Adverse outcomes after major surgery in children with intellectual disability

Huang, Shih-Horng; Chang, Chuen Chau; Lin, Chao-Shun; Yeh, Chun Chieh; Lin, Jui-An; Cherng, Yih-Giun; Chen, Ta Liang; Liao, Chien Chang

doi:10.1111/dmcn.14715

Cited by 4 publications

(11 citation statements)

References 40 publications

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“… 61 In four studies no differences in mortality were reported, 62–64 66 and in one study children with intellectual disability had a higher risk of 30-day mortality compared with children with no intellectual disability. 70 …”

Section: Resultsmentioning

confidence: 99%

“…15 Thirteen further articles reported on postoperative outcomes. [59][60][61][62][63][64][65][66][67][68][69][70][71] The majority of articles included data relating to Down syndrome, 59-61 63-65 68 69 followed by intellectual disability, 62 67 70 developmental delay 66 and autism spectrum disorder. 71 Increased rates of complications 60 62 63 66 69 70 were reported in a number of studies.…”

Section: Postoperative Outcomesmentioning

confidence: 99%

“…61 In four studies no differences in mortality were reported, 62-64 66 and in one study children with intellectual disability had a higher risk of 30-day mortality compared with children with no intellectual disability. 70 Objective 2: explore protective factors and potential explanatory mechanisms Role of family and carers Reliance on parental presence as a protective factor from poor care quality was emphasised in the systematic review of the experience of iatrogenic harm during hospitalisation for children with intellectual disability included within this review (referred to in objective 1 findings). 15 Furthermore, a primary study included within an already included literature review 34 (referred to in objective 1 findings) warranted further attention within this concept.…”

Section: Cohortmentioning

confidence: 99%

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Exploring patient safety outcomes for people with learning disabilities in acute hospital settings: a scoping review

et al. 2021

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ObjectivesTo produce a narrative synthesis of published academic and grey literature focusing on patient safety outcomes for people with learning disabilities in an acute hospital setting.DesignScoping review with narrative synthesis.MethodsThe review followed the six stages of the Arksey and O’Malley framework. We searched four research databases from January 2000 to March 2021, in addition to handsearching and backwards searching using terms relating to our eligibility criteria—patient safety and adverse events, learning disability and hospital setting. Following stakeholder input, we searched grey literature databases and specific websites of known organisations until March 2020. Potentially relevant articles and grey literature materials were screened against the eligibility criteria. Findings were extracted and collated in data charting forms.Results45 academic articles and 33 grey literature materials were included, and we organised the findings around six concepts: (1) adverse events, patient safety and quality of care; (2) maternal and infant outcomes; (3) postoperative outcomes; (4) role of family and carers; (5) understanding needs in hospital and (6) supporting initiatives, recommendations and good practice examples. The findings suggest inequalities and inequities for a range of specific patient safety outcomes including adverse events, quality of care, maternal and infant outcomes and postoperative outcomes, in addition to potential protective factors, such as the roles of family and carers and the extent to which health professionals are able to understand the needs of people with learning disabilities.ConclusionPeople with learning disabilities appear to experience poorer patient safety outcomes in hospital. The involvement of family and carers, and understanding and effectively meeting the needs of people with learning disabilities may play a protective role. Promising interventions and examples of good practice exist, however many of these have not been implemented consistently and warrant further robust evaluation.

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Section: Resultsmentioning

confidence: 99%

Section: Postoperative Outcomesmentioning

confidence: 99%

Section: Cohortmentioning

confidence: 99%

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Exploring patient safety outcomes for people with learning disabilities in acute hospital settings: a scoping review

et al. 2021

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“…There are two new reports on the surgical care of children with disabilities, using big data from administrative databases in Taiwan and the United States. 1,2 In the study by Huang et al, children with intellectual disabilities were found to have approximately double the odds of postoperative pneumonia, sepsis, and mortality. 1 Interestingly, the odds of adverse events were increased in both tertiary and non-tertiary settings.…”

mentioning

confidence: 99%

“…1,2 In the study by Huang et al, children with intellectual disabilities were found to have approximately double the odds of postoperative pneumonia, sepsis, and mortality. 1 Interestingly, the odds of adverse events were increased in both tertiary and non-tertiary settings. Children with intellectual disabilities also experienced longer stays in hospital and increased medical expenditures compared to their matched peers.…”

mentioning

confidence: 99%