Agreement Between Parent Proxy Report and Child Self-Report of Pain Intensity and Health-Related Quality of Life After Surgery

Lifland, Brooke; Mangione-Smith, Rita; Palermo, Tonya M.; Rabbitts, Jennifer A.

doi:10.1016/j.acap.2017.12.001

Cited by 44 publications

(41 citation statements)

References 26 publications

(38 reference statements)

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“…For other aspects of mental health, parent-child agreement was shown to be low, e.g., for psychosocial functioning [28], (psycho)somatic symptoms [21,29] and anxiety [30][31][32]. For quality of life, results have been mixed [33][34][35][36], suggesting that agreement might differ depending on contextual factors, e.g., the child's health status.…”

Section: Introductionmentioning

confidence: 99%

Parent-child agreement in different domains of child behavior and health

et al. 2020

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The present study aimed to investigate and compare parent-child agreement in different domains of child health and behavior. Methods Data were collected between 2011 and 2019 within the framework of the LIFE Child study (Germany). Different subgroups of 10-to 12-year-old children and their parents (n (max) = 692) completed questionnaires on several health behaviors (diet, media use, physical activity, sleep), parameters of health (behavioral strengths and difficulties, psychosomatic complaints), and school grades. Agreement between child and parent reports was evaluated using weighted kappa coefficients. Furthermore, the frequencies of different types of (dis) agreement (parent report > child report, same response, child report > parent report) were assessed and checked for associations with child or parent gender.

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Section: Introductionmentioning

confidence: 99%

Parent-child agreement in different domains of child behavior and health

et al. 2020

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“…Thus, in this context, the parent report can be seen as a valid proxy for child self-reported pain intensity and HRQOL after having undergone pediatric surgery and after discharge. 42 Apart from possible differences in HRQOL assessment between children and their parents, health providers need to be aware of differences in the perception of HRQOL from different family members. Some studies reported that mothers focused more on problems or symptoms than fathers, while others reported no differences.…”

Section: Challenges In Health-related Quality Of Life Assessment In Tmentioning

confidence: 99%

Health-Related Quality of Life Assessment in Children and their Families: Aspects of Importance to the Pediatric Surgeon

et al. 2020

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With the growing amount of chronic and rare diseases in childhood that often require lifelong treatment, improvement of health-related quality of life is a major goal in therapy. Therefore, the assessment of health-related quality of life from the patient's perspective as a relevant outcome parameter in clinical practice gained increased recognition. Health-related quality of life measures are still rarely applied in the pediatric practice context, although progress has been made in the development of instruments that are now ready for implementation. Inclusion of measures in research and practice is needed to accumulate and critically appraise knowledge about health-related quality of life to broaden the understanding of the child's health status, impacting on the whole family. From the perspective of a pediatric surgeon, knowledge about health-related quality of life of the children and their parents is important since it might influence treatment decisions and facilitates patient-physician communication. This article will review the concept of health-related quality of life, its methodological challenges and the application, and the challenges of health-related quality of life instruments in pediatric practice and health services research.

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“…Os autores concluíram que as perceções dos pais e dos enfermeiros sobre a dor dos seus filhos só devem ser consideradas como estimativas da dor experienciada pelas crianças, pois não estão associadas à dor referida pelas crianças. Os outros quatro estudos analisados utilizaram metodologias distintas, mas todos indicaram que a intensidade da dor vivenciada pelas crianças é superior à relatada pelos pais e enfermeiros (Brudvik et al, 2017;Lifland et al, 2017;Kamper et al, 2016;Khin Hla et al, 2014;Rajasagaram, Taylor, Braitberg, Pearsell, & Capp, 2009). Em síntese, apesar da escassez dos estudos, verifica-se uma heterogeneidade nas correlações da avaliação da intensidade da dor entre crianças, pais e enfermeiros.…”

Section: Enquadramentounclassified

“…A tomada de decisão para o eficaz controlo da dor deve ser coerente com a avaliação percecionada pela criança. Os poucos estudos que analisaram a problemática da correlação entre o autorrelato da dor e a avaliação feita por pais e enfermeiros apresentam resultados díspares, mas com tendência consistente da dor relatada pela criança ser normalmente superior à avaliada pelos pais e enfermeiros (Brudvik, Moutte, Baste, & Morken, 2017;Kamper, Dissing, & Hestbaek, 2016;Lifland, Mangione-Smith, Palermo, & Rabbitts, 2017;Zhou, Roberts, & Horgan, 2008). Clarificar a correlação que existe entre o autorrelato da intensidade da dor feita pela criança e a avaliação feita pelos seus pais e enfermeiros permite que na prática dos cuidados se tomem decisões válidas no diagnóstico da situação e se implementem estratégias que propiciem um controlo da dor eficaz.…”

Section: Introductionunclassified

Self-report of pain intensity: correlation between children, parents, and nurses

Batalha

Sousa

2018

Rev. Enf. Ref.

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]. Contribuição no artigo: pesquisa bibliográfica, colheita de dados, análise e discussão dos resultados, e redação do manuscrito. Recebido para publicação em: 17.01.18 Aceite para publicação em: 28.03.18 ARTIGO DE INVESTIGAÇÃO (ORIGINAL) RESEARCH PAPER (ORIGINAL) Resumo Enquadramento: Em pediatria são frequentes as situações clínicas em que existe impossibilidade de autoavaliação da dor e incerteza quanto à correlação existente entre a avaliação feita por pais e enfermeiros e o autorrelato da criança. Objetivo: Avaliar o grau de correlação da avaliação da intensidade da dor entre crianças, pais e enfermeiros. Metodologia: Estudo descritivo correlacional, transversal, realizado em duas unidades de saúde com a participação de 64 crianças (5-17 anos), seus pais e enfermeiros cuidadores. Na avaliação da intensidade da dor foram utilizadas a Escala Visual Analógica e a escala Face, Legs, Activity, Cry, Consolability (FLACC). Resultados: Quando pais e enfermeiros avaliaram a dor com a escala FLACC, a correlação com o autorrelato revelou-se moderada entre crianças e pais (r s = 0,51; p < 0,01) e entre crianças e enfermeiros (r s = 0,55; p < 0,01). Conclusão: A autoavaliação da intensidade da dor das crianças apresenta moderadas correlações com a avaliação feita por pais e enfermeiros.

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Agreement Between Parent Proxy Report and Child Self-Report of Pain Intensity and Health-Related Quality of Life After Surgery

Cited by 44 publications

References 26 publications

Parent-child agreement in different domains of child behavior and health

Parent-child agreement in different domains of child behavior and health

Health-Related Quality of Life Assessment in Children and their Families: Aspects of Importance to the Pediatric Surgeon

Self-report of pain intensity: correlation between children, parents, and nurses

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