Adults With Congenital Heart Disease: Lost in Care

Gerardin, Jennifer F.; Raskind-Hood, Cheryl; Hoffman, Trenton; Well, Andrew; Rodriguez, Fred H.; Kalogeropoulos, Andreas P.; Hogue, Carol J.; Book, Wendy

doi:10.1016/s0735-1097(17)34043-3

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Appropriate Achd Care3

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2024

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“…Among the first challenges is the transition of care from pediatric cardiovascular care to adult care. In fact, many patients are lost to care at the time of transfer of care or do not participate in a transfer program (4,5). As few as 15% of ACHD patients may transfer to an ACHD center (5).…”

Section: Appropriate Achd Carementioning

confidence: 99%

“…In fact, many patients are lost to care at the time of transfer of care or do not participate in a transfer program (4,5). As few as 15% of ACHD patients may transfer to an ACHD center (5). There are several factors that account for this.…”

Section: Appropriate Achd Carementioning

confidence: 99%

“…Individuals with severe congenital heart disease exhibit a higher likelihood of transitioning to adult congenital heart disease care compared to those with non-severe conditions. And even amongst those with severe disease, transfer rates to ACHD care have been reported be just below 20% (5).…”

Section: Appropriate Achd Carementioning

confidence: 99%

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