Importance
Documenting patients’ advance care planning wishes is essential to providing value-aligned care, as is having this documentation readily accessible. Little is known about advance care planning documentation practices in the electronic health record.
Objective
Describe advance care planning documentation practices and the accessibility of documented discussions in the electronic health record.
Design
Cross-sectional study between 2013-2015.
Setting
Primary care clinics at the San Francisco Veterans Affairs Medical Center.
Participants
Veterans ≥60 years of age with ≥2 chronic/serious health conditions, ≥2 primary care visits, and ≥2 additional clinic/hospital/emergency room visits in the prior year who were participating in an advance care planning trial.
Exposure
Documentation of advance care planning in the electronic health record.
Main Measures
Advance care planning documentation, including all prior legal forms/orders and documented discussions within the prior five years. For discussions, the author’s discipline and documentation location in the electronic health record were determined. Discussions were defined as “accessible” if documented in a designated electronic posting location or “not easily accessible” if recorded as free-text in progress notes. Percentages and means were used to describe these measures.
Key Results
The mean age of 414 participants was 71 years (SD ±8), 9% were women, 43% were non-white, and 51% had documented advance care planning including 149 (36%) with forms/orders and 138 (33%) with discussions. Seventy-four participants (50%) with forms/orders did not have accompanying documented discussions. Most (55%) discussions were not easily accessible. Twenty-seven participants had a subsequent discussion documenting changes in treatment preferences from a prior form/order; however, 70% of these discussions were not easily accessible.
Conclusions and Relevance
Half of chronically ill, older participants had documented advance care planning wishes, including one third with documented discussions. However, half of the patients with completed legal forms/orders had no accompanying explanatory discussions. The majority of documented discussions were not easily accessible in the electronic health record, including 70% of those documenting a change in treatment preferences. Ensuring that patients’ preferences are documented and easily accessible is an important patient safety and quality improvement target to ensure patients’ wishes are honored.