Adolescents With Craniofacial Anomalies: Psychosocial Adjustment as a Function of Self-Concept

Bilboul, Monica J.; Pope, Alice W.; Snyder, Heather T.

doi:10.1597/05-084r.1

Cited by 9 publications

(9 citation statements)

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“…In each case, participants with cleft lip and palate reported the highest impact, which may reflect the greater effect socially of having a visible difference combined with possible speech and hearing concerns. Others have also found that cleft-related differences may have restricted the capacity for the individual to fit in with their peers (Liossi, 2003; Bilboul et al, 2006; Berger and Dalton, 2011).…”

Section: Discussionmentioning

confidence: 99%

“…A person with a cleft may experience episodes of teasing and bullying (Hunt et al, 2006), stigma and social exclusion, and perceived or actual negative responses of other people (Rumsey et al, 2004). This may influence their self-perception and how they believe others perceive them (Mendelson et al, 2001) and place them at higher risk of psychosocial problems in the following areas: low self-esteem and self-concept (Endriga and Kapp-Simon, 1999; Pisula et al, 2014), appearance dissatisfaction (Marcusson et al, 2002; Feragen and Borge, 2010), shyness and social isolation (Bilboul et al, 2006; Kramer et al, 2009), and anxiety and depression (Ramstad et al, 1995; Pinquart and Shen, 2010; Roberts and Mathias, 2012).…”

Section: Introductionmentioning

confidence: 99%

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The Psychosocial Impact of Cleft in a Western Australian Cohort Across 3 Age Groups

Nicholls

Harper²,

Persson

et al. 2018

The Cleft Palate-Craniofacial Journal

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The Psychosocial Impact of Cleft in a Western Australian Cohort Across 3 Age Groups

Nicholls

Harper²,

Persson

et al. 2018

The Cleft Palate-Craniofacial Journal

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show abstract

“…However, again, findings are contradictory. Some studies have found lowered self-concepts among this group (Bilboul, Pope, & Snyder, 2006; Turner et al, 1997), while others have found average or above average self-concept scores (Feragen et al, 2010; Kapp-Simon, Simon, & Kristovich, 1992; Leonard, Brust, Abrahams, & Sielaff, 1991).…”

Section: Introductionmentioning

confidence: 87%

‘I want the way I look to matter less’: A case study describing psychological aspects of changing appearance

Tevik

Feragen

2014

Clin Child Psychol Psychiatry

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There is a need for a better understanding of psychological processes when appearance is changed dramatically through surgery. The aim of this article is to shed light on how complex the process of changing appearance can be, and highlight the importance of including a psychological perspective to the treatment offered to children and adolescents with a visible condition affecting appearance. In order to illustrate some psychological aspects involved in a change of appearance, the case study of a young woman born with a cleft palate is presented. Through orthognathic surgery, an operation that changes the relationship and position of the upper and lower jaw, this young woman experienced a dramatic change in appearance. As a result of a new attractive appearance, she experienced new and different social interactions, which challenged her in surprising ways. Unexpectedly, an unknown past of childhood sexual abuse was triggered by romantic experiences due to her new appearance, and she developed signs of post-traumatic stress disorder (PTSD) and depression. This article presents central themes from the therapy and clinical interventions, which were mainly based on a solution-oriented and cognitive framework, and considers how the change of appearance affected the way this young woman behaved, felt and thought about herself after the surgery. Clinical implications of the case are discussed and their relevance to another research field - dramatic weight loss among those suffering from obesity - is suggested.

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“…Having a cleft lip and/or cleft palate (CL/P) comes with challenges, which vary depending on the type of cleft and its severity (Sischo and Broder, 2011;Peres et al, 2013). Children with a CL/P have to cope with visible differences in facial appearance, which can affect their general well-being (Broder, 1994;Bilboul et al, 2006;Rumsey and Harcourt, 2007). These children see multiple specialists for monitoring growth and undergo a series of complex treatments.…”

Section: Introductionmentioning

confidence: 99%

Quality of Life Among Dutch Children With a Cleft Lip and/or Cleft Palate: A Follow-Up Study

Nolte

Bos

Prahl

2019

The Cleft Palate-Craniofacial Journal

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Objectives: The aims of the present study were to examine the impact of a cleft lip and/or palate on the oral health-related quality of life (OHRQoL) in children, to examine differences between the OHRQoL scores reported by children and their parents, and to examine differences between the scores over 4 years for a subgroup of children. Design: Prospective blinded questionnaires. Setting: All patients were recruited from a university clinic at Academisch Centrum Tandheelkunde Amsterdam. Participants: The sample consisted of 170 children (age between 8 and 18 years) and their parents. Interventions: All participants completed the validated Dutch version of the Child Oral Health Impact Profile (COHIP) questionnaire. Main Outcome Measures: The OHRQoL of children with a cleft lip and/or cleft palate (CL/P) was measured. Results: Parents scored significantly higher than children on the subscale “Oral Symptoms.” On the subscale “Functional Well-Being,” parents scored significantly lower than children. Females scored significantly higher with regard to the subscales “Functional Well-Being” and “School” in comparison to males. Children with a bilateral CL/P scored significantly lower on the subscale “Functional Well-Being” and “School” than other subgroups. Children reported a decrease in “Oral Symptoms” and “Emotional Well-Being” over time. Conclusions: Children and their parents both reported high OHRQoL overall with some areas of difference. Females reported a better OHRQoL on “Functional Well-Being” and “School.” Children with the more complex bilateral CL/P had a significantly lower OHRQoL score on “Functional Well-Being,” “School,” and overall COHIP.

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Adolescents With Craniofacial Anomalies: Psychosocial Adjustment as a Function of Self-Concept

Abstract: Adolescent dissatisfaction with appearance is linked to psychosocial adjustment problems only when it is part of a negative overall view of the self.

Cited by 9 publications

References 0 publications

The Psychosocial Impact of Cleft in a Western Australian Cohort Across 3 Age Groups

The Psychosocial Impact of Cleft in a Western Australian Cohort Across 3 Age Groups

‘I want the way I look to matter less’: A case study describing psychological aspects of changing appearance

Quality of Life Among Dutch Children With a Cleft Lip and/or Cleft Palate: A Follow-Up Study

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