Albinism and Social Marginalization

Clarke, S.; Beale, Jon

doi:10.1016/b978-0-12-813316-3.00012-x

Cited by 15 publications

(16 citation statements)

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“…Before this project, no public program was available apart from sporadic activities organized by ANAT. This mobile strategy program is similar to the one conducted by the NGO Standing Voice in Tanzania 7 and includes a systematic dermatological examination and therapeutic management during each round. It is different from the Brazilian program, 8 which operates on a fixed strategy, as does the day hospital in Bordeaux 16 .…”

Section: Discussionmentioning

confidence: 99%

“…It is different from the Brazilian program, 8 which operates on a fixed strategy, as does the day hospital in Bordeaux 16 . In all cases, patients are examined, treated if necessary, and educated about sun protection and attention to suspicious skin lesions, in order to facilitate early intervention before progression to neoplastic stage 7,8,16 . The mobile strategy has the advantage of bringing PWA closer to health professionals and allowing earlier care of patients who are often poor because of social exclusion.…”

Section: Discussionmentioning

confidence: 99%

“…Oculocutaneous albinism is associated with difficulties and disadvantages resulting from genetic disruption and social marginalization 7 . In particular, the disorder is stigmatizing and affects patients and their families.…”

Section: Introductionmentioning

confidence: 99%

“…Because of their extreme sensitivity to UV radiation, PWA require both total sun protection and regular skin examinations 8 . Several initiatives to sensitize and treat PWA have been reported in Africa 3,7–9,11–13 . These initiatives aim to raise awareness of albinism, sun‐related risks, skin cancer, and other preventive behaviors recommended for PWA.…”

Section: Introductionmentioning

confidence: 99%

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Dermatological and epidemiological profile of patients with albinism in Togo in 2019: results of two consultation campaigns

et al. 2020

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Background People with albinism (PWA) are targets of prejudice and social exclusion and have limited access to specialized medical care and resources. Our study aimed to describe the epidemiological and dermatological profile of PWA in Togo. Method We carried out a cross‐sectional study of 294 medical records of PWA systematically examined during two mobile skin care clinics in 2019. Results The mean age of the patients was 22 ± 16.5 years, and the gender ratio (M/F) was 1. A family history of albinism was reported in 27.9% of cases, and consanguinity between the parents was found in 24.1% of PWA. Dermatological lesions on physical examination were present in 95.2% of PWA. These lesions were elastosis/wrinkles (82.9%), ephelides (79.6%), actinic keratoses (60.0%), actinic cheilitis (50.0%), and cutaneous carcinomas (11.8%). The mean age of PWA with skin carcinomas was 38.6 years. Fifty‐four cases of cutaneous carcinomas had been diagnosed (31 cases of basal cell carcinoma, 21 cases of squamous cell carcinoma, and 2 cases of Bowen's disease) and were located mainly in the cephalic region (61.1%) and upper limbs (27.8%). Cryotherapy and/or excisional biopsies were the treatments for premalignant and malignant lesions. All PWA were sensitized on sun protection. Conclusions This study shows the basic picture of dermatological characteristics of PWA with a high frequency of photo‐induced lesions and skin cancers. The popularization and respect of photoprotection measures and regular skin examination of these PWA for early detection and management of lesions will reduce their morbidity and mortality.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Dermatological and epidemiological profile of patients with albinism in Togo in 2019: results of two consultation campaigns

et al. 2020

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“…Despite the progressive development of protection provided by (national and international) human rights law, Africans with albinism (albinistic Africans or albinos) have, in recent times, been exposed to abduction and gruesome murders for their body parts (Clarke and Beale, 2018;Dapi et al, 2018). This atrocity has triggered fear among the region's albino community and has, therefore, forced many to flee from their homes in search of safety and security from their hunters (Manqele, 2016).…”

Section: Introductionmentioning

confidence: 99%

The Hunted: UDHR and Africans with Albinism

Nkrumah

2018

International Migration

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Across Africa, persons with albinism continue to be the main casualties of occult killings, yet very little intervention is provided by states to safeguard them from their persecutors. The year 2018 commemorates the 70th anniversary of the Universal Declaration of Human Rights (UDHR), which entreats governments to protect their citizens from such brutalities. Whereas the Declaration has inspired the adoption of many (international and regional) human rights treaties, all declaring protection for the rights of persons with albinism, it is evident that this group is yet to reap the fruit of the human rights revolution triggered by the UDHR over the last seven decades. The article argues that, although African governments remain the primary custodians of Africans with albinism, the burden of violence often visited on this group constitutes “persecution” under the UDHR and therefore the international community has a role to play in safeguarding this group.

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Albinism and Gender-Based Violence in Women’s Writing from Southern Africa: Meg Vandermerwe’s Zebra Crossing (2013) and Petina Gappah’s The Book of Memory (2015)

Baker

2023

Representing Gender-Based Violence

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Albinism and Social Marginalization

Cited by 15 publications

References 1 publication

Dermatological and epidemiological profile of patients with albinism in Togo in 2019: results of two consultation campaigns

Dermatological and epidemiological profile of patients with albinism in Togo in 2019: results of two consultation campaigns

The Hunted: UDHR and Africans with Albinism

Albinism and Gender-Based Violence in Women’s Writing from Southern Africa: Meg Vandermerwe’s Zebra Crossing (2013) and Petina Gappah’s The Book of Memory (2015)

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