Adolescents with Active or Inactive Epilepsy or Asthma: A Comparison of Quality of Life

Austin, Joan K.; Huster, Gertrude A.; Dunn, David W.; Risinger, Michael W.

doi:10.1111/j.1528-1157.1996.tb00558.x

Cited by 178 publications

(143 citation statements)

References 32 publications

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“…Interestingly, these authors also found that low levels of epilepsy knowledge were associated with higher levels of psychopathology. Adolescents with epilepsy have also been found to have poorer quality of life compared to those with chronic conditions such as diabetes [7], and asthma [8]. Moreover, compared to a healthy control group, YPWE were found to have a significantly higher incidence of attention deficit hyperactivity disorder, generalized anxiety disorder, major depression, separation anxiety, social phobia, tics and oppositional defiant disorder [9].…”

Section: Introductionmentioning

confidence: 99%

A randomized controlled trial of a manual-based psychosocial group intervention for young people with epilepsy [PIE]

Dorris

Broome

Wilson

et al. 2017

Epilepsy & Behavior

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We conducted an exploratory RCT to examine feasibility and preliminary efficacy for a manual-based psychosocial group intervention aimed at improving epilepsy knowledge, self-management skills, and quality of life in young people with epilepsy. Method: Eighty-three participants (33:50 m/f; age range 12-17 years) were randomized to either the treatment or control group in seven tertiary paediatric neuroscience centres in the UK, using a wait-list control design. Participants were excluded if they reported suicidal ideation and/or scored above the cut off on mental health screening measures, or if they had a learning disability or other neurological disorder. The intervention consisted of six weekly 2-hour sessions using guided discussion, group exercises and role-plays facilitated by an epilepsy nurse and a clinical psychologist. Results: At three month follow up the treatment group (n = 40) was compared with a wait-list control group (n = 43) on a range of standardized measures. There was a significant increase in epilepsy knowledge in the treatment group (p = 0.02). Participants receiving the intervention were also significantly more confident in speaking to others about their epilepsy (p = 0.04). Quality of life measures did not show significant change. Participants reported the greatest value of attending the group was: Learning about their epilepsy (46%); Learning to cope with difficult feelings (29%); and Meeting others with epilepsy (22%). Caregiver and facilitator feedback was positive, and 92% of participants would recommend the group to others. Conclusion: This brief psychosocial group intervention was effective in increasing participants' knowledge of epilepsy and improved confidence in discussing their epilepsy with others. We discuss the qualitative feedback, feasibility, strengths and limitations of the PIE trial.

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Section: Introductionmentioning

confidence: 99%

A randomized controlled trial of a manual-based psychosocial group intervention for young people with epilepsy [PIE]

Dorris

Broome

Wilson

et al. 2017

Epilepsy & Behavior

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“…These findings are consistent with past literature supporting the relationship between active seizures and poorer academic performance. Austin and colleagues (37) found that children with active epilepsy had lower scores on school progress and intellectual self-concept than children with inactive epilepsy. Intractable epilepsy in children with onset before age two has been associated with poor cognitive functioning (38).…”

Section: Discussionmentioning

confidence: 99%

Academic performance in children with new-onset seizures and asthma: A prospective study

McNelis

Dunn

Johnson

et al. 2007

Epilepsy & Behavior

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The study purpose was to compare teacher ratings of academic performance (TRP) over 24 months between children with new-onset seizures (N = 121) and new-onset asthma (N = 54) ages 4 to 14 years. At each data collection point (baseline, 12 months, 24 months), children with seizures were placed into two groups according to their recurrent seizure status (yes/no) during that period. Longitudinal linear mixed models were used to explore differences between the asthma group and the two seizure groups and to identify if differences in TRP in children with seizures were associated with age, gender, or use of medication. In the seizure sample, scores for children in both groups (with and without recurrent seizures) initially declined at 12 months; however, at 24 months, children who did not have recurrent seizures improved while children who continued to have recurrent seizures declined. There was a trend for younger children to decline more than older children. Keywords academic achievement; pediatric; epilepsy; school; teacher ratings Children with chronic seizures experience more academic problems than healthy children or children with other chronic health conditions, such as asthma (1-6), and also make less academic progress than would be expected for their age and intelligence quotient (IQ) level, (7,8). In longitudinal studies, children with chronic epilepsy failed to show improvement in academic performance over time and, despite an improvement in their seizure conditions, continued to perform worse than a healthy control group (9) and an asthma comparison sample (10).Correspondence to: Angela M. McNelis. Publisher's Disclaimer: This is a PDF file of an unedited manuscript that has been accepted for publication. As a service to our customers we are providing this early version of the manuscript. The manuscript will undergo copyediting, typesetting, and review of the resulting proof before it is published in its final citable form. Please note that during the production process errors may be discovered which could affect the content, and all legal disclaimers that apply to the journal pertain. NIH Public Access Author ManuscriptEpilepsy Behav. Author manuscript; available in PMC 2008 March 1. Published in final edited form as:Epilepsy Behav. 2007 March ; 10(2): 311-318. NIH-PA Author ManuscriptNIH-PA Author Manuscript NIH-PA Author ManuscriptAlthough the majority of studies of children with chronic seizures have found academic difficulties, studies are less consistent in delineating factors predicting underperformance.Cross-sectional studies have demonstrated associations between academic performance and several demographic, neurological, and seizure-related variables, including age, gender, certain antiepileptic medications (AEDs), and seizure frequency. Younger age at onset of seizures has been associated with higher rates of academic underachievement (7,8,(11)(12)(13). Furthermore, earlier age at onset of recurrent seizures was found to be the strongest predictor of cognitive impairment, including acade...

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“…Many investigators have reported that people with frequent seizures are impaired in all aspects of health-related quality of life (HRQOL) (psychological, social, emotional, and physical) compared with healthy people without epilepsy [1,2]. The primary goals of epilepsy treatment are to enhance the patient's quality of life (QOL) and to control seizures.…”

Section: Introductionmentioning

confidence: 99%

Topiramate on the quality of life in childhood epilepsy

Jung

Kim

Hur

et al. 2011

Brain and Development

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Adolescents with Active or Inactive Epilepsy or Asthma: A Comparison of Quality of Life

Abstract: Youth with active epilepsy generally had the poorest QOL. Severe seizures and female sex were associated with more problems. Sex-severity interactions should be explored in future research.

Cited by 178 publications

References 32 publications

A randomized controlled trial of a manual-based psychosocial group intervention for young people with epilepsy [PIE]

A randomized controlled trial of a manual-based psychosocial group intervention for young people with epilepsy [PIE]

Academic performance in children with new-onset seizures and asthma: A prospective study

Topiramate on the quality of life in childhood epilepsy

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