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Castillo-Page, Laura; Bodilly, Sue; Bunton, Sarah A.

doi:10.1097/acm.0b013e318247c660

Cited by 11 publications

(7 citation statements)

References 4 publications

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“…We used a mixed methods design [28] , facilitating the integration of quantitative and qualitative findings. First, we distributed a survey among individuals with SCD focusing on Internet usage and the preferences for an OLP, in all three countries.…”

Section: Methodsmentioning

confidence: 99%

Wishes and preferences for an online lifestyle program for brain health—A mixed methods study

Wesselman

Schild

Coll-Padrós

et al. 2018

A&D Transl Res & Clin Interv

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IntroductionIndividuals with subjective cognitive decline (SCD) are at increased risk of Alzheimer's disease and could benefit from a prevention strategy targeting lifestyle factors. Making a program available through the Internet gives a widespread reach at low cost, but suboptimal adherence is a major threat to effectiveness. As a first step in developing an online lifestyle program (OLP), we aimed to identify factors that are barriers and/or facilitators for the use of an OLP in individuals with SCD in three European countries.MethodsAs part of the Euro-SCD project, SCD subjects were recruited at memory clinics in the Netherlands, Germany, and Spain. We combined quantitative and qualitative methods, using a mixed methods approach. We conducted an online 18-item survey on the preferences of SCD patients for an OLP (N = 238). In addition, we held semi-structured interviews (N = 22) to gain in-depth understanding of factors acting as a facilitator and/or barrier for intended use of an OLP. Audio recordings were transcribed verbatim. Content analysis was performed.ResultsOne hundred seventy-six individuals completed the survey (response rate 74%). Almost all participants regularly use the Internet (97%). Participants reported trustworthiness (93%), user-friendliness (91%), and up-to-date information (88%) as main facilitators, whereas having contact with other users (26%), needing an account (21%), and assignments (16%) were reported as barriers. Barriers differed slightly between countries, but facilitators were largely similar. In-depth interviews revealed that both program characteristics (e.g., trustworthiness, user-friendliness, and personalization) and personal factors (e.g., expectancy to receive negative feedback) are likely to influence the intended use of an OLP.DiscussionInvolving users provided in-depth understanding of factors associated with the intended use of an OLP for brain health. Both program characteristics and personal factors are likely to influence the use of an OLP. Based on this input from the end-users, we will develop an OLP for individuals with SCD.

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Section: Methodsmentioning

confidence: 99%

Wishes and preferences for an online lifestyle program for brain health—A mixed methods study

Wesselman

Schild

Coll-Padrós

et al. 2018

A&D Transl Res & Clin Interv

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“…We used a mixed-methods study design in which the quantitative data collection, i.e., a survey among trial participants and study partners, informed the qualitative collection, i.e., focus groups with trial participants [ 17 ]. Participants were recruited via Brain Research Center (BRC), a specialized clinical trial organization in central nervous system disorders in two locations in the Netherlands: one in Amsterdam and one in Den Bosch.…”

Section: Methodsmentioning

confidence: 99%

“…The content of the survey was based on previous studies focusing on challenges and motivation for participation in AD prevention trials [6][7][8][9][10][11][12][13][14][15][16][17][18][19] and supplemented with additional topics based on the aims of this study. The complete survey is included in Additional file 1.…”

Section: Measurements Surveymentioning

confidence: 99%

Experiences of and recommendations on clinical trial design in Alzheimer’s disease from the participant’s point of view: a mixed-methods study in two clinical trial centers in the Netherlands

et al. 2023

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Introduction In the context of the development of pharmaceutical interventions, expectations and experiences of participants are essential. Their insights may be particularly helpful to address the challenges of recruiting and retaining participants for Alzheimer’s disease (AD) clinical trials. We examined clinical trial participants’ experiences to optimize trial design in Alzheimer’s disease (AD). Method In this mixed-methods study, we included adults who participated in sponsor-initiated AD trials at Brain Research Center, a clinical trial organization in the Netherlands. Participants (N = 71, age 69 ± 6.5, 54%F, 19 cognitively normal (CN), 19 mild cognitive impairment (MCI), and 33 AD dementia) first completed an online survey. Diagnostic group differences were investigated using chi-square tests or one-way ANOVAs. Next, a subsample (N = 12; 8 = CN, 4 = MCI) participated in focus groups to gain in-depth insight into their opinions on optimizing trial design from a participants’ point of view. Audio recordings from focus group interviews were transcribed verbatim and analyzed by thematic content analysis by two independent researchers. Results Most reported motives for enrolment included “to benefit future generations” (89%), followed by “for science” (66%) and “better monitoring” (42%). Frequent suggestions for increasing willingness to participate included a smaller chance to receive placebo (n = 38, 54%), shorter travel times (n = 27, 38%), and sharing individual results of different assessments (n = 57, 80%), as well as receiving trial results (n = 52, 73). Highest visual analogue burden scores (0–100) were found for the lumbar puncture (M = 47.2, SD = 38.2) and cognitive assessments (M = 27.2, SD = 25.7). Results did not differ between diagnostic groups, nor between patient and caregiver participants (all p-values>.05). Two additional themes emerged from the focus groups: “trial design,” such as follow-up visit(s) after participating, and “trial center,” including the relevance of a professional and empathic staff. Conclusion Relevant factors include expectation management and careful planning of high-burden assessments, provision of individual feedback, and prioritizing professionalism and empathy throughout conduct of the trial. Our findings provide insight into participants’ priorities to increase willingness to participate and can be used to optimize trial success.

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“…Data are ordinal or nominal and analyzed through statistical means, including descriptive and inferential statistics. 18,21 Types of data may include survey, test scores, and demographics. The rigor of a quantitative study is achieved through validity, reliability, and objectivity.…”

Section: Designing a Studymentioning

confidence: 99%

Research and scholarly methods: The scholarship of teaching and learning

Cox

Wettergreen

Savage

et al. 2023

J Am Coll Clin Pharm

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Clinical faculty and preceptors are often asked to teach students and residents in the classroom and on practice‐based experiences. Many have some prior training in instructional methodologies (e.g., as part of a residency program teaching certificate or faculty development workshop) and may know that there are opportunities for scholarship around teaching and learning. However, they may be less certain of the distinctions between scholarly teaching, the scholarship of teaching and learning (SoTL), and educational research, and how these can contribute to their success. In addition, clinical faculty may struggle with where to start, how to find time, and how to conduct scholarship around teaching and learning. This article summarizes key concepts related to SoTL and provides guidance to clinician educators about best practices in SoTL.

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AM Last Page

Cited by 11 publications

References 4 publications

Wishes and preferences for an online lifestyle program for brain health—A mixed methods study

Wishes and preferences for an online lifestyle program for brain health—A mixed methods study

Experiences of and recommendations on clinical trial design in Alzheimer’s disease from the participant’s point of view: a mixed-methods study in two clinical trial centers in the Netherlands

Research and scholarly methods: The scholarship of teaching and learning

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