After the Visit: An Overview of Government and Community Programs Supporting Children with Medical Complexity

Olson, Kaitlyn B.

doi:10.3390/children4050035

Cited by 3 publications

(1 citation statement)

References 13 publications

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“…Further, the specific assessment of coverage for youth with SED represents a significant gap in the literature. Family‐centered models of care for children with mental health needs in clinical settingsDue to the extensive caregiving burden on families of CMC, policy and financing structure should take a family‐centered approach to provide services, including mental and behavioral health (Kuhlthau et al, 2011; Lor et al, 2016). Children with SED have very specific developmental, physical, social, and psychological needs that can be addressed through a tailored approach across the care trajectory (Barnert et al, 2018; Olson, 2017) For instance, there are several waivers that target only pediatric age ranges (i.e., 0–21) that include provisions such as caregiver/parental/family counseling, bereavement or sibling support as a key service offered, which recognizes the child embedded in the context of the entire family. Additionally, there are specific developmental milestones and points in time where intensive therapy may be most beneficial.…”

Section: Discussionmentioning

confidence: 99%

Lagging coverage for mental health services among children and adolescents through home and community‐based Medicaid waivers

Keim‐Malpass

Constantoulakis

Shaw³

et al. 2022

Child Adoles Psych Nursing

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Problem Many states cover mental health home and community‐based services (HCBS) for youth through 1915(c) Medicaid HCBS waivers that allow states to waive certain Medicaid eligibility criteria and define high‐risk populations based on age, medical condition(s), and disability status. We sought to evaluate how States are covering children and adolescents with mental health needs through 1915(c) waivers compared to other youth waiver populations. Methods Data elements were extracted from Medicaid 1915(c) approved waivers applications for all included waivers targeting any pediatric age range through October 31, 2018. Normalization criteria were developed and an aggregate overall coverage score and level of funding per person per waiver were calculated for each waiver. Findings One hundred and forty‐two waivers across 45 states were included in this analysis. Even though there was uniformity in the Medicaid applications, there was great heterogeneity in how waiver eligibility, transition plans, services covered, and wait lists were defined across group classifications. Those with mental health needs (termed serious emotional disturbance) represented 5% of waivers with the least annual funding per person per waiver. Conclusions We recommend greater links between public policy, infrastructure, health care providers, and a family‐centered approach to extend coverage and scope of services for children and adolescents with mental health needs.

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Section: Discussionmentioning

confidence: 99%

Lagging coverage for mental health services among children and adolescents through home and community‐based Medicaid waivers

Keim‐Malpass

Constantoulakis

Shaw³

et al. 2022

Child Adoles Psych Nursing

View full text Add to dashboard Cite

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Self-concept and academic achievement in children with chronic kidney disease

Verhofste,

Conrad,

Johnson

et al. 2023

Pediatr Nephrol

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Inclusive Design in the Field of Education from the Paradigm of Early Intervention

et al. 2021

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Inclusive education and early intervention go hand in hand in the early educational stages to reach the maximum potential of the student body. The aim of this study was to analyze the inclusive profile of an educational center and assess the effectiveness of an inclusive task (designed for this study) in a group of students of early childhood education. This analytical, prospective, descriptive and longitudinal study was conducted from both qualitative and quantitative approaches. From the qualitative approach, an interview was carried out with early childhood education teachers. A total of nine participants were interviewed. Their mean age was 42.25 ± 9.30 years, with a mean experience of 14.25 ± 9.25 years. The quantitative part of the study was carried out with 97 students of early childhood education. After delivering a learning workshop about awareness of functional diversity, three variables were analyzed: story memory, demonstrated emotion, and game memory. The qualitative study indicates that it is necessary to develop coping strategies, such as including special education tasks in the classroom, prior to specific staff training and programming in specific aspects of awareness. Moreover, it is shown that the perception of treatment among peers is already present at this educational stage. The quantitative study reveals that the task was exciting and motivating for the students, which promotes learning and awareness.

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After the Visit: An Overview of Government and Community Programs Supporting Children with Medical Complexity

Cited by 3 publications

References 13 publications

Lagging coverage for mental health services among children and adolescents through home and community‐based Medicaid waivers

Lagging coverage for mental health services among children and adolescents through home and community‐based Medicaid waivers

Self-concept and academic achievement in children with chronic kidney disease

Inclusive Design in the Field of Education from the Paradigm of Early Intervention

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