Palliative care should be integrated into routine disease management for all patients with serious illness, regardless of settings or prognosis. The purposes of this integrative review were to identify the features of randomized controlled trials for adult patients with heart failure and to provide basic references for the development of future trials. Using Whittemore and Knafl's integrative literature review method, comprehensive searches of the PubMed, Cochrane Library, CINAHL, EMBASE, and Korean databases were conducted, integrating keywords about heart failure and palliative care interventions. Quality appraisal was assessed using Cochrane risk-of-bias tools. In total, there were 6 trials providing palliative care interventions integrating team-based approaches between palliative care specialists and nonpalliative clinicians, such as a cardiologist, cardiac nurse, and advanced practice nurse across inpatient and outpatient settings. The different types of interventions included home visits, symptom management via phone calls or referral to a specialist team, and the establishment of treatment planning. Patient-reported outcome measures included positive effects of palliative interventions on symptom burden and quality of life. Given that most of the selected studies were conducted in Western countries, palliative care should be culturally tailored to assist heart failure patients worldwide. KEY WORDSadvance care planning, chronic disease, heart failure, palliative care, review T he prevalence of heart failure (HF) continues to increase with an increase in the aging population. 1 The American Heart Association has reported that 50% of patients diagnosed as having HF die within 5 years, and 5% are at the end of life with a condition refractory to medical treatment. 1 Patients with HF have a significant burden of symptom clusters, including pain, fatigue, dyspnea, depression, anxiety, insomnia, and loss of appetite, causing deterioration in overall quality of life. 2 This imposes an economic and structural burden on patients and their families, as well as the social health care delivery system caring for them. 3 The treatment and management of patients with HF require the consideration of combined physical, psychosocial, and environmental factors. 4 For instance, medical devices such as pacemakers and implantable defibrillators may be effective in the early stages of HF, but their benefits may gradually wane as the disease progresses. In addition to the unpredictable prognosis, patients vary in their illness experience and perception toward overall disease management. 5 As HF progresses, responsibility for end-of-life treatment decisions may change according to the patients' or their family's cultural norms and social context. 6 The National Consensus Project Clinical Practice Guidelines for Quality Palliative Care (NCP guidelines) defines palliative care (PC) as an interdisciplinary care delivery system designed to anticipate, prevent, and manage severe illness to optimize the quality of life for patients, the...

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American Academy of Nursing Expert Panel consensus statement on nursing's roles in ensuring universal palliative care access

Cited by 13 publications

References 31 publications

“I Am a Human”

“I Am a Human”

Integrating Palliative Care into Nursing Care

Palliative Care for Patients With Heart Failure

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