Ambulatory Management of Childhood Asthma Using a Novel Self-management Application

Nkoy, Flory L.; Fassl, Bernhard; Wilkins, Victoria; Johnson, Joseph M.; Unsicker, Eun Hea; Koopmeiners, Karmella; Jensen, Andrea; Frazier, Michelle; Gaddis, Jordan; Malmgren, Lis; Williams, Stacey; Oldroyd, Heather; Greene, Tom; Sheng, Xiaoming; Uchida, Derek A.; Maloney, Christopher G.; Stone, Bryan L.

doi:10.1542/peds.2018-1711

Cited by 17 publications

(19 citation statements)

References 38 publications

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“…These barriers include access to a smartphone, inability to use the phone at school, and time restrains during the school days [74] . While there are workarounds to compensate for a lack of access to a smartphone (e.g., via the use of webtools [75] ), the restrictions of school rules and schedules may be harder to overcome. Nonetheless, the interest of the patients in mHealth as a disease control tool is high [76] .…”

Section: Discussionmentioning

confidence: 99%

A scoping review of mHealth monitoring of pediatric bronchial asthma before and during COVID-19 pandemic

Dauletbaev

Oftring

Akik

et al. 2022

Paediatric Respiratory Reviews

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Mobile (m) Health technology is well-suited for Remote Patient Monitoring (RPM) in a patient’s habitual environment. In recent years there have been fast-paced developments in mHealth-enabled pediatric RPM, especially during the COVID-19 pandemic, necessitating evidence synthesis. To this end, we conducted a scoping review of clinical trials that had utilized mHealth-enabled RPM of pediatric asthma. MEDLINE, Embase and Web of Science were searched from September 1, 2016 through August 31, 2021. Our scoping review identified 25 publications that utilized synchronous and asynchronous mHealth-enabled RPM in pediatric asthma, either involving mobile applications or via individual devices. The last three years has seen the development of evidence-based, multidisciplinary, and participatory mHealth interventions. The quality of the studies has been improving, such that 40% of included studies reported were randomized controlled trials. In conclusion, there exists high-quality evidence on mHealth-enabled RPM in pediatric asthma, warranting future systematic reviews and/or meta-analyses of the benefits of such RPM.

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Section: Discussionmentioning

confidence: 99%

A scoping review of mHealth monitoring of pediatric bronchial asthma before and during COVID-19 pandemic

Dauletbaev

Oftring

Akik

et al. 2022

Paediatric Respiratory Reviews

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“…Apps can support asthma self-management and supplement existing clinical care through real-time monitoring, facilitating information sharing and addressing barriers to selfmanagement (such as forgetting medication) 15,16,18 . Early evidence shows that apps that assist children to self-manage their asthma can result in improved outcomes such as reduced hospital admissions and missed school attendance 39 . Given the ubiquitousness of mobile usage generally in our sample, with 76% of children having used an app of some description, further studies outlining what works, particularly focussed on children's developmental cognitive stages and reactive approach to management is warranted.…”

Section: Discussionmentioning

confidence: 99%

Child and caregiver experiences and perceptions of asthma self-management

Kelada

Molloy

Hibbert

et al. 2021

npj Prim. Care Respir. Med.

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Asthma is the most common chronic condition of childhood. Self-management is integral to good asthma control. This qualitative paper explores how children with asthma and their parents perceive asthma, their experience with asthma, and how they manage symptoms, preventions and medications within and outside the home. We undertook 15 focus groups with 41 school-aged (6–11 years) children with asthma and 38 parents. Parents and their children attended the same focus groups. We used thematic analysis to analyse the transcripts. Our findings show the impact asthma can have on children’s social and emotional wellbeing and highlight how reliant school-aged children are on their parents to effectively manage their asthma. Parents reported being unsure when their child’s symptoms warranted visiting their doctor or hospital. Schools were identified as a source of difficulty regarding asthma management; families reported that children may be self-conscious about their asthma and using their inhaler at school. School policies and teachers’ lack of asthma knowledge were reported to exacerbate children’s reluctance to use their inhaler at school. Our results have implications for the design and implementation of children’s self-management interventions for their asthma, particularly when they are at school and away from their parents.

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“…12 If this app succeeds in meeting caregivers' unmet needs, it is plausible to expect these outcomes to improve. In one of few pediatric chronic illness studies examining the influence of app use on health services use, the asthma self-management app by Nkoy et al 35 was associated with improvements in quality of life, asthma control, and missed school or work and also reduced ED and hospital use. In addition, a recent meta-analysis highlights the promise of pediatric mHealth interventions to positively influence a wide array of child and family outcomes.…”

Section: Discussionmentioning

confidence: 99%

Codesign and Usability Testing of a Mobile Application to Support Family-Delivered Enteral Tube Care

Cheng

Werner

Doutcheva

et al. 2020

Hospital Pediatrics

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BACKGROUND: Enteral tubes are prevalent among children with medical complexity (CMC), and complications can lead to costly health care use. Our objective was to design and test the usability of a mobile application (app) to support family-delivered enteral tube care. METHODS:Human-centered design methods (affinity diagramming, persona development, and software development) were applied with family caregivers of CMC to develop a prototype. During 3 waves of usability testing with design refinement between waves, screen capture software collected user-app interactions and inductive content analysis of narrative feedback identified areas for design improvement. The National Aeronautics and Space Administration Task Load Index and the System Usability Scale quantified mental workload and ease of use. RESULTS:Design participants identified core app functions, including displaying care routines, reminders, tracking inventory and health data, caregiver communication, and troubleshooting. Usability testing participants were 80% non-Hispanic white, 28% lived in rural settings, and 20% had not completed high school. Median years providing enteral care was 2 (range 1-14). Design iterations improved app function, simplification, and user experience. The mean System Usability Scale score was 76, indicating above-average usability. National Aeronautics and Space Administration Task Load Index revealed low mental demand, frustration, and effort. All 14 participants reported that they would recommend the app, and that the app would help with organization, communication, and caregiver transitions. CONCLUSIONS:Using a human-centered codesign process, we created a highly usable mobile application to support enteral tube caregiving at home. Future work involves evaluating the feasibility of longitudinal use and effectiveness in improving self-efficacy and reduce device complications.

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Ambulatory Management of Childhood Asthma Using a Novel Self-management Application

Cited by 17 publications

References 38 publications

A scoping review of mHealth monitoring of pediatric bronchial asthma before and during COVID-19 pandemic

A scoping review of mHealth monitoring of pediatric bronchial asthma before and during COVID-19 pandemic

Child and caregiver experiences and perceptions of asthma self-management

Codesign and Usability Testing of a Mobile Application to Support Family-Delivered Enteral Tube Care

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