Adolescents with chronic disease and social media: a cross-sectional study

Nardi, Laura De; Trombetta, Andrea; Ghirardo, Sergio; Genovese, Maria Rita Lucia; Barbi, Egidio; Taucar, Valentina

doi:10.1136/archdischild-2019-317996

Cited by 22 publications

(18 citation statements)

References 27 publications

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“…One Italian study that studied patients with 4 conditions, including IBD and T1D, found that 98% expressed a need to share their medical condition on social media [ 14 ]. However, another study of patients with connective tissue disorders noted only 17% revealed their condition on social media [ 15 ].…”

Section: Discussionmentioning

confidence: 99%

“…The use of private groups on Facebook helps assuage some concerns about privacy. A large number of patients used Facebook to search for friends with the same disease or community support groups to find others who were going through the same thing and could understand their feelings [ 14 ]. These online social connections might be particularly important for patients with IBD as some researchers have postulated that the embarrassment of frequent bathroom trips or diarrhea might lead to perceived stigma and social withdrawal [ 12 ].…”

Section: Discussionmentioning

confidence: 99%

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Contrasting Social Media Use Between Young Adults With Inflammatory Bowel Disease and Type 1 Diabetes: Cross-sectional Study

Ranjanala¹,

Wilson²,

Mitchell³

et al. 2022

JMIR Pediatr Parent

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Background Social media is used by young adult patients for social connection and self-identification. Objective This study aims to compare the social media habits of young adults with inflammatory bowel disease (IBD) and type 1 diabetes (T1D). Methods This is a cross-sectional study of subjects from Boston Children’s Hospital outpatient IBD and diabetes clinics. Patients above 18 years of age were invited to complete a brief anonymous survey, which asked about the various ways they use several social media platforms. Results Responses were received from 108 patients (92.5% response rate), evenly split across disease type. We found that 83% of participants spent at least 30 minutes per day on social media, most commonly on Instagram and Facebook. Although the content varied based on the platform, patients with IBD posted or shared content related to their disease significantly less than those with T1D (23% vs 38%, P=.02). Among Instagram users, patients with IBD were less likely to engage with support groups (22% vs 56%, P=.04). Among Twitter users, patients with IBD were less likely to seek disease information (77% vs 29%, P=.005). Among Facebook users, patients with IBD were less likely to post about research and clinical trials (31% vs 65%, P=.04) or for information seeking (49% vs 87%, P=.003). Patients with IBD were also less likely to share their diagnosis with friends or family in person. Conclusions Young adults with IBD were less willing to share their diagnosis and post about or explore the disease on social media compared to those with T1D. This could lead to a sense of isolation and should be further explored.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Contrasting Social Media Use Between Young Adults With Inflammatory Bowel Disease and Type 1 Diabetes: Cross-sectional Study

Ranjanala¹,

Wilson²,

Mitchell³

et al. 2022

JMIR Pediatr Parent

View full text Add to dashboard Cite

show abstract

“…On the other hand, the presence of intense virtual activity, which facilitated relationships, could reproduce some dynamics of conflict and competition among peers, explaining the similar proportion of adolescent with stable relationship with peers between the two groups [ 18 ]. Finally, a different role of social media use could be postulated due to its relevant role in adolescents with chronic illness [ 19 ] . It can be assumed that children with SSD were more comfortable during isolation in the context of remote school lessons and more intense use of social media than peers with a different lifestyle, more focused on outdoor activities and face-to-face relationships, thus explaining the higher proportion of patients having improved their relationships with peers.…”

Section: Discussionmentioning

confidence: 99%

Impact of the first COVID-19 lockdown on the relationship with parents and peers in a cohort of adolescents with somatic symptom disorder

et al. 2022

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To investigate the coping strategies of a group of adolescents with somatic symptom disorder compared to non-somatic symptom disorder peers during the COVID-19 related lockdown.This cross-sectional study is the second part of a previously published study showing an improved trend in depression and anxiety in a group of patients with somatic symptom disorder compared to non-somatic symptom disorder peers. An anonymous semi-structured survey was distributed to two groups of Italian adolescents to measure the impact of quarantine on their daily life and coping strategies.We recruited 115 adolescents, 58 (50.4%) mean age 15.3, with a recent diagnosis of somatic symptom disorder and 57 (49.6%) mean age 15.8, control peers.The aim of this study was to detect differences in coping strategies and relationships with parents and peers, during the lockdown period in a group of adolescents with somatic symptom disorder and low disease burden when compared with a non-somatic symptom disorder group.The relationship with parents significantly worsened in 4 (6.9%) of adolescents with somatic symptom disorder compared to 12 (21.1%) adolescents in the non-somatic symptom disorder group (p = 0.048). The relationship with peers significantly improved in 13 (22.4%) of adolescents with symptom disorder versus 3 (5.3%) of peers of the non- somatic symptom disorder group (p = 0.013).Adolescents with somatic symptom disorder with a low burden of physical symptoms experienced less deterioration in their relationships with parents and peers than the non-somatic symptom disorder group.

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“…However, missing from the discussion is whether AYA with IBD also experience loneliness. Loneliness is an important issue raised by adolescents with chronic diseases [17], and meta-analytic findings show that AYA with medical conditions are vulnerable to loneliness [18,19]: AYA talk about feelings of disconnection from peers, that such disconnection impacts their quality of life, and is part of their poor mental health. To date, however, there has been no published work on loneliness among AYA with IBD.…”

Section: Ibd and Mental Healthmentioning

confidence: 99%

Depression, anxiety, and loneliness among adolescents and young adults with IBD in the UK: the role of disease severity, age of onset, and embarrassment of the condition

et al. 2020

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Purpose Adolescents and young adults (AYA) with Inflammatory Bowel Disease (IBD) report higher depressive symptoms and anxiety compared to healthy controls, with disease severity and abdominal pain being important factors. In the current study, building on what young people had told us in our previous work, we examined whether embarrassment of the condition, social self-efficacy, and friendship quality mediated the relationship between abdominal pain and disease severity, and mental health/well-being. We also included loneliness as a component of well-being. Methods Data on depression, anxiety, loneliness, friendship quality, social self-efficacy, and disease embarrassment were collected from 130 AYA with IBD ages 14–25 years; data on disease severity and abdominal pain were taken from their medical records. Structural Equation Modeling (SEM) was used to test the relationships between the variables. Results Using SEM, we established that higher IBD disease activity negatively impacted how AYA felt about their friendships and how embarrassed they were about their condition; embarrassment then influenced reports of mental health, including loneliness. Abdominal pain, disease onset, and social self-efficacy directly predicted internalising problems. Conclusion In this sample of 14–25-year-old patients with IBD, specifics about the disease (severity and pain) predicted poorer mental health, suggesting discussion of mental health should be part of the clinical dialogue between patient and consultant. In addition, embarrassment about their condition increased depression, anxiety, and loneliness, mediating the relationship between disease severity and well-being. Thus, it is important to consider how perceived stigma affects those with chronic illness, and those issues should be explored in clinic.

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Adolescents with chronic disease and social media: a cross-sectional study

Cited by 22 publications

References 27 publications

Contrasting Social Media Use Between Young Adults With Inflammatory Bowel Disease and Type 1 Diabetes: Cross-sectional Study

Contrasting Social Media Use Between Young Adults With Inflammatory Bowel Disease and Type 1 Diabetes: Cross-sectional Study

Impact of the first COVID-19 lockdown on the relationship with parents and peers in a cohort of adolescents with somatic symptom disorder

Depression, anxiety, and loneliness among adolescents and young adults with IBD in the UK: the role of disease severity, age of onset, and embarrassment of the condition

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