Aldersdemens i parforhold

Ingebretsen, Reidun; Solem, Per Erik

doi:10.7577/nova/rapporter/2002/20

Cited by 7 publications

(11 citation statements)

References 65 publications

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“…The mental burden that comes with caring for a spouse with dementia can be associated with losing a sense of community with the partner [42], and this was confirmed by the participants in our study. Additionally, the study reveals that children also experience this kind of loss.…”

Section: Discussionsupporting

confidence: 74%

The influence of day care centres designed for people with dementia on family caregivers – a qualitative study

2017

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BackgroundDementia is one of the most challenging age-related illnesses for family caregivers, whose care-related burden is well known. Research indicates that day care centres (DCCs) can reduce the caregiver burden and help family caregivers to cope with demands; however, the current body of knowledge is still tentative and inconsistent, and more research is recommended. The aim of this study is to provide an extended understanding of the situation of family caregivers and to examine to what extent DCCs can meet their need for support and respite.MethodsThis study has a qualitative descriptive design using in-depth interviews with 17 family caregivers of people with dementia attending DCCs. The data analysis was undertaken using systematic text condensation.ResultsCaregivers experience a complex role, with added responsibilities, new tasks, and emotional and relational challenges that are expressed through distressing emotions and demands for interaction. Additionally, the caregiving role leads to positive experiences, such as acceptance and adaptation, support and help, and positive changes in the relationship. Day care relieves family caregivers by meeting the person with dementia’s needs for social community, nutrition, physical activity, and structure and variety in everyday life. Using a DCC led to a higher quality of time spent together and easier cooperation, but it also produced some hard feelings and challenging situations. DCCs gave the caregivers a feeling of freedom and increased the time available to be spent on their own needs, to be social and to work or do practical tasks undisturbed.ConclusionsDCCs for people with dementia can give family caregivers support and relief and have a positive impact on the relationship between the family caregiver and the person with dementia. A more individualized program, in addition to flexible opening hours, would make DCCs even more effective as a respite service, positively influencing the family caregiver’s motivation and ability to care and postponing the need for nursing home placement.

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Section: Discussionsupporting

confidence: 74%

The influence of day care centres designed for people with dementia on family caregivers – a qualitative study

2017

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“…The term “relationship- oriented coping” is used to describe coping in spousal relationships. 11 , 12 As sustained and robust relationships are central to the human experience, efforts should be invested in developing sensitive approaches to prevent or reduce caregiver burden. Molyneaux et al 13 advocate the need to refocus attention on the quality of relationships and interactions between spouses when one partner acts as a caregiver for the other who has dementia.…”

Section: Introductionmentioning

confidence: 99%

Meaning in family caregiving for people with dementia: a narrative study about relationships, values, and motivation, and how day care influences these factors

Tretteteig¹,

Vatne²,

Rokstad³

2017

JMDH

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BackgroundIn addition to care-related burdens, most caregivers of a person with dementia perceive a variety of positive and satisfying experiences, such as feeling needed and useful in their family caregiving role. “Meaning-focused coping” describes both positive and negative emotions in periods with high levels of stress. Day care service may have the potential to increase caregivers’ positive experiences and meaning-focused coping, and positively influence interpersonal relationships between those giving care and those receiving care. The aim of this study was to gain knowledge about family caregivers’ experiences of meaning in their caring role. Additionally, the influence of day care services on caregivers’ experiences and motivation in their caregiving role is explored.MethodsA qualitative design based on individual interviews was used. The interviews were analyzed using a narrative method and a case study approach.FindingsFamily caregivers’ roles and coping strategies were related to their relational ties. Caregivers had to make decisions about whether to enhance, maintain, or let go of emotional ties to find a good balance between meeting their own needs and the needs of the person with dementia. Family caregivers reported that day care positively influenced their “relationship-oriented coping” and experience of meaning.ConclusionFinding meaning in the role of a family caregiver for persons with dementia is closely connected to the caregivers’ own values and goals. Finding a balance between attending to their own needs and the needs of the person with dementia is crucial. Day care has the potential to increase family caregivers’ motivation to care by supporting their capacity to meet their own needs, cooperate and communicate with the person with dementia, and make competent and autonomous choices, thus increasing their feeling of mastery.

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“…Det blir viktig å ivareta et familieperspektiv på omsorgsoppgaver. Mange strekker seg lenger enn kreftene rekker og pårørende har ofte store samvittighetskvaler når foreldre flyttes til institusjon (Ingebretsen & Solem 2002, Ingebretsen 2006, EUROCARERS 2008. I Norge er det stort sett slik at både eldre selv og barna deres regner det som naturlig at eldre som trenger omfattende og langvarig pleie, får det gjennom det offentlige hjelpeapparat.…”

Section: Ivaretakelse Av Pårørende Og Pårørende Som Samarbeidspartnereunclassified

Omsorg for eldre innvandrere

Ingebretsen¹

2010

NOVA Rapport

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Aldersdemens i parforhold

Cited by 7 publications

References 65 publications

The influence of day care centres designed for people with dementia on family caregivers – a qualitative study

The influence of day care centres designed for people with dementia on family caregivers – a qualitative study

Meaning in family caregiving for people with dementia: a narrative study about relationships, values, and motivation, and how day care influences these factors

Omsorg for eldre innvandrere

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