Adult Pediatric Patients

Carson, Anne R.; Hieber, Katherine Voorhees

doi:10.1097/00000446-200103000-00043

Cited by 15 publications

(11 citation statements)

References 13 publications

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“…47 As such, transition is a lengthy process with developmental and behavioral roots that begins essentially at the time of diagnosis and should involve the entire family. 24,47,48 Because of this, pediatric providers are in a unique position to fulfill a critical role in assisting young people and their families with transitioning to adult care. We suggest that pediatric programs serving youth with chronic conditions be the point persons for transition planning.…”

Section: Institutions and Healthmentioning

confidence: 99%

Transitioning From Pediatric to Adult Health Care: Dropping Off the Face of the Earth

Harris

Freeman

Duke

2010

American Journal of Lifestyle Medicine

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The challenges faced by the young adults transitioning from pediatric to adult health care services are numerous and often daunting. They include characteristics of the patient and their family, pediatric and adult treatment teams, and institutional and health care systems policies. Although recognition of the issues and problems of transition has increased during the past decade, meaningful systematic changes have not occurred. Herein, the authors provide the background and general information necessary to better understand the difficulties associated with transition that affect many young adults. The challenges of transition are systematically presented and organized by patient, family, pediatric treatment team, adult treatment team, and institutional and system issues. Recommendations are provided for each of these areas, beginning with an emphasis on institutional and health care systems policy revisions that are a foundational and necessary element to build meaningful change. In addition, recommendations are provided that are specific to pediatric and adult health care teams, as well as patients and families. Suggestions are presented for needed research, and finally, conclusions and practical and applicable recommendations for pediatricians or adult health care providers are proposed.

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Section: Institutions and Healthmentioning

confidence: 99%

Transitioning From Pediatric to Adult Health Care: Dropping Off the Face of the Earth

Harris

Freeman

Duke

2010

American Journal of Lifestyle Medicine

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“…It has been found to promote coping with chronic disease (Graetz et al ., 2000) and compliance with health regimens (Dunbar‐Jacob et al ., 2000; Kyngäs & Rissanen, 2001). The most important members of the supportive network are family, friends and health care providers (Dunbar‐Jacob et al ., 2000; Carson & Voorhees, 2001; Kyngäs & Rissanen, 2001). Family variables, such as a positive family climate and open relationships between the family members, provide valuable support for adolescents.…”

Section: Introductionmentioning

confidence: 99%

“…While parents continue to play the role of primary caregivers, friends and peers provide emotional support by accepting their ill friend with his or her physical limitations. Many chronically ill adolescents feel different from, and socially more restricted than, their same‐age peers (Seiffge‐Krenke, 1996; Tijhuis et al ., 1998; Graetz et al ., 2000; Carson & Voorhees, 2001). The emotional support from friends is largely oriented towards helping the adolescent to feel accepted.…”

Section: Introductionmentioning

confidence: 99%

Support network of adolescents with chronic disease: Adolescents’ perspective

Kyngäs

2004

Nursing & Health Sciences

110

100

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The purpose of this study was to describe the support network of adolescents with a chronic disease from their own perspective. Data were collected by interviewing adolescents with asthma, epilepsy, juvenile rheumatoid arthritis (JRA) and insulin-dependent diabetes mellitus (IDDM). The sample consisted of 40 adolescents aged between 13 and 17 years. Interview data were examined using content analysis. Six main categories were established to describe the support network of adolescents with a chronic disease: parents, peers, school, health care providers, technology and pets. Peers were divided into two groups: fellow sufferers and peers without a chronic disease. At school, teachers, school nurses and classmates were part of the support network. Health care providers included nurses, physicians and physiotherapists. Technology was also part of the support network and included four techniques that may be used to communicate: computers, mobile telephones, television and videos. The results provided a useful insight into the social network of adolescents with chronic disease and serve to raise awareness of the problems and opinions experienced by adolescents with this condition.

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“…De um modo geral, os adolescentes têm dificuldade em assumir seu próprio cuidado. São necessários reforços positivos e orientações direcionadas para uma melhor compreensão de sua doença (34) . Para que um programa de educação seja efetivo é importante detectar as necessidades individuais de cada paciente, principalmente dos adolescentes (35,36) .…”

Section: Educação Do Paciente Com Aijunclassified

Reabilitação em artrite idiopática juvenil

Bueno

Júnior

Medeiros

et al. 2007

Rev. Bras. Reumatol.

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Introdução e objetivos: a artrite idiopática juvenil (AIJ) pode acarretar em seu curso clínico incapacidades físicas permanentes em crianças e adolescentes. Este estudo teve como objetivos a descrição das diversas modalidades de reabilitação, desde a avaliação até a prescrição de exercícios, bem como a elaboração de um guia prático de reabilitação para pacientes com AIJ. Fonte de dados: a pesquisa foi realizada nas bases de dados do Medline e do Lilacs. Na discussão dos diversos tópicos, foi considerada a experiência dos especialistas em reumatologia pediátrica e reabilitação do Lar Escola São Francisco e da Universidade Federal de São Paulo. Resumo: os pacientes com AIJ podem apresentar dor e limitação da amplitude de movimento articular e conseqüente diminuição da capacidade física, com comprometimento das capacidades aeróbia e anaeróbia. Não só o comprometimento articular, mas as disfunções cardíacas e autonômicas colaboram nesse processo, tendo como conseqüência uma baixa capacidade de executar atividades esportivas e atividades de vida diárias (AVDs). O American College of Rheumatology recomenda 30 minutos de atividade com intensidade moderada de duas a três vezes por semana. A hidroterapia está relacionada a uma maior aderência ao tratamento, além de auxiliar na diminuição da percepção dolorosa e dificuldade apresentada na realização das AVDs. As outras modalidades de reabilitação, tais como massagem, educação, proteção articular, conservação de energia e órteses, também são discutidas nesta revisão. Conclusão: há poucos estudos na literatura sobre reabilitação em crianças com AIJ, especialmente no que se refere a temas como prescrição adequada de exercícios, cargas, número de séries e repetições, bem como qual a melhor opção a ser utilizada -solo ou piscina. Acreditamos que mais estudos científicos são necessários para que possamos prescrever adequadamente os diversos tipos de exercícios.Palavras-chave: reabilitação, fisioterapia, artrite idiopática juvenil.

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Adult Pediatric Patients

Cited by 15 publications

References 13 publications

Transitioning From Pediatric to Adult Health Care: Dropping Off the Face of the Earth

Transitioning From Pediatric to Adult Health Care: Dropping Off the Face of the Earth

Support network of adolescents with chronic disease: Adolescents’ perspective

Reabilitação em artrite idiopática juvenil

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