Adulthood in Women with Turner Syndrome

Ostberg, Julia E.; Conway, Gerard S.

doi:10.1159/000070220

Cited by 30 publications

(53 citation statements)

References 89 publications

(142 reference statements)

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“…However, their results were only based upon the broad-band scales. It is somewhat surprising that our TS patients had lower scores on the somatic complaints subscale than the non-TS reference group as TS patients are often confronted with TS specific health problems [2, 3]. This may be due to the fact that the YASR somatic complaints subscale does not measure TS specific somatic problems such as hearing problems, cardiac disease, hypothyroidism or hypertension.…”

Section: Discussionmentioning

confidence: 91%

“…Although it has been well-established that adults with TS are susceptible to a large range of medical and psychosocial problems [2, 3], psychological studies in adult women with TS report a large variability regarding psychosocial adaptation and functioning [4,5,6,7,8,9,10]. Moreover, the effects of height and height gain from growth hormone (GH) treatment on psychosocial functioning still remain unclear [11,12,13] and the effects of oestrogen replacement therapy have only been studied on self-concept and cognitive abilities in adolescents [14,15,16].…”

Section: Introductionmentioning

confidence: 99%

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Psychosocial Functioning, Self-Perception and Body Image and Their Auxologic Correlates in Growth Hormone and Oestrogen-Treated Young Adult Women with Turner Syndrome

Lagrou¹,

Froidecoeur²,

F³

et al. 2006

Horm Res Paediatr

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Background: Few data are available on the psychosocial status of growth hormone (GH) and oestrogen treated women with Turner syndrome (TS). In this study, we evaluated psychosocial functioning, self-concept and body image in GH and oestrogen treated young adult women with TS and we studied the relationship with auxological parameters. Patients and Methods: Thirty women with TS (mean ± SD age: 22.1 ± 2.4 years), all treated with GH and oestrogens if indicated, and an age-matched reference group of 44 non-Turner female students (age: 20.5 ± 2.1 years) completed 3 questionnaires evaluating, respectively, behavioural and emotional problems (Young Adult Self Report), self-concept (Self Perception Profile for College Students) and body-image (Body Attitude Scale). Results: TS patients did not report more behavioural and emotional problems compared to the non-TS females except for attention problems; they even reported fewer problems on some subscales (somatic complaints, thought problems, delinquent behaviour). TS patients did not differ from the non-TS female group in their bodily satisfaction. TS patients, particularly patients with a 45,X karyotype, perceived themselves as less socially competent. BMI was significantly related to the appraisal score of the Body Attitude Scale, whereas height was not related to any of the evaluated psychosocial parameters. Conclusion: The psychosocial adaptation of young adult women with TS, diagnosed at an early age and treated during childhood with GH and oestrogens if indicated, appears to be quite satisfactory. Follow-up of adult TS patients should not neglect the problem of overweight and associated psychosocial consequences.

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Section: Discussionmentioning

confidence: 91%

Section: Introductionmentioning

confidence: 99%

Psychosocial Functioning, Self-Perception and Body Image and Their Auxologic Correlates in Growth Hormone and Oestrogen-Treated Young Adult Women with Turner Syndrome

Lagrou¹,

Froidecoeur²,

F³

et al. 2006

Horm Res Paediatr

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“…Of our patients, 5.8% reported to be hypothyroid. Some disorders, like the fertility problems, are important for personal life and might create problems in the life of a couple [2]. Also the high frequency of hearing problems [4, 14]has a major influence on social life.…”

Section: Discussionmentioning

confidence: 99%

“…Most of the patients are diagnosed during childhood [2]and received intensive medical follow-up by paediatric endocrinologists taking care of growth-promoting treatment with recombinant growth hormone (GH) and puberty induction with estrogens, if indicated [3]. Although it has been increasingly evident that adults with TS are susceptible to a large range of medical and psychosocial problems [2, 4], little is known about what happens to these patients after transition to adulthood, and many patients seem to ‘opt out’ of the medical milieu when they reach adulthood [5]. Moreover, limited information is available on the long-lasting effect of GH treatment during childhood on health and psychosocial functioning of adult TS women.…”

Section: Introductionmentioning

confidence: 99%

Health and Psychosocial Status of Patients with Turner Syndrome after Transition to Adulthood: The Belgian Experience

F¹,

Massa²,

Lagrou³

et al. 2004

Horm Res Paediatr

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Background: Most girls with Turner syndrome (TS) are intensively followed by paediatricians, but are lost to follow-up when they reach adulthood. To gain insight into the adult medical and psychosocial situation, we performed a survey in young adult TS patients. Patients and Methods: A questionnaire concerning current health status, education, occupation and living situation was sent to 160 young adult TS women, all treated during childhood with GH and oestrogen if needed. Results: We received 102 completed questionnaires. Mean ± SD age at reception of the questionnaire was 23.4 ± 3.3 years, height 153.3 ± 5.2 cm, body mass index 23.7 ± 4.9 kg/m². Age and auxological parameters were comparable between responders and non-responders. Thirteen (12.7%) responders were not under regular medical care; 15 (14.7%) were seen by a general practitioner, while 28 (27.4%) needed several specialists. Forty-one (40.2%) patients reported health problems. The most frequently reported problem was hypertension (10.7%), followed by hypothyroidism (5.8%) and back problems (4.9%). Twenty-four (23.5%) of the 41 patients were taking medication for the indicated health problems. Twenty-six (25.5%) women had undergone spontaneous puberty; 16 of them reported spontaneous menstruations while 10 received oestrogen replacement therapy. Of the 76 women with induced puberty, 11 (14.5%) were not taking any oestrogen anymore. Compared with the general population, more TS women attended university and more obtained higher education. Forty-six women (45.1%) were working full-time, 7 (6.9%) were unemployed, and 4 (3.9%) received an allocation. Seventy (68.6%) patients were still living with their parents, while 18 (17.6%) were living together or married, and 14 (13.7%) were living alone. Conclusions: The transition of adolescents with TS to adult medical care is not optimal in Belgium. Although 40.2% of these young women reported health problems, 12.7% did not consult any physician. Many TS women did not take oestrogen replacement therapy. A specialized multidisciplinary approach for adults with TS is needed in order to optimize health and psychosocial status in these women.

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“…Se debe prestar especial atención a los pacientes que presenten en su cariotipo un cromosoma Y en alguna línea celular, pues este hallazgo tiene gran relación con la aparición de un extraño tumor, el gonadoblastoma, en el 30% de los casos (7,8,23,24).…”

Section: Tabla I Comparación Con Series Semejantes En La Literaturaunclassified

Variedad de la presentación citogenética en el síndrome de Turner, prenatal y postnatal

Saldarriaga

Valencia

Fandiño-Losada³

et al. 2014

Rev. chil. obstet. ginecol.

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Adulthood in Women with Turner Syndrome

Cited by 30 publications

References 89 publications

Psychosocial Functioning, Self-Perception and Body Image and Their Auxologic Correlates in Growth Hormone and Oestrogen-Treated Young Adult Women with Turner Syndrome

Psychosocial Functioning, Self-Perception and Body Image and Their Auxologic Correlates in Growth Hormone and Oestrogen-Treated Young Adult Women with Turner Syndrome

Health and Psychosocial Status of Patients with Turner Syndrome after Transition to Adulthood: The Belgian Experience

Variedad de la presentación citogenética en el síndrome de Turner, prenatal y postnatal

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