Adult-Acquired Traumatic Brain Injury: Existential Implications and Clinical Considerations

Patterson, Faith; Staton, A. Renee

doi:10.17744/mehc.31.2.1p42572p01435173

Cited by 15 publications

(6 citation statements)

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“… 2 3 15 30 Disruption of life narratives, including those resulting from loss of memory or lost emotional connections with people and things from the time prior to injury have also been identified as component parts of changes in self-identity following TBI. 3 8 15 Already interventions exist that could potentially have some positive influence over the reconstruction of self-identity after injury, 8 31 32 but again, some way of quantifying changes in self-identity is required in order to test the specific effects of such interventions.…”

Section: Discussionmentioning

confidence: 99%

Establishing a person-centred framework of self-identity after traumatic brain injury: a grounded theory study to inform measure development

et al. 2014

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ObjectiveTo develop a theoretically sound, client-derived framework to underpin development of a measure reflecting the impact of traumatic brain injury (TBI) on a person's self-identity.DesignGrounded theory, based on transcription of audio recordings from focus group meetings with people who have experienced TBI, analysed with constant comparative methods.Setting8 different urban and rural communities in New Zealand.Participants49 people (34 men, 15 women), 6 months to 36 years after mild-to-severe TBI.ResultsThe central concept emerging from the data was that of desiring to be or having lost a sense of being an integrated and valued person. The three main subthemes were: (1) having a coherent, satisfying and complete sense of oneself, (2) respect, validation and acceptance by others and (3) having a valued place in the world.ConclusionsThis study reinforces the notion that change in self-identity is an important aspect of life after TBI, and provides information on what this concept means to people with TBI. In order to scientifically evaluate relationships between self-identity and other aspects of health (eg, depression, quality of life), and to test the effect of interventions to address problems with self-identity after TBI, a quantitative tool for evaluation of this construct is required. Themes from this research provide a foundation for the development of a measure of self-identity grounded in the language and experience of people with TBI.

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Section: Discussionmentioning

confidence: 99%

Establishing a person-centred framework of self-identity after traumatic brain injury: a grounded theory study to inform measure development

et al. 2014

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“…Here, preliminary work on the life thread model [55], identity-oriented goal training [56] and mental health counselling to address existential crises resulting from TBI [57] may be useful when developing strategies to address these types of problems in clinical settings.…”

Section: Discussionmentioning

confidence: 99%

Experience of recovery and outcome following traumatic brain injury: a metasynthesis of qualitative research

Levack

Kayes

Fadyl

2010

Disability and Rehabilitation

200

140

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“…Analogies have been drawn with the change in identity resulting from chronic illness or other traumatic life events. Change in self-identity following TBI has been likened to a boundary experience (Patterson & Staton, 2009), a state of liminality (Muenchberger et al, 2008), and a biographical disruption (Conneeley, 2002;Muenchberger et al). Charmaz (1995) has written on how bodily changes might prompt the changing of identity goals, which she termed "identity trade-offs" (p. 670).…”

Section: Overview Of Findingsmentioning

confidence: 99%

Self-Reflective Meaning Making in Troubled Times

2014

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Our aim with this article is to clarify the concept of change in self-identity following traumatic brain injury (TBI). We used concept analysis methodology-predominantly concept clarification. We identified 110 articles using a systematic literature search, and used critical appraisal, content analysis, and analytical questioning to explore attributes and boundaries. A reported change in self-identity is the ultimate expression of a variety of cognitive, psychological, and social sequelae of TBI. We present an integrative model of this process, identifying three potential levels of change: (a) component parts (egocentric self, sociocentric self, and "identity as shared with others"); (b) integral processes (self-awareness and expression via meaningful occupation and narratives); and (c) whole-system disruption. Change in self-identity after TBI is a highly individualistic process. The driver of this process is "self-reflective meaning making," giving a purpose and direction in life, providing motivation and goals for future behavior.

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Adult-Acquired Traumatic Brain Injury: Existential Implications and Clinical Considerations

Cited by 15 publications

References 15 publications

Establishing a person-centred framework of self-identity after traumatic brain injury: a grounded theory study to inform measure development

Establishing a person-centred framework of self-identity after traumatic brain injury: a grounded theory study to inform measure development

Experience of recovery and outcome following traumatic brain injury: a metasynthesis of qualitative research

Self-Reflective Meaning Making in Troubled Times

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