African Ethics, Health Care Research and Community and Individual Participation

Jegede, Ayodele S.

doi:10.1177/0021909608101412

Cited by 23 publications

(28 citation statements)

References 22 publications

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“…According to Jegede 28 autonomy is central to western perspective of decision making where the individual is said to be autonomous and independent. The individual solely makes the decision whether or not to participate in research having considered the benefits and risks involved.…”

Section: Introductionmentioning

confidence: 99%

“…Individual autonomy is often compromised in Africa because the basis of existence in most African societies is communalism. 32 Individual autonomy in the African setting is influenced by the autonomy of other members of the community. 33 Hence, the African type of autonomy could be referred to as “social autonomy” which invariably is synonymous to relational autonomy.…”

Section: Introductionmentioning

confidence: 99%

“…In Africa, individuals make decisions by taking into consideration the implications of their decisions on their community, family and themselves. 34 For this reason, respect for individual is synonymous with respect for others and this is a collective responsibility. This type of social autonomy has implications for women in decision making.…”

Section: Introductionmentioning

confidence: 99%

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Factors Affecting Women's Autonomous Decision Making In Research Participation Amongst Yoruba Women Of Western Nigeria

Princewill

Jegede²,

Nordström³

et al. 2016

Developing World Bioethics

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Research is a global enterprise requiring participation of both genders for generalizable knowledge; advancement of science and evidence based medical treatment. Participation of women in research is necessary to reduce the current bias that most empirical evidence is obtained from studies with men to inform health care and related policy interventions. Various factors are assumed to limit autonomy amongst the Yoruba women of western Nigeria. This paper seeks to explore the experience and understanding of autonomy by the Yoruba women in relation to research participation. Focus is on factors that affect women’s autonomous decision making in research participation. An exploratory qualitative approach comprising four focus group discussions, 42 in-depth interviews and 14 key informant interviews was used. The study permits a significant amount of triangulation, as opinions of husbands and religious leaders are also explored. Interviews and discussions were audiotaped and transcribed verbatim. Content analysis was employed for data analysis. Findings show that concepts of autonomy varied amongst the Yoruba women. Patriarchy, religion and culture are conceived to have negative impact on the autonomy of women in respect to research participation. Among the important findings are: 1) male dominance is strongly emphasized by religious leaders who should teach equality, 2) while men feel that by making decisions for women, they are protecting them, the women on the other hand see this protection as a way of limiting their autonomy. We recommend further studies to develop culturally appropriate and workable recruitment methods to increase women’s participation in research.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Factors Affecting Women's Autonomous Decision Making In Research Participation Amongst Yoruba Women Of Western Nigeria

Princewill

Jegede²,

Nordström³

et al. 2016

Developing World Bioethics

View full text Add to dashboard Cite

show abstract

“…Throughout African history, few crises have threatened the very viability of societies, as does the AIDS pandemic. (Villarreal, 2006: 195) HIV/AIDS (Mutembei et al, 2002) both at the company level (Barako and Brown, 2008), community level (Jegede, 2009) and cultural level (Alimi and Bagwasi, 2009). Medical research groups, AIDS/business teams and the health organizations are amongst many key health agents that have ensured that the dissemination of information about HIV/AIDS, and ways to tackle the phenomenon, are known to business leaders who can report these issues to stakeholders in capital markets (UNAIDS, 2000;WEF, 2006;WHO, 1990).…”

Section: Introductionmentioning

confidence: 99%

HIV/AIDS Information by African Companies: An Empirical Analysis

Barako

Taplin

Brown

2010

Journal of Asian and African Studies

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This article investigates the extent of Human Immunodeficiency Virus/Acquired Immune Deficiency Syndrome Disclosures (HIV/AIDSD) in online annual reports by 200 listed companies from 10 African countries for the year ending 2006. Descriptive statistics reveal a very low level of overall HIV/AIDSD practices with a mean of 6 per cent disclosure, with half (100 out of 200) of the African companies making no disclosures at all. Logistic regression analysis reveals that company size and country are highly significant predictors of any disclosure of HIV/AIDS in annual reports. Profitability is also statistically significantly associated with the extent of disclosure.

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“…One reason why this is considered important is that community engagement recognises more communitarian values traditionally strong in African societies. [5] Community engagement requires, for example, including communities in discussions on the ethics of genomic research, developing benefit-sharing arrangements and acknowledging the contributions of study populations. Community engagement is based on principles of solidarity, reciprocity, inclusiveness and mutual respect, which are characteristic of communitarian settings.…”

Section: Community Engagementmentioning

confidence: 99%