Adolescents with Cancer and Occupational Deprivation in Hospital Settings: A Qualitative Study

Miralles, Pedro Moruno; Ramón, Nieves Cedenilla; Valero, Sandra Aranda

doi:10.1016/j.hkjot.2016.05.001

Cited by 15 publications

(13 citation statements)

References 19 publications

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“…Creative Commons License 4.0 © SA Journal of Occupational Therapy over and above concerns about the illness, treatment and short-or longer-term outcomes, the child faces disruption in participation in meaningful everyday activities, contact with family and friends as well as schooling 4,5,6 all of which could affect their health-related quality of life (HRQoL) 6 .…”

Section: Issn On-line 2310-3833mentioning

confidence: 99%

“…This impacts negatively on the occupational needs of the children and this temporary disturbance of their occupational performance can be aligned with occupational disruption 24 . Occupational therapists need to consider this occupational disruption from the perspective of the hospital environment, the illness and the cancer treatment, as well as how the disruption may singly or collectively affect the HRQoL of these children 4,25 .…”

Section: Literature Reviewmentioning

confidence: 99%

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The Health-Related Quality of Life of South African Paediatric In-patients with Cancer

Tembe

Franzsen

Koch

et al. 2021

S. Afr. j. occup. ther.

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Introduction: In the South African public health system, children with cancer are admitted to specialised oncology units for the duration of their treatment. These units therefore become the children's temporary living environment for varying periods of time, which may disrupt their participation in daily activities and consequently their health-related quality of life (HRQoL). Aim: The purpose of the study was to determine the HRQoL of children admitted with cancer from both their own and their parents' perspective. Methodology: A quantitative, descriptive, cross-sectional study was conducted at a tertiary hospital in Gauteng with a specialist oncology unit. Structured interviews were conducted with the children aged 8-12 years using the PedsQL TM Generic Core Scale (4.0) and Cancer Module (3.0). The parent's perspective was explored using the Parents proxy forms of both instruments. Results: Twenty-five children and their parents participated in the study. Most children in the sample were males with Leukaemia. All children and parents reported the children's functioning at an intermediate level which suggests that these children may be at risk for HRQoL deficits. Children's HRQoL was impacted by psychosocial functioning and change in schooling on the PedsQL TM Generic Core Scale (4.0), while parents felt physical functioning played a greater role in determining the child's HRQoL. On the PedsQL TM Cancer Module (3.0) both the children and parents felt that 'procedural anxiety' had an effect, although from the parents' perspective, 'worry' accounted for the greatest deficits in their children's HRQoL. Conclusion:This study indicates that occupational disruption is experienced by children during the long-term treatment of cancer. It is suggested that occupational therapists use available instruments to monitor and provide support for the effect of an impaired HRQoL.

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Section: Issn On-line 2310-3833mentioning

confidence: 99%

Section: Literature Reviewmentioning

confidence: 99%

The Health-Related Quality of Life of South African Paediatric In-patients with Cancer

Tembe

Franzsen

Koch

et al. 2021

S. Afr. j. occup. ther.

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“…Due to decreased cancer-related mortality, there has been a move towards improved QoL (Miralles, Ramón, Valero, 2016). Occupational therapy in practice affects the QoL (Berg, 2009); participation in valuable occupations allows the person to experience recognition of his/her identity; participation in such performances indicates the value of a person and gives meaning to his/her life (Liddle, McKenna, 2000).…”

Section: Introductionmentioning

confidence: 99%

Occupational Performance in Children Aged 6 to 13 Years with Cancer

2018

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Background and Objectives: Cancer survival rate increased during the last 3 decades, following medical advances and improvement of therapeutic protocols to treat children with cancer. Contribution to childhood activities is essential to the growth and development of children, regardless of their ability and disability. However, there is no information about the problems and requirements of childhood activities in children with cancer undergoing cancer therapy. The purpose of this study is to provide information about the occupational performance needed in children with cancer. Methods: A cross-sectional study was conducted to evaluate high priority problems in occupational performance in children with cancer. Occupational performance needs and priorities were determined by a semi-constructed interview using the Canadian occupational performance measure (COPM). The obtained data were encoded and statistically analyzed. Results: Based on the problems noted by the children with cancer, a total of 141 problems were selected in the occupational performance areas out of which 37 codes were extracted. Results of the current study indicated that based on COPM, among 3 main occupational performance areas, the most problematic area belonged to self-care (49.64%), then productivity and leisure time (26.95% and 23.40%, respectively). Conclusion: Results of previous as well as the current studies indicated that children with cancer, due to the complications of the disease and side-effects of the therapies, face some functional problems in their daily life activities, which emphasizes the need for occupational therapy practices in order to improve the patients' QoL.

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“…That is, deprivation is the result of forces external to the person, such as other individuals; or bureaucratic, cultural, political and economic systems (OTA, 2016;WFOT, 2006;Whiteford, 2000). More recently, it has been suggested that effects of occupational deprivation may include poor health (Miralles et al, 2016), income loss, capacity atrophy and entrenched social exclusion. Those affected tend to be from vulnerable populations, including but not limited to: refugees and asylum seekers (Morville and Erlandsson, 2013;Whiteford, 2005); unemployed or underemployed persons; prisoners (Crabtree et al, 2016); people from migrant backgrounds undergoing renal dialysis and those living in conflict zones (McElroy, 2012).…”

Section: Introductionmentioning

confidence: 99%

Combatting occupational deprivation and advancing occupational justice in institutional settings: Using a practice-based enquiry approach for service transformation

Whiteford

Jones

Weekes

et al. 2019

British Journal of Occupational Therapy

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Introduction Occupational deprivation is a risk for residents of institutions. This is problematic at several levels: it can cause diminution of individual capacities; such environments pose philosophical and practical challenges for occupational therapists and the erosion of human rights can be an issue. Occupational therapists in an Australian forensic mental health setting ‘reclaimed’ occupation-centred practice, committed to occupational justice and tackled the experience of occupational deprivation of patients through utilising a practice-based enquiry approach. Method A community of practice scholars used a practice-based enquiry approach – a type of action methods research – involving iterative cycles of data collection, analysis, critique and implementation of practice innovations. Findings Through the practice-based enquiry process, participants’ practice became more occupation-centred, based and focused, resulting in: the creation of more opportunities for patients, which combatted occupational deprivation and increased potential for community reintegration; enhanced professional satisfaction and identity; and increased institutional ‘valuing’ of the occupational therapy service. Conclusion Ameliorating occupational deprivation can be achieved through becoming occupation-centred and embracing a stated commitment to occupational justice in the challenging practice setting of a forensic hospital. The use of the deeply reflective process of practice-based enquiry was pivotal to this shift in focus for the group of occupational therapists who participated in this study and also contributed to enhanced practitioner satisfaction, identity, autonomy and confidence.

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Adolescents with Cancer and Occupational Deprivation in Hospital Settings: A Qualitative Study

Cited by 15 publications

References 19 publications

The Health-Related Quality of Life of South African Paediatric In-patients with Cancer

The Health-Related Quality of Life of South African Paediatric In-patients with Cancer

Occupational Performance in Children Aged 6 to 13 Years with Cancer

Combatting occupational deprivation and advancing occupational justice in institutional settings: Using a practice-based enquiry approach for service transformation

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