Aligning over the child: Parenting alliance mediates the association of autism spectrum disorder atypicality with parenting stress

Hill-Chapman, Crystal R.; Herzog, Teresa K.; Maduro, Ralitsa S.

doi:10.1016/j.ridd.2013.01.004

Cited by 33 publications

(12 citation statements)

References 43 publications

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“…Our findings are in line with findings from many other studies which report high levels of caregiver stress resulting from, for example, an autism diagnosis, challenging child behaviors, stigma and marginalization, and financial burden (Bonis, ). High levels of parenting stress, specifically, have also been reported in multiple studies (Ekas & Whitman, ; Hill‐Chapman, Herzog, & Maduro, ). A study by Giovagnoli and colleagues (Giovagnoli et al., ) reported statistically significant between‐group differences for all PSI‐SF subscales and the total score among caregivers of children with ASD and TDC.…”

Section: Discussionmentioning

confidence: 70%

Weight status, diet quality, perceived stress, and functional health of caregivers of children with autism spectrum disorder

Pinto‐Martin

Thompson

et al. 2017

Specialist Pediatric Nursing

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Purpose: Caring for children with autism spectrum disorder (ASD) can be highly demanding and can put significant strain on caregivers. To date, little is known about the extent to which caregivers of children with ASD experience increased levels of stress which may adversely affect health outcomes. The purpose of this secondary analysis was to compare caregivers of children with ASD and caregivers of typically developing children (TDC) in weight status, diet quality, perceived stress related to the parenting role, and functional health and well-being. Results: ASD caregivers did not differ significantly from TDC caregivers in body mass index or overweight/obesity prevalence (p ≥ .28), even when controlling for covariates. In univariate analyses, ASD caregivers consumed significantly fewer empty calories from solid fats, alcohol, and added sugars than TDC caregivers (p = .03), but they did not differ significantly in any other dietary outcomes including nutrient adequacy (p ≥ .10) and mean total HEI scores (p = .20). ASD caregivers, when compared to TDC caregivers, reported significantly greater parenting stress for the subscales difficult child and parent-child dysfunctional interaction as well as total stress (p < .001).In addition, 56% of ASD caregivers compared with 6.7% of TDC caregivers showed clinically significant levels of stress (p < .0001); a finding which remained statistically significant when controlling for covariates. ASD and TDC caregivers did not differ significantly in any SF-36 health domains related to functional health and well-being (p ≥ .10).Practice implications: Despite higher reported levels of stress, ASD caregivers did not differ significantly from TDC caregivers in diet-and health-related outcomes. Nurses and other health professionals should use comprehensive screening tools to assess overall caregiver stress and levels of resilience.

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Section: Discussionmentioning

confidence: 70%

Weight status, diet quality, perceived stress, and functional health of caregivers of children with autism spectrum disorder

Pinto‐Martin

Thompson

et al. 2017

Specialist Pediatric Nursing

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“…The BASC-2 consists of a Structured Developmental History, an Observation System, a Parent Rating Scale (134–160 items depending on age), a Self- Report of Personality Scale, and a Teacher Rating Scale (100–139 items). It was used to measure behaviour problems in one observational study in the review [ 26 ].…”

Section: Stage 2: Assessing the Methodological Quality Of Tools For Mmentioning

confidence: 99%

Systematic Review of the Measurement Properties of Tools Used to Measure Behaviour Problems in Young Children with Autism

et al. 2015

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BackgroundBehaviour problems are common in young children with autism spectrum disorder (ASD). There are many different tools used to measure behavior problems but little is known about their validity for the population.ObjectivesTo evaluate the measurement properties of behaviour problems tools used in evaluation of intervention or observational research studies with children with ASD up to the age of six years.MethodsBehaviour measurement tools were identified as part of a larger, two stage, systematic review. First, sixteen major electronic databases, as well as grey literature and research registers were searched, and tools used listed and categorized. Second, using methodological filters, we searched for articles examining the measurement properties of the tools in use with young children with ASD in ERIC, MEDLINE, EMBASE, CINAHL, and PsycINFO. The quality of these papers was then evaluated using the COSMIN checklist.ResultsWe identified twelve tools which had been used to measure behaviour problems in young children with ASD, and fifteen studies which investigated the measurement properties of six of these tools. There was no evidence available for the remaining six tools. Two questionnaires were found to be the most robust in their measurement properties, the Child Behavior Checklist and the Home Situations Questionnaire—Pervasive Developmental Disorders version.ConclusionsWe found patchy evidence on reliability and validity, for only a few of the tools used to measure behaviour problems in young children with ASD. More systematic research is required on measurement properties of tools for use in this population, in particular to establish responsiveness to change which is essential in measurement of outcomes of intervention.PROSPERO Registration Number CRD42012002223

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“…Firth and Dryer (2013) also found that children with ASD's behavioral and emotional problems affected overall levels of parental distress, such as stress, tension, anxiety, and depression. The severity of the child's ASD symptoms are also associated with parental stress and depression, suggesting that the severity of the child's ASD symptoms is positively related to the level of parental stress (e.g., Eisenhower, Baker, & Blacher, 2005;Hastings & Johnson, 2001;Hastings et al, 2005;Hill-Chapman et al, 2013). Other aspects of ASD symptomology have also been explored, such as the severity of social impairment, which was found to predict parenting stress (Firth & Dryer, 2013).…”

Section: Spectrum Disorder and Other Developmental Disabilitiesmentioning

confidence: 99%

Associations Between Resilience and the Well-Being of Mothers of Children with Autism Spectrum Disorder and Other Developmental Disabilities

Halstead

Ekas

Hastings

et al. 2018

J Autism Dev Disord

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There is variability in the extent to which mothers are affected by the behavior problems of their children with developmental disabilities (DD). We explore whether maternal resilience functions as a protective or compensatory factor. In Studies 1 and 2, using moderated multiple regression models, we found evidence that maternal resilience functioned as a compensatory factor-having a significant independent main effect relationship with well-being outcomes in mothers of children with DD and autism spectrum disorder. However, there was no longitudinal association between resilience and maternal well-being outcomes. There was little evidence of the role of resilience as a protective factor between child behavior problems and maternal well-being in both studies.

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Aligning over the child: Parenting alliance mediates the association of autism spectrum disorder atypicality with parenting stress

Cited by 33 publications

References 43 publications

Weight status, diet quality, perceived stress, and functional health of caregivers of children with autism spectrum disorder

Weight status, diet quality, perceived stress, and functional health of caregivers of children with autism spectrum disorder

Systematic Review of the Measurement Properties of Tools Used to Measure Behaviour Problems in Young Children with Autism

Associations Between Resilience and the Well-Being of Mothers of Children with Autism Spectrum Disorder and Other Developmental Disabilities

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