Advancement of the QOLIBRI use and applications

Abstract

Objective: To report the advancement of the use and applications of the QOLIBRI, a 37-item disease-specific tool of health-related quality-of-life (HRQoL) after traumatic brain injury (TBI). Methods: We have performed a literature review of HRQoL in TBI involving QOLIBRI, via PubMed, since its three initial publications in 2010. We have selected 24 more studies and taken into account our respective clinical experiences on QOLBRI use up to now. Results: The QOLIBRI was initially validated in six languages: Dutch, Finnish, English, French, German, and Italian. After two assessment waves, the validation study on 795 TBI-persons showed a good reliability (Cronbach 0.86 and test-retest reliability 0.81). The QOLIBRI was related-but with an added-value-to SF-36, the Glasgow Outcome Scale extended (GOSE) and the Hospital Anxiety and Depression Scale (HADS). Further studies have led to a comparison with the generic instrument SF-36, and the International Classification of Functioning (ICF). A 6-item Overall QOLIBRI scale (QOLIBRI-OS), and relative's proxy version (Pro-QOLIBRI) were designed and validated. Moreover, QOLIBRI was validated in Portuguese, Chinese, and Japanese. In addition, QOLIBRI was applied in studies on elderly people, mild TBI, coping and insurances. Conclusion: The QOLIBRI enlightens patient's subjective perception of his/her HRQoL which supplements measures of functional outcome. It allows the identification of personal needs, the prioritization of therapeutic goals and the evaluation of individual progress. It may also be useful in clinical trials and in longitudinal studies of TBI recovery.

Reference Values and Psychometric Properties of the Quality of Life After Traumatic Brain Injury-Overall Scale in Italy, The Netherlands, and the United Kingdom

“…Developing the QOLIBRI-OS involved literature reviews, qualitative focus group analyses, and quantitative psychometric analyses. 5,8,13 The QOLIBRI-OS has been translated into and validated for more than 10 languages, 8,[14][15][16][17][18][19] and it has been used internationally in research and clinical practice. 3,8,15 So far, only 1 study has provided a cutoff value for the QOLIBRI-OS to identify impairment in disease-specific HRQoL based on European TBI samples.…”

Malay translation and validation of the quality of life after brain injury (QOLIBRI) questionnaire for individuals with traumatic brain injury

“…9 Since 2010, QOLIBRI has been translated and validated in Asian countries 10,11 , European countries 8,12,13,14,15 , and Australia 16 and has been widely used in international studies. 17 This instrument has good psychometric properties and is reliable to measure the HRQOL of TBI populations. 8,9,[15][16][17][18][19][20] This tool assesses six dimensions of HRQOL in accordance with six subscales (satisfaction: cognition, self, daily life and autonomy, and social relationships; feeling bothered: emotions and physical problems).…”

“…17 This instrument has good psychometric properties and is reliable to measure the HRQOL of TBI populations. 8,9,[15][16][17][18][19][20] This tool assesses six dimensions of HRQOL in accordance with six subscales (satisfaction: cognition, self, daily life and autonomy, and social relationships; feeling bothered: emotions and physical problems). QOLIBRI applies to individuals with TBI of all severities and at all time points after the injury.…”