Alzheimer's disease in real life – the dementia carer's survey

Georges, Jean; Jansen, Sabine; Jackson, Jim; Meyrieux, Arlette; Sadowska, Alicja; Selmes, Micheline

doi:10.1002/gps.1984

Cited by 152 publications

(147 citation statements)

References 16 publications

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“…The response rate was more than 20%. This value corresponds exactly with the empirically established response in anonymous written surveys of family caregivers who received no reward for answering (Georges et al 2008;Gräßel 2002). However, a recruitment bias cannot be ruled out.…”

Section: Structural Quality (S): Non-personal Factors (S I); Person-rsupporting

confidence: 73%

Counselling for dementia caregivers—predictors for utilization and expected quality from a family caregiver’s point of view

Gräßel

Luttenberger

Trilling³

et al. 2010

Eur J Ageing

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Caregiver counselling has proved to be effective in reducing the burden of family caregivers of dementia patients. Nevertheless, little is known about the influencing factors for utilization and quality expectations of family caregivers. In this article, we address the following questions on the theoretical base of the Andersen/ Newman model: Which variables of the care situation, the caregivers and their attitudes act as predictors for the utilization of caregiver counselling? What are the views of caregivers about the quality of caregiver counselling? The cross-sectional study was carried out as an anonymous written survey of family caregivers of dementia patients in four regions, both urban and rural, of Germany. Quantitative and qualitative data from 404 family caregivers were analysed using binary logistic regression analysis and qualitative content analysis, respectively. The only significant predictor for utilization is the assessment of how helpful caregiver counselling is for the individual care situation. In the sensitivity analysis 'accessibility of caregiver counselling' was additionally predictive for usage. Family caregivers most frequently expressed a wish for advice about further 'support offers' by qualified counsellors. In order to increase the rate of utilization, family caregivers must be convinced of the relevant advantages of using caregiver counselling. Counselling services should provide information about further support offers and give practical help in filling out application forms.

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Section: Structural Quality (S): Non-personal Factors (S I); Person-rsupporting

confidence: 73%

Counselling for dementia caregivers—predictors for utilization and expected quality from a family caregiver’s point of view

Gräßel

Luttenberger

Trilling³

et al. 2010

Eur J Ageing

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“…Moreover, we have to underline that the comprehensive geriatric assessment we performed also considered objective determinants of the Only about 11% of our sample of depressed older adults were attending a DC. This seems to be a low rate of attendance, yet if we compare it with the rate of attendance of DCs (both regular and specific DCs) in all communitydwelling subjects with dementia (28%) (Georges et al 2008), we believe we have found results of a reasonable magnitude taking into account that: (i) dementia and depression have a similar prevalence in the communitydwelling older population (Ferri et al 2005;Unutzer 2007),…”

Section: Discussionmentioning

confidence: 86%

“…Moreover, even in the hypothesis that a higher weekly attendance of DCs is actually able to improve the QOL in (Georges et al 2008). …”

Section: Discussionmentioning

confidence: 99%

Day care centre attendance and quality of life in depressed older adults living in the community

et al. 2010

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Late-life depression is associated with disabled functioning and a poor quality of life (QOL). The aim of this cross-sectional study was to find out whether the attendance of a day care centre (DC) was associated with QOL in community-dwelling older adults suffering from a depressive disorder without dementia. The study enrolled 149 depressed older adults aged 70 or older, who consecutively underwent a comprehensive geriatric assessment from April to July 2008 at the Geriatric Medicine Unit of the Fondazione Ospedale Maggiore Policlinico in Milan, Italy. QOL was evaluated by means of the European Quality of Life Visual Analogue Scale (EuroQol VAS). DC attendance was quantified as number of days of attendance per week in the past month. Participants attending a DC at least once a week (n = 17) had a higher mean EuroQol VAS score than non-attendants (n = 132) (mean ± SD 58.8 ± 19 vs. 45.3 ± 22.5; P = 0.019). In multiple linear regression analysis a higher weekly attendance of DCs was related to a better quality of life according to the EuroQol VAS score (unstandardized coefficient 3.048, 95% CI 0.063-6.033, P = 0.045) after correction for age, sex, balance and gait abilities, comorbidity, pharmacotherapy, living alone, and severity of depression. Therefore, in older outpatients suffering from a depressive disorder without dementia the attendance of a DC was an independent correlate of the QOL. A randomized controlled longitudinal study will be necessary to determine whether attending a DC is really effective on the QOL in the management of late-life depression.

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“…In one study, 89% to 96% of caregivers reported that elderly care recipients had behavioral problems and problems with ADLs (Georges et al, 2008). The caregiver burden for a person with dementia has been associated with decreased psychological and physical well-being of the caregiver (Bell, Araki, & Neumann, 2001;George & Gwyther, 1986;Hooker et al, 2002;Shaw et al, 1997).…”

Section: Discussionmentioning

confidence: 99%

“…Additionally, depression has been reported to occur among 1 in 4 family caregivers (Machida & Hosaka, 2006). In particular, caring for elderly people with dementia who have behavioral problems and/or problems with activities of daily living (ADLs) is associated with a high risk of caregiver burden and depression (Georges et al, 2008;S.H. Zarit, Todd, & J.M.…”

Section: Introductionmentioning

confidence: 99%

Caregiver burden mediates between caregiver's mental health condition and elder's behavioral problems among Japanese family caregivers

Honda

Abe

Aoyagi

et al. 2013

Aging & Mental Health

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Objectives: In Japan, the prevalence of depression has been reported to occur among 1 in 4 family caregivers. The purpose of this study was to investigate the self-rated burden associated with mental health conditions among caregivers. Methods:We studied 95 caregivers aged 38-87 years in a cross-sectional study. The General Health Questionnaire (GHQ-12) score of 4 or more was defined as poor mental health. Results:The proportion of caregivers with poor mental health was 24%. Caregivers with a high GHQ-12 score had the number of caregiver burdens increased by 2.5-fold compared to those with a low GHQ-12 score (p = 0.001). The proportion of caregivers with a high GHQ-12 score was significantly higher with an increasing number of behavioral problems among care recipients (p = 0.003). A mediational model was used to identify the underlying mechanism of the relationship between the number of behavioral problems and poor mental health in caregivers. Consequently, we found that mental health conditions in caregivers were associated with both number of caregiver burdens and behavioral problems among care recipients. Conclusions:It is vital to provide support not only to the caregivers but also to their elderly relatives, paying particular attention to early identification of poor mental health in caregivers so as to administer effective interventions, and to offer useful advice concerning how to deal with behavioral problems.

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Alzheimer's disease in real life – the dementia carer's survey

Abstract: Further development of services and information provision are required to help carers in their everyday caring, including coping with problematic symptoms influencing areas such as activities of daily living and behaviour.

Cited by 152 publications

References 16 publications

Counselling for dementia caregivers—predictors for utilization and expected quality from a family caregiver’s point of view

Counselling for dementia caregivers—predictors for utilization and expected quality from a family caregiver’s point of view

Day care centre attendance and quality of life in depressed older adults living in the community

Caregiver burden mediates between caregiver's mental health condition and elder's behavioral problems among Japanese family caregivers

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