Adult Congenital Heart Disease: the Patient's Perspective

Verstappen, Amy; Pearson, D; Kovacs, Adrienne H.

doi:10.1016/j.ccl.2006.08.004

Cited by 40 publications

(32 citation statements)

References 23 publications

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“…The theme of being different from healthy peers emerges in qualitative studies on adults with CHD. These feelings are often followed by attempts to feel normal and to be perceived as being normal by others [34][35][36][37][38] , potentially followed by feelings of ambivalence, denial of the condition and efforts to exceed their physical boundaries [34] .…”

Section: Reviewmentioning

confidence: 99%

Update on psychological functioning in adults with congenital heart disease: a systematic review

Callus

Quadri

Ricci

et al. 2013

Expert Review of Cardiovascular Therapy

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The population of adults with congenital heart disease is increasing due to advancements in cardiology and cardiac surgery. Many patients face medical complications and psychosocial difficulties; however, it is not yet clear whether there is a direct relationship between medical status and the psychological functioning of these patients. This systematic review of the relevant literature is an attempt to: provide a comparison between the population of adults with congenital heart disease, the healthy reference population and similar cardiac populations when it comes to psychological functioning; explore the relationship between medical status/cardiac condition and psychological functioning; and identify the predictors of psychological distress in this population.

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Section: Reviewmentioning

confidence: 99%

Update on psychological functioning in adults with congenital heart disease: a systematic review

Callus

Quadri

Ricci

et al. 2013

Expert Review of Cardiovascular Therapy

View full text Add to dashboard Cite

show abstract

“…These patients might also have problems at work as their requests can be met with skepticism or accusations of dishonesty (Verstappen et al, 2006). …”

Section: Congenital Heart Disease: Incidence Psychosocial Aspects Anmentioning

confidence: 99%

Elements of psychocardiology in the psychosocial handling of adults with congenital heart disease

2010

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When it comes to the role of the clinical psychology in the cardiac settings, or psychocardiology, there is often a focus on acquired cardiac illnesses in the rehabilitation settings. However, the increase of adults with congenital heart disease due to technological advances in cardiology and cardiac surgery have created a new emergency. It is thus necessary to reflect upon the elements of psychocardiology adapting them to this new population, also when it comes to interventional hospital settings of cardiology and cardiac surgery. This perspective article is an effort in this direction.

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“…[3][4][5][6][7] In addition, the majority of patients who currently receive specialized congenital cardiac services experience considerable gaps in care, including care interruptions that often begin in late adolescence and extend until the onset of an acute health care crisis. 8,9 The reasons for such gaps are multifactorial, but likely include limitations in patients' and/or affected family members' understanding of lifelong congenital cardiac care (LLCCC) issues. 10 Recognition of the need for LLCCC is the first step in preparation of the child and family for continuing care within an adult-oriented health care system.…”

mentioning

confidence: 99%