Advanced Care Planning--Audit

Ampe, Sophie; Sevenants, Aline; Coppens, Evelien; Spruytte, Nele; Smets, Tinne; Declercq, Anja; Audenhove, Chantal Van

doi:10.1037/t55242-000

Cited by 1 publication

(2 citation statements)

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“…Many of Gaugler's (2005) recommendations have yet to be addressed and multi-faceted types of family involvement need to be included in future studies. Systematic attention to involving and empowering families when developing interventions is also essential (Ampe et al, 2016).…”

Section: Discussionmentioning

confidence: 99%

“…Detailed theoretical frameworks for a further intervention and the booklet resource commonly used were available while other interventions appeared to be limited to the description within an empirical paper. Care home promotion of involvement continues to be sporadic and often basic(Ampe et al, 2016) therefore open access to detailed guides would encourage wider replication of the family involvement interventions and facilitate evidence-based best practice in care.Future researchA new measure, developed byFast et al (2019) called Family Involvement Questionnaire-Long-Term Care (FIQ-LTC) has been shown to be reliable. It involves over 40 items and measures various aspects of family involvement in the lives of older adults residing in long-term care facilities.…”

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confidence: 99%

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Family involvement with care homes following placement of a relative living with dementia: a review

et al. 2021

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This review updated a previous review [Gaugler JE (2005) Family involvement in residential long-term care: a synthesis and critical review. Aging and Mental Health9, 105–118] and focused on dementia. Fourteen years of development in family involvement with care homes following placement of a relative was explored. The review aimed to investigate two questions: (1) What types of involvement do families have with care homes following placement of people living with dementia? (2) Which factors influence family involvement with care homes? PsycINFO, MEDLINE and CINAHL Plus were searched for publications between January 2005 and December 2018. Thirty-three papers representing 30 studies were included. Papers were appraised using a quality rating tool designed for use with mixed study designs. Studies were of a reasonable quality though some weaknesses included single-site samples, high attrition rates and poor reporting. Twenty-eight papers highlighted types of involvement including collaboration, family–staff relationship development, decision making and visiting. Twenty-five papers pertained to factors influencing involvement, which included outcome of care quality evaluation, wish for recognition and sense of integration into the care team. Type of family involvement has changed over time with increased emphasis on families’ desire for partnership, to be active rather than passive advocates, and to focus on care monitoring and evaluation. Seven themes of family involvement activities are featured and a non-linear process is proposed. When compared to patient and family-centred care principles, an analysis of family involvement types found good fit overall and potential for framework improvements. Over 30 diverse factors influence inter-family variation in the level and nature of family involvement. Consideration of these factors and resolution of the gaps in evidence, including intergenerational and cultural concerns, can improve care home facilitation of family participation. This dementia-specific review is a comprehensive timely complement to Gaugler's seminal work about older adults in care.

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Section: Discussionmentioning

confidence: 99%

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confidence: 99%