Advance care planning in COPD

Patel, Kevin; Janssen, Daisy J.A.; Curtis, J. Randall

doi:10.1111/j.1440-1843.2011.02087.x

Cited by 116 publications

(91 citation statements)

References 43 publications

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“…During ACP consultations the patients' values, wishes for the future and reflections on end of life are discussed. ACP is recommended in COPD [31] and lung cancer [32]. Our findings are similar to a study showing that family caregivers need knowledge about the progression of the disease [33] and supporting practical help, especially administration of oxygen [8].…”

Section: Discussionsupporting

confidence: 79%

The lived experience with idiopathic pulmonary fibrosis: a qualitative study

et al. 2016

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The disease course in idiopathic pulmonary fibrosis (IPF) is variable, but patients experience a progressive decline in lung function and increased symptom burden leading to death. Little is known about the patients' experience and their needs during the disease course or about the burden on family caregivers. Both patients and family caregivers face an altered life as the disease progresses. The aim of our study was to increase knowledge of life with IPF for patients and family caregivers.This study had a qualitative descriptive design using in-depth dyadic interviews with IPF patients (n=25) and family caregivers (n=24). We used the five-step analysis from the framework method and analysed the data on three levels: the patient, the family caregivers and couple level.The following six themes emerged as the main results: information and disclosure, reactional dyssynchrony, perpetual vigilance, emotional ambivalence, gradual and tacit role shift, and adapted coping strategies.Our findings suggest that IPF patients need information at the time of diagnosis, but some issues should be paced as the disease progresses. A palliation plan was demanded by patients and their caregivers. Further efforts are required to provide palliative care to IPF patients starting at the time of diagnosis. @ERSpublications IPF patients and caregivers need information, but full disclosure should be gradual and palliation initiated early

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Section: Discussionsupporting

confidence: 79%

The lived experience with idiopathic pulmonary fibrosis: a qualitative study

et al. 2016

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“…19,20 Thresholds at which ACP might be discussed have been described and include forced expiratory volume in 1s (FEV 1) less than 30% predicted, oxygen dependence, and hospital admission for exacerbation of COPD. 30 This study aimed to discover whether or not an admission to hospital for an exacerbation of COPD was an opportunity for initiation of discussion about ACP. It appears from the chaotic nature of the admission and the severity of the illness that this is not necessarily an appropriate time.…”

Section: Interpretation Of Findings In Relation To Previously Publishmentioning

confidence: 99%

Is hospitalisation for COPD an opportunity for advance care planning? A qualitative study

Seamark

Blake

Seamark

et al. 2012

Primary Care Respiratory Journal

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“…an acute exacerbation [22]. An important aspect of the ACP is to involve both the formal and informal caregivers [23]. …”

Section: Definitionmentioning

confidence: 99%

Danish respiratory society position paper: palliative care in patients with chronic progressive non-malignant lung diseases

Marsaa

Gundestrup

Lange

et al. 2018

European Clinical Respiratory Journal

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Background: Chronic non-malignant lung diseases such as chronic obstructive pulmonary disease (COPD) and interstitial lung diseases (ILD) result in reduced quality of life (QoL), a high symptom burden and reduced survival. Patients with chronic non-malignant lung disease often have limited access to palliative care. The symptom burden and the QoL of these patients resembles patients with cancer and the general palliative approach is similar. However, the disease trajectory is often slow and unpredictable, and the palliative effort must be built on accessibility, continuity and professional competences. The Danish Health Authority as well as the WHO recommends that there is access to palliative care for all patients with life-threatening diseases regardless of diagnosis. In 2011, the Danish Health Authority requested that the national medical societies would to formulate guidelines for palliation. Methods: In 2015, a group of members of the Danish Respiratory Society (DRS) was appointed for this purpose. It was composed of experienced ILD and COPD researchers as well as clinicians from different parts of Denmark. A literature review was made, a draft was prepared, and all recommendations were agreed upon unanimously. Results: The Danish version of the position paper was finally submitted for review and accepted by all members of DRS. Conclusion: In this position paper we provide recommendations on the terminology of chronic and terminal lung failure, rehabilitation and palliative care, advanced care planning, informal caregivers and bereavement, symptom management, the imminently dying patient, and organization of palliative care for patients with chronic non-malignant lung diseases.

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Advance care planning in COPD

Abstract: The review aims to discuss current concepts in advance care planning (

Cited by 116 publications

References 43 publications

The lived experience with idiopathic pulmonary fibrosis: a qualitative study

The lived experience with idiopathic pulmonary fibrosis: a qualitative study

Is hospitalisation for COPD an opportunity for advance care planning? A qualitative study

Danish respiratory society position paper: palliative care in patients with chronic progressive non-malignant lung diseases

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