Aging Parents as Caregivers of Mentally Ill Adult Children: An Emerging Social Problem

Lefley, Harriet P.

doi:10.1176/ps.38.10.1063

Cited by 138 publications

(133 citation statements)

References 31 publications

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“…Hospitals, community agencies, and clinicians require reimbursement for extensive services to patients, who are often indigent (Gronfein 1985). Relatives desire financial security for their loved ones, health insurance from Medicaid and Medicare, and a lessening of the potentially ruinous financial burden of a long-term psychiatric disorder (Lefley 1987;Hatfield and Lefley 1987;Carpentier et al 1992). Individuals with severe and persistent mental illness may seek needed relief from repeated failures at employment, may lack family resources, and may feel entitled to public financial assistance.…”

Section: Sarahmentioning

confidence: 99%

Pathways to Disability Income among Persons with Severe, Persistent Psychiatric Disorders

et al. 1997

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Persons with psychiatric disorders comprise the largest diagnostic group of disabled recipients of Supplemental Security Income (SSI) and Social Security Disability Income (SSDI). A 32‐month prospective cohort study of pathways to application for and receipt of SSI and SSDI was conducted among 169 people with major psychiatric disorders who were at an early stage of their illness and who had never applied for or received disability income. Of the three pathways that formed the conceptual basis for the investigation—labeling, impairment, and needs/resources—the latter two emerged as significantly associated with receipt. Individuals with more severe symptoms who were African American, and who were psychologically dependent in a primary relationship and financially dependent on their families, were more likely to become recipients. Enabling and disabling aspects of disability income receipt suggest that it may be replacing prolonged hospitalization as the most enduring social role of persons with severe, persistent psychiatric disorders.

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Section: Sarahmentioning

confidence: 99%

Pathways to Disability Income among Persons with Severe, Persistent Psychiatric Disorders

et al. 1997

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“…Without parental caregivers, the mentally ill who tended to rely on their parents may find themselves homeless, turning to additional family members for assistance, or needing more community services. Adult well siblings may be called upon to become caregivers for ill siblings when parents die or become disabled 28,29 . Numerous studies have reported adult siblings' concerns about the struggle of maintaining their own personal lives while simultaneously remaining involved with their ill family member 30 .…”

Section: Introductionmentioning

confidence: 99%

“…There is increasing concern about what happens to the quality of life of people with psychiatric disability as their parents become unavailable to provide support and caregiving due to a lack of personal resources, disability, or death. A generation of parental caregivers for people with severe psychiatric disability will themselves become too old or disabled to be caretakers in the near future 28 . Without parental caregivers, the mentally ill who tended to rely on their parents may find themselves homeless, turning to additional family members for assistance, or needing more community services.…”

mentioning

confidence: 99%

Psychoeducation for Psychotic Patients

Praško¹,

Vrbová²,

Látalová³

et al. 2011

Biomed Pap Med Fac Univ Palacky Olomouc Czech Repub

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Background. Psychoeducation programs have been shown in the last two decades to significantly improve the post-hospital discharge care of individuals with schizophrenia by demonstrated effects on rehospitalization rates, compliance with medication and knowledge. The benefits of psychoeducation can be sustained for up to seven years although most studies have not shown such enduring benefit. Psychoeducation is a type of psychotherapeutic support that aims to provide broad and adequate information on psychotic disorders for both patients and their families.Method. The purpose of the group psychoeducational program at the Psychiatric clinic in Olomouc is to familiarize patients with the core of the disorder, explain the part played by pharmacotherapy, teach recognition of the warning signs of relapse, to advise on communication problems within families, and finally the training of social skills.Results. Patients perceive the program as meaningful and helpful in better understanding their lives. INTRODUCTIONSchizophrenia is a chronic psychiatric illness affecting 1% to 2% of the population. Unfortunately, suboptimal follow-through with treatment too often leads to a classic revolving-door pattern of relapse and rehospitalization. While the core intervention in schizophrenia remains antipsychotic medication; the limitations of medication alone in symptomatic, relapse prevention, and satisfaction/quality of life terms have long prompted interest in wider forms of management. This aside, in the CATIE study 1 , a naturalistic randomized-controlled trial comparing five antipsychotic compounds, 74% of all patients discontinued their original medication before the end of the 18 months of the first phase of the trial.One inherent deficit in schizophrenicia is an inability to engage appropriately in social and occupational activities. The debilitating effect of this is often a lasting feature of the illness, despite adequate psychopharmacological intervention, often isolating them and making it difficult for them to advocate appropriate social support or community services. Further, studies have found that there is a correlation between poor social functioning and relapse. One of the challenges of this area, is also wide interindividual variability although standardized measures have been developed to rate the social deficits. These assessments have become important tools in the determination of effective non-pharmacological treatment strategies. In addition to long-term pharmacotherapy, quality education is considered an additional important form of assistanc.Family caregivers report high levels of burden related to caring for their mentally ill family members 2 . They may not have the knowledge and skills necessary to take on the caring responsibilities. As a result, patient relapse and readmission are common 3 .Although no evidence of a definitive cause of schizophrenia is yet available, it can be reasonably controlled though the use of pharmacotherapy and psychosocial interventions. Relapse rates (measured by number of h...

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“…Les caractéristiques de ces aidants et de leur proche ne sont pas nécessairement représentatives de l'ensemble des aidants du Québec. En effet, les études menées auprès des aidants familiaux membres de groupes d'entraide indi quent que ces derniers sont plus fréquem -ment des femmes, dont le proche est plus souvent un jeune homme souffrant de troubles psycho tiques, et dont les troubles psy chiatriques sont identifiés depuis quatre années, en moyenne (Rousseau, 1998 ;Lefley, 1987). Les résultats reflètent donc principale ment la situa tion des aidants familiaux dont les proches souffrent de troubles psychotiques.…”

Section: Discussionunclassified

Le point de vue des aidants familiaux sur les services en santé mentale offerts à leurs proches

Perreault¹,

Provencher²,

St-Onge³

et al. 2007

smq

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Résumé La présente étude a été menée auprès de 40 aidants familiaux membres d'associations de soutien aux familles et amis de personnes souffrant de maladie mentale. Ces aidants ont été rencontrés individuellement afin de documenter leur opinion sur les services en santé mentale offerts à leur proche. L'analyse de leurs commentaires témoigne à la fois de l'expression de satisfaction et d'insatisfaction au sujet de l'organisation des services par la quasi-totalité des participants. Toutefois, la question de l'organisation des services, plus spécifiquement en rapport avec leur accessibilité, entraîne le plus grand nombre de commentaires d'insatisfaction.

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Aging Parents as Caregivers of Mentally Ill Adult Children: An Emerging Social Problem

Cited by 138 publications

References 31 publications

Pathways to Disability Income among Persons with Severe, Persistent Psychiatric Disorders

Pathways to Disability Income among Persons with Severe, Persistent Psychiatric Disorders

Psychoeducation for Psychotic Patients

Le point de vue des aidants familiaux sur les services en santé mentale offerts à leurs proches

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