Ageism in healthcare technology: the older patients’ aspirations for improved online accessibility

Zoorob, Dani; Hasbini, Yasmin; Chen, Katherine; Wangia-Anderson, Victoria; Moussa, Hind N.; Miller, Brian J.; Brobst, Debi

doi:10.1093/jamiaopen/ooac061

Cited by 9 publications

(4 citation statements)

References 23 publications

(34 reference statements)

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“…Врачи и медицинский персонал склонны воздерживаться от обсуждения доступных медицинских технологий с пожилыми пациентами из-за представления об их незаинтересованности. Переживание такой формы эйджизма приводит к снижению использования возможностей интернета и цифровых платформ (Home Health) в здравоохранении, что уменьшает доступность первичной медико-санитарной помощи для пожилых [10,11].…”

Section: Discussionunclassified

Study of the problems of ageism and assessment of attitudes towards age in the medical environment

Grigorovich

Vychugzhanina

Limonova

et al. 2023

Russian Family Doctor

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BACKGROUND: Ageism pervades all areas of life, including the areas of medical and social care. Gerontological ageism has a significant negative impact on indicators of physical, mental health, functional status and well-being of older people. In the conditions of an aging society, the study of the scale and characteristics of this problem in various spheres of life is very relevant. AIM: To assess the prevalence of stereotypes of attitudes towards older age among primary health care physicians, senior students of a medical university and directly elderly people. MATERIALS AND METHODS: In the period from 2018 to 2022, 538 people aged 20 to 75 were interviewed in 3 subgroups: 1) senior students of a medical university of medical specialties, 2) young and middle-aged primary health care doctors, 3) elderly people. RESULTS: It was revealed that the opinions about the problems in this age period in the elderly and the beliefs of doctors and medical students often do not coincide. CONCLUSIONS: When training medical personnel, it is necessary to form the correct attitude to age and skills of communicative competence with different age groups of patients.

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Section: Discussionunclassified

Study of the problems of ageism and assessment of attitudes towards age in the medical environment

Grigorovich

Vychugzhanina

Limonova

et al. 2023

Russian Family Doctor

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“…Among the general concerns expressed by older adults are fear of reducing the complexity of human experience with machine learning and artificial intelligence [50], fear of misinformation [51], fear of stigma [52,53], fear of surveillance [54,55], fear of losing control over their lives [56], and general technostress [39,[57][58][59][60]. Of course, these concerns are not specific to older adults, and research suggests that there is a significant pushback against the notion of assumption that older adults are either unwilling or incapable of technology adoption [39,40,61,62].…”

Section: Challenge Of Age As a Recruitment Criterion In Health Techno...mentioning

confidence: 99%

Double-Bind of Recruitment of Older Adults Into Studies of Successful Aging via Assistive Information and Communication Technologies: Mapping Review

Khalili-Mahani¹,

Sawchuk²

2022

JMIR Aging

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Background Two fields of research and development targeting the needs of the aging population of the world are flourishing, successful aging and assistive information and communication technologies (A-ICTs). The risks of ageist stereotypes emerging from how we communicate in both discourses are long known. This raises questions about whether using specific age criteria in the context of “aging deficits” can bias participation in, or compliance with, the research process by older adults who try to avoid age-related stigma. Objective This study aimed to examine subject recruitment, study designs (based on age >65 years criteria), as well as discourses in research objectives and conclusions in health research on affordances of A-ICTs for older adults. Methods A systematic mapping approach was used to characterize rationales, methods, stated objectives, and expected outcomes of studies indexed in PubMed and retrieved through the search logic ([“Older Adults” OR Seniors OR Elderly] AND [ICT OR gerontechnology OR “Assistive Technology”)] AND (“Healthy Aging” OR “Successful Aging” OR “healthy ageing” OR “successful ageing”). Inclusion criteria were as follows: the study should have recruited older participants (aged >65 years), been qualitative or quantitative research, and involved the introduction of at least one A-ICT for health-related improvements. Exclusion criteria were as follows: reviews, viewpoints, surveys, or studies that used information and communication technology for data collection instead of lifestyle interventions. Content, thematic, and discourse analyses were used to map the study characteristics and synthesize results with respect to the research question. Results Of 180 studies that passed the search logic, 31 (17.2%) satisfied the inclusion criteria (6 randomized controlled trials, 4 purely quantitative studies, 9 focus groups, 2 observational studies, and 10 mixed methods studies). In all but one case, recruitment was pragmatic and nonrandom. Thematic analysis of rationales revealed a high likelihood of emphasis on the burdens of aging, such as rising costs of care (12/31, 39%) and age-related deficits (14/31, 45%). The objectives of the research fell under 4 categories: promotion of physical activity, acceptance and feasibility of robots and remote health monitoring systems, risk detection, and the future of A-ICTs in health care for older adults. Qualitative studies were more attentive to the nonageist research guidelines. Heterogeneity in the study results (both qualitative and quantitative) was not related to age but to individual agency, acceptance, and adherence. A combination of research strategies (participatory, longitudinal, playful, flexible, and need-based designs) proved successful in characterizing variations in study outcomes. Studies that documented recruitment dynamics revealed that fear of stigma was a factor that biased participants’ engagement. Conclusions This review indicates that age is not an informative criterion for recruitment and retention of participants. Charting the dynamics of adoption of, and interaction with, A-ICTs is critical for advancing research and technology development.

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“…Age-aligned software to allow older patients to access the portal is needed. 28 Access to technology must be provided to those without. 29,30 Providing all patients the ability to have their voice heard, we need to-as stated in the AMIA Code of Ethics -"[e]ngage with patients, guardians, and their authorized representatives so as to support inclusion, promote equity, advance accessibility, and avoid bias and discrimination."…”

Section: Introductionmentioning

confidence: 99%

The Voice of the Patient and the Electronic Health Record

2023

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The patient's voice, which we define as the words the patient uses found in notes and messages and other sources, and their preferences for care and its outcomes, is too small a part of the electronic health record (EHR). To address this shortcoming will require innovation, research, funding, perhaps architectural changes to commercial EHRs, and that we address barriers that have resulted in this state, including clinician burden and financial drivers for care. Advantages to greater patient voice may accrue to many groups of EHR users and to patients themselves. For clinicians, the patient's voice, including symptoms, is invaluable in identifying new serious illness that cannot be detected by screening tests, and as an aid to accurate diagnosis. Informaticians benefit from greater patient voice in the EHR because it provides clues not found elsewhere that aid diagnostic decision support, predictive analytics, and machine learning. Patients benefit when their treatment priorities and care outcomes considered in treatment decisions. What patient voice there is in the EHR today can be found in locations not usually used by researchers. Increasing the patient voice needs be accomplished in equitable ways available to people with less access to technology and whose primary language is not well supported by EHR tools and portals. Use of direct quotations, while carrying potential for harm, permits the voice to be recorded unfiltered. If you are a researcher or innovator, collaborate with patient groups and clinicians to create new ways to capture the patient voice, and to leverage it for good.

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Ageism in healthcare technology: the older patients’ aspirations for improved online accessibility

Cited by 9 publications

References 23 publications

Study of the problems of ageism and assessment of attitudes towards age in the medical environment

Study of the problems of ageism and assessment of attitudes towards age in the medical environment

Double-Bind of Recruitment of Older Adults Into Studies of Successful Aging via Assistive Information and Communication Technologies: Mapping Review

The Voice of the Patient and the Electronic Health Record

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