2021
DOI: 10.1007/s00146-021-01262-5
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AI, big data, and the future of consent

Abstract: In this paper, we discuss several problems with current Big data practices which, we claim, seriously erode the role of informed consent as it pertains to the use of personal information. To illustrate these problems, we consider how the notion of informed consent has been understood and operationalised in the ethical regulation of biomedical research (and medical practices, more broadly) and compare this with current Big data practices. We do so by first discussing three types of problems that can impede info… Show more

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Cited by 43 publications
(39 citation statements)
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“…Of course, such an approach is not devoid of implementation challenges. More generally, nonetheless, the development of informed consent with respect to big data use is highly debated and other proposals are indeed discussed (see Andreotta et al, 2021).…”
Section: Data Protection and Privacymentioning
confidence: 99%
“…Of course, such an approach is not devoid of implementation challenges. More generally, nonetheless, the development of informed consent with respect to big data use is highly debated and other proposals are indeed discussed (see Andreotta et al, 2021).…”
Section: Data Protection and Privacymentioning
confidence: 99%
“…This is particularly concerning in the face of complex processes of data aggregation done by data brokers. 22 Children may disclose discrete pieces of information believing them to be less revealing than what they actually are. They may moreover be more focused on active disclosure and not take account of the data exhaust or traces left by their online activities.…”
Section: Children's and Teens' Capacities To Understand Surveillance ...mentioning
confidence: 99%
“…The contemporary debate surrounding AI is dominated by the analysis of risks and human rights impacts of algorithmic systems (such as the violation of privacy, problems of discrimination or lack of transparency) (Council of Europe, 2020;European Commission, 2019). The literature on the risks inherent to biases and the implications of AI for individual consent is growing alongside awareness of the complexity of the challenges posed by the technology for protection of individual rights (Andreotta et al, 2021). In this paper, we take a complementary approach.…”
Section: Introductionmentioning
confidence: 99%