Ageing in people with intellectual disability as it is understood by group home staff

Kåhlin, Ida; Kjellberg, Anette; Hagberg, Jan-Erik

doi:10.3109/13668250.2015.1094038

Cited by 48 publications

(21 citation statements)

References 30 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Cognitive changes can remain undetected until there is a crucial time when it becomes evident that the person requires more support or a different form of support. Kåhlin [ 28 ] found that staff at a group home regarded the ageing of persons with ID as being mainly a bodily and medical process. In our own study the psychosocial aspects of ageing did not emerge very clearly.…”

Section: Discussionmentioning

confidence: 99%

Healthy Ageing in People with Intellectual Disabilities from Managers’ Perspective: A Qualitative Study

et al. 2017

View full text Add to dashboard Cite

An increasing number of people with intellectual disability (ID) are reaching older ages today although they experience more health problems than the older population without ID. Leaders in intellectual disability services can greatly influence the conditions for a healthy ageing, and the aim of the present study was to explore healthy ageing in this group from the perspective of the leaders. Interviews with 20 leaders were subjected to qualitative content analysis. The findings gave rise to the overall theme ageing in dependence, which emerged from the following six categories: Supporting self-determination; Inaccessible activities after retirement; Signs of decline; Increased and specific needs for support and care; A non-question of gender; Aspects concerning the end of life and death. A prerequisite for healthy ageing in the case of people with ID is, according to the leaders, that they can live the life according to their preferences and make independent choices whilst at the same time receiving adequate support. With the shrinking of their social network after retirement, they become increasingly dependent on staff and leaders in the group home, who need to know what healthy ageing implies.

show abstract

Section: Discussionmentioning

confidence: 99%

Healthy Ageing in People with Intellectual Disabilities from Managers’ Perspective: A Qualitative Study

et al. 2017

View full text Add to dashboard Cite

show abstract

“…Our research did not directly address the issue of the hostel staff's knowledge and readiness for the ageing of their residents. Findings presented by Kåhlin et al (2016) indicated that group home staff members described the process of ageing among people with ID in a manner that appeared to be rooted in the medical paradigm of disability. However, the staff did suggest the need to raise issues related to ageing and ID in national disability policy documents.…”

Section: Discussionmentioning

confidence: 99%

“…over 40 years of age) conducted in Israel between 2004 and 2007 (Ben-Noon et al , 2008) suggested that increased need of close medical attention is the reason that, as they age, people with DS – more than any other population with ID – move into residential care centres. As Kåhlin et al (2016: 8) noted, ‘Ageing with a lifelong disability is a complex phenomenon that has been neglected both [ sic ] within disability and ageing studies’. Given that people with DS are considered to be part of the population with ID, and both conditions constitute ‘a lifelong disability’, pre-existing studies pertaining to both population groups are reviewed herein.…”

Section: Introductionmentioning

confidence: 99%

‘I will never be old’: adults with Down syndrome and their parents talk about ageing-related challenges

2019

View full text Add to dashboard Cite

AbstractThe life expectancy of people with Down syndrome (DS) has increased significantly over the last few decades. Consequently, they and their families face new ageing-related challenges, the first signs of which appear in people with DS around the age of 30. The goal of this study was to explore the perceptions of adults with DS regarding their own and their parents’ ageing and end of life, and to examine the views and concerns of the parents regarding the ageing of their children with DS. The unique approach used in our study was to convene not only the ageing people with DS but also their parents, to discuss the subject together. A total of 33 people with DS participated in the study. Most of them were interviewed with one or two parents. Participants with DS found it difficult to talk about their own old age and addressed the issue mainly through the decline in the functioning of an older person they knew. The parents emphasised the changes needed in terms of the official regulations, so as to ensure that their children with DS age with dignity and quality of life. Our study identifies the increasingly pressing need to prepare adults with DS for their own and their parents’ ageing and end of life in a timely manner.

show abstract

Section: Introductionmentioning

confidence: 99%

“…As Kåhlin et al (2016b) have pointed out, there is limited understanding of how staff address matters of ageing and older age in the care and service of people with ID. Their study of group home staff showed how the main response concerning these issues was silence; ageing with ID was rarely articulated or discussed according to the staff ( Kåhlin et al, 2016b ). Another study, a systematic review of care for older people with ID, reported that the staff lacked knowledge and methods and needed training and support related to questions of ageing ( Innes et al, 2012 ).…”

Section: Introductionmentioning

confidence: 99%

Ambivalence among staff regarding ageing with intellectual disabilities: Experiences and reflections

Alftberg

Johansson

Ahlström

2019

J Intellect Disabil

View full text Add to dashboard Cite

This study explores the experiences and reflections of staff in intellectual disability (ID) services concerning ageing with ID. Qualitative interviews were conducted with 24 staff members in group homes and daily activity centres. The findings showed that the staff were uncertain about the signs of ageing in people with intellectual disabilities; they compared the life conditions of these people with conditions in older people without intellectual disabilities. Their emphasis on an active lifestyle was very strong. The staff members also mentioned uncertainty about how to facilitate assistive devices and whether ‘ageing in place’ was the best solution. The overall theme was manifested as ambivalence where notions of older people with intellectual disabilities seemed incompatible with notions of old age in general and could be explained by the theoretical concept of age coding. The findings of this study indicate the need to provide education about ageing to staff working in ID services.

show abstract

Ageing in people with intellectual disability as it is understood by group home staff

Cited by 48 publications

References 30 publications

Healthy Ageing in People with Intellectual Disabilities from Managers’ Perspective: A Qualitative Study

Healthy Ageing in People with Intellectual Disabilities from Managers’ Perspective: A Qualitative Study

‘I will never be old’: adults with Down syndrome and their parents talk about ageing-related challenges

Ambivalence among staff regarding ageing with intellectual disabilities: Experiences and reflections

Contact Info

Product

Resources

About