All in the Family: A Systematic Review of the Effect of Caregiver-Administered Autism Spectrum Disorder Interventions on Family Functioning and Relationships

Factor, Reina S.; Ollendick, Thomas H.; Cooper, Lee D.; Dunsmore, Julie C.; Rea, Hannah M.; Scarpa, Angela

doi:10.1007/s10567-019-00297-x

Cited by 44 publications

(29 citation statements)

References 103 publications

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“…In particular, parents' intervention programmes for families of children with ASD should focus on supporting maternal emotion-regulation strategies, and balanced family functioning and the paternal perception of the quality of their romantic relationship. It should be useful to think of specific interventions for mothers and fathers separately for supporting the specific protective factors emphasized in this study and to support the family system, as also supported by studies that have demonstrated the importance of offering intervention programmes for families of children with ASD (Factor et al, 2019).…”

Section: Discussionmentioning

confidence: 94%

What is Parental Stress Connected to in Families of Children With Autism Spectrum Disorder? Implications for Parents’ Interventions

Renzo

Guerriero

Petrillo

et al. 2021

Journal of Family Issues

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Raising a child with autism spectrum disorder (ASD) can be a very stressful experience, impacting parents and their ability to take care of their child. We examined the relationship between parenting stress and child, and parent and contextual factors in a sample of 61 families of children with ASD recruited in a centre for ASD assessment and treatment. Results showed that mothers had a higher level of stress related to their parental role when compared to fathers. Data also showed the importance of considering the specific role of parental emotion regulation, family functioning and educational level in influencing maternal stress and the specific role of couple adjustment in influencing fathers’ parental distress. This study pointed out the importance of employing a vision that embraces different domains of family life in cases of children with ASD and in parents’ intervention programmes because these factors may contribute to parental stress.

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Section: Discussionmentioning

confidence: 94%

What is Parental Stress Connected to in Families of Children With Autism Spectrum Disorder? Implications for Parents’ Interventions

Renzo

Guerriero

Petrillo

et al. 2021

Journal of Family Issues

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“…Parent-mediated interventions provide one evidencebased model of contextualized family care with improved family level outcomes such as family cohesion, empowerment, and adaptation (Factor et al, 2019). McConnell and colleagues (2013) caution providers from providing interventions that are "slotted" (p. 154) into existing routines and instead underscore the need for authentically contextualized interventions that are part of the everyday family life fabric.…”

Section: Family Member Connectionmentioning

confidence: 99%

Exploring the health of families with a child with autism

Smith

McQuade

2021

Autism

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Families provide a critical context for the overall growth and development of a child. The health of a family is foundational to the everyday life in which a child and family can flourish. For families raising a child with autism, the chronic, intense nature of everyday life threatens family health in part due to increased parental stress and potential centralization of the child with autism in family functioning. The present study sought to understand how families of children with autism perceived and experienced their own family health and to identify what factors and processes families identified as contributing to their health. Researchers conducted semi-structured interviews with 16 families with a child with autism ages 2-17. Interviews occurred in person and with all members present to the extent possible. Sixteen mothers, eight fathers, and 32 children (18 with autism) participated. Interviews were audiorecorded and transcribed verbatim. Researchers analyzed data using inductive content analyses to generate results. Findings suggest families experience family health as a journey grounded within family identity and marked by five themes: connection, balance, the centralization of autism, stress, and support systems. Findings contribute relevant considerations for service providers working to support children with autism and their families. Lay abstract Families are important for the overall growth and development of a child. The health of a family is foundational to the everyday life in which a child and family can blossom. Families with a child with autism have a family life that has challenges for many reasons including that parents can be stressed from trying to figure out how to be a good parent for their child with autism. We wanted to know two things: (1) what is family health for families of a child with autism and (2) what affects families trying to be their healthiest. We wanted to know the answers to these questions from families themselves, including parents (not just moms) and children, because they are the best experts. We talked to 16 families including 16 mothers, 8 fathers, and 32 children (18 with autism). Families shared that being a healthy family was a journey with ups and downs and that families were not always perfect. It helped when families knew about themselves as a family such as knowing what they liked and did not like to do, and knowing what the different people in the family needed. Families said that what affected their family’s health was being together, keeping their days not too busy, stress, autism itself, having helpers like friends, grandparents, therapists, and having money to pay for services. We hope that knowing these answers will guide service providers of people with autism to think about healthy families.

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“…The role of family in illness and how illness impacts the family system has been examined in recent literature. Family functioning, family integrity, and cohesion were related to health outcomes in a wide range of patient conditions including cancer (Van Schoors et al., 2017), arthritis (Knafl, Leeman, Havill, Crandell, & Sandelowski, 2015), autism (Factor et al., 2019), obesity (Halliday, Palma, Mellor, Green, & Renzaho, 2014), organ transplant (Cousino, Rea, Schumacher, Magee, & Fredericks, 2017), among others.…”

Section: Discussionmentioning

confidence: 99%

Integrative Review of Related Factors and Defining Characteristics of Lack of Family Integrity

Jarana-Díaz

Romero‐Martín

Ponce-Blandón

et al. 2020

Int J of Nursing Knowl

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PURPOSETo identify the related factors that compromise family integrity and the defining characteristics of poor family integrity.METHODSIntegrative review in databases: Pubmed, Scopus, Cinahl, PsycInfo, and Web of Science. The inclusion and exclusion criteria led to the selection of 12 articles.FINDINGSFamily conflicts, lack of communication, and detachment from family as risk factors that have a negative impact on family integrity. A decrease in the physical and psychological quality of life as defining characteristics of poor family integrity.CONCLUSIONSLack of family integrity has a significant impact on the physical, mental, and social health of its members.IMPLICATIONS FOR NURSING PRACTICEFindings will allow nurses to implement interventions for the maintenance or improvement of family integrity.

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All in the Family: A Systematic Review of the Effect of Caregiver-Administered Autism Spectrum Disorder Interventions on Family Functioning and Relationships

Cited by 44 publications

References 103 publications

What is Parental Stress Connected to in Families of Children With Autism Spectrum Disorder? Implications for Parents’ Interventions

What is Parental Stress Connected to in Families of Children With Autism Spectrum Disorder? Implications for Parents’ Interventions

Exploring the health of families with a child with autism

Integrative Review of Related Factors and Defining Characteristics of Lack of Family Integrity

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