Against all odds: Revitalization of local self-help alternatives by longterm mental health consumers

McCoy, Marion L.; Aronoff, Marilyn

doi:10.1007/bf02393336

Cited by 8 publications

(8 citation statements)

References 8 publications

(13 reference statements)

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“…() argue that some traditional structures are necessary for consumer‐led organizations to interact with other systems and organizations, but that it is important not to lose the qualities and perspectives that consumer leadership provides. Similarly, one study specifically explored how consumer leadership has offered alternative structures to traditional medical models (McCoy & Aronoff ). This was a case study of a service that explicitly set out to critique conventional mental health care.…”

Section: Resultsmentioning

confidence: 99%

“…Two studies found that leadership was able to bring about changes in individual consumers’ sense of self in relation to mental health service consumption. McCoy and Aronoff () found that participants in a case study at a consumer‐run alternative mental health service began to see themselves less as patients and more as consumer advocates through their leadership experience. The mechanism through which this identity shift occurs might be related to ways in which leadership allows consumers to reconstruct their mental health narratives.…”

Section: Resultsmentioning

confidence: 99%

“…In terms of organizational structure, this review suggests that organizations with consumer leaders still need hierarchy, but emphasizes the importance of not losing the strength of consumer leadership or the visibility of consumer perspectives. The studies that focussed on how consumer leadership interacts with traditional health service provision models and structures all suggest that some balance is needed between the ideologies and values of consumer leadership, and the systems and structures provided by traditional health service delivery (Felton ; McCoy & Aronoff ; McLean ; Salem et al . ).…”

Section: Discussionmentioning

confidence: 99%

See 2 more Smart Citations

Consumers in mental health service leadership: A systematic review

Scholz

Gordon

Happell

2016

Int J Mental Health Nurs

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Contemporary mental health policies call for greater involvement of mental health service consumers in all aspects and at all levels of service planning, delivery, and evaluation. The extent to which consumers are part of the decision‐making function of mental health organizations varies. This systematic review synthesizes empirical and review studies published in peer‐reviewed academic journals relating to consumers in leadership roles within mental health organizations. The Cochrane Library, Medline, and PsycINFO were searched for articles specifically analysing and discussing consumers’ mental health service leadership. Each article was critically appraised against the inclusion criteria, with 36 articles included in the final review. The findings of the review highlight current understandings of organizational resources and structures in consumer‐led organizations, determinants of leadership involvement, and how consumer leadership interacts with traditional mental health service provision. It appears that organizations might still be negotiating the balance between consumer leadership and traditional structures and systems. The majority of included studies represent research about consumer‐run organizations, with consumer leadership in mainstream mental health organizations being less represented in the literature. Advocates of consumer leadership should focus more on emphasizing how such leadership itself can be a valuable resource for organizations and how this can be better articulated. This review highlights the current gaps in understandings of consumer leadership in mental health, including a need for more research exploring the benefits of consumer leadership for other consumers of services.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Consumers in mental health service leadership: A systematic review

Scholz

Gordon

Happell

2016

Int J Mental Health Nurs

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“…Qualitative research on the impact of participation in the mental health consumer movement (i.e., organizations run by and for persons diagnosed with mental illness, that provide advocacy and self-help services) has also supported that participation in these organizations can facilitate recovery by encouraging participants, through rituals of self-disclosure and advocacy, to transform identities of “mental patient” to “consumer advocate” (McCoy & Aronoff, 1994; Onken & Slaten, 2000). This transformation enabled consumers to reframe the experience of mental illness so that it no longer carried a negative connotation but instead was seen as something that was “okay,” or even a mark of social advantage.…”

Section: Review Of Evidence For the Modelmentioning

confidence: 99%

The Impact of Illness Identity on Recovery from Severe Mental Illness

Yanos

Roe

Lysaker

2010

American Journal of Psychiatric Rehabilitation

266

189

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The impact of the experience and diagnosis of mental illness on one's identity has long been recognized; however, little is known about the impact of illness identity, which we define as the set of roles and attitudes that a person has developed in relation to his or her understanding of having a mental illness. The present article proposes a theoretically driven model of the impact of illness identity on the course and recovery from severe mental illness and reviews relevant research. We propose that accepting a definition of oneself as mentally ill and assuming that mental illness means incompetence and inadequacy impact hope and self-esteem, which further impact suicide risk, coping, social interaction, vocational functioning, and symptom severity. Evidence supports most of the predictions made by the model. Implications for psychiatric rehabilitation services are discussed.

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“…These insights include the way that consumer leadership can be seen to be a resource in itself for consumer-run mental health organisations, 15 and how organisations may need to work to balance the ideology of consumer leadership with the hierarchies entrenched in traditional health service delivery. [15][16][17][18] A search of the literature for consumer leadership conducted by the authors revealed that 27 of 36 published articles about consumer leadership were specifically about consumer-run organisations. 19 Thus, whereas there is some extant literature about consumer leaders within consumer-run organisations, there is a gap in current research knowledge of consumer leadership within the mental health sector more broadly.…”

Section: Introductionmentioning

confidence: 99%

How do consumer leaders co-create value in mental health organisations?

Scholz

Bocking

Happell

2017

Aust. Health Review

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Objectives Contemporary mental health policies call for consumers to be involved in decision-making processes within mental health organisations. Some organisations have embraced leadership roles for consumers, but research suggests consumers remain disempowered within mental health services. Drawing on a service-dominant logic, which emphasises the co-creation of value of services, the present study provides an overview of consumer leadership within mental health organisations in the Australian Capital Territory. Methods Mental health organisations subscribing to the local peak body mailing list were invited to complete a survey about consumer leadership. Survey data were summarised using descriptive statistics and interpreted through the lens of service-dominant logic. Results Ways in which organisations may create opportunities for consumers to co-create value within their mental health services included soliciting feedback, involving consumer leaders in service design, having consumer leaders involved in hiring decisions and employing consumer leaders as staff or on boards. Strategies that organisations used to develop consumer leaders included induction, workshops and training in a variety of organisational processes and skills. Conclusions The findings of the present study extend the application of a service-dominant logic framework to consumer leadership within mental health organisations through consideration of the diverse opportunities that organisations can provide for consumer co-creation of service offerings. What is known about the topic? Policy calls for consumer involvement in all levels of mental health service planning, implementation and delivery. The extent to which service organisations have included consumer leaders varies, but research suggests that this inclusion can be tokenistic or that organisations choose to work with consumers who are less likely to challenge the status quo. Service literature has explored the way consumers can co-create value of their own health care, but is yet to explore consumers’ co-creation of value at a systemic level. What does the paper add? This paper outlines ways in which mental health organisations report involving consumers in leadership positions, including having consumers on boards, having consumers on recruitment panels and providing leadership training for consumers. These initiatives are considered in terms of the potential value co-created within mental health services by consumers in leadership, suggesting that consumer leaders are a resource to mental health organisations in terms of the value brought to service offerings. What are the implications for practitioners? Research suggests that medical professionals have been resistant to increased consumer leadership within mental health services. The findings of the present study emphasise the value that can be brought to service organisations by consumer leaders, suggesting that mental health practitioners may reconsider their approach and attitudes towards consumer leadership in the sector.

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Against all odds: Revitalization of local self-help alternatives by longterm mental health consumers

Cited by 8 publications

References 8 publications

Consumers in mental health service leadership: A systematic review

Consumers in mental health service leadership: A systematic review

The Impact of Illness Identity on Recovery from Severe Mental Illness

How do consumer leaders co-create value in mental health organisations?

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