Adolescents' Perceptions of Family Dynamics When a Sibling Has Chronic Pain

Gorodzinsky, Ayala Y.; Davies, W. Hobart; Tran, Susan T.; Medrano, Gustavo R.; Bernacki, Jessica M.; Burks, Lisa M.; Khan, Kimberly Anderson; Hainsworth, Keri R.; Weisman, Steven J.

doi:10.1080/02739615.2013.842460

Cited by 14 publications

(29 citation statements)

References 23 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Activities that might cause upset or overstimulation were commonly avoided, including entering spaces with many people or attending events with loud noises or music. In other studies, siblings of children with chronic pain described not being able to travel or go on vacation in relation to their sibling's limitations (Gorodzinsky et al, ). Major issues when leaving the habitual space in the home were mainly organizational (e.g.…”

Section: Discussionmentioning

confidence: 94%

Siblings of children with complex care needs: their perspectives and experiences of participating in everyday life

Woodgate

Edwards

Ripat

et al. 2016

Child

View full text Add to dashboard Cite

Siblings prioritized the relationship with their sisters and brothers with CCN in their life, and a great deal of their participation was chosen with their sibling in mind. Sibling-to-sibling relationships were distinct and meaningful and, as a result, participation was always done mindfully and with the family needs at the forefront. Nonetheless, clinicians caring for children with CCN must keep in mind the challenges that siblings of children with CCN experience and provide strategies to siblings that will help to promote their participation in everyday life.

show abstract

Section: Discussionmentioning

confidence: 94%

Siblings of children with complex care needs: their perspectives and experiences of participating in everyday life

Woodgate

Edwards

Ripat

et al. 2016

Child

View full text Add to dashboard Cite

show abstract

“…asthma) (48,62). Of these, we were unable to determine which themes were derived from our target sample in four studies (47,51,53,62), however, two of these reported no evidence of differences across diagnostic groups (47,51) suggesting that adolescents share many of the same experiences and concerns regardless of the type of illness. Fourth, the studies were conducted in 11 different countries, therefore it is likely that experiences of pain can be in uenced by geographical location, culture, race, and ethnicity (e.g.…”

Section: Limitationsmentioning

confidence: 94%

“…During times of pain worsening, adolescents describe di culties engaging in normal social experiences such as sports and going to friends' houses (33,35,41,51,53,54), and report impacts on school attendance, concentration and their engagement in school activities (33)(34)(35)39,46,50). Being able to participate in education and leisure activities were seen as features of normal adolescence, and an inability to do so may lead to feelings of being different, social isolation, and di culty building and maintaining an extensive social network (46,55-58).…”

Section: Loss Of Social Lifementioning

confidence: 99%

“…Adolescents faced issues with legitimacy with peers (38,51,60), teachers (38,50), siblings (53) and professionals (34,42,51) when there were no visible signs of pain or disease. Particularly among adolescents with CIPS, when professionals were unable to nd an organic cause to their condition and referred them to a psychologist, they felt that the pain was perceived to be imagined (34).…”

Section: Disbelieved and Stigmatisedmentioning

confidence: 99%

“…Third, the review included ve studies with pain syndromes other than JIA and CIPS (e.g. headache) (35,47,51,53,60) and two studies which included chronic conditions not specially related to pain (e.g. asthma) (48,62).…”

Section: Limitationsmentioning

confidence: 99%

See 2 more Smart Citations

Adolescents’ experiences of fluctuating pain in musculoskeletal disorders: A qualitative systematic review and thematic synthesis

Khanom¹,

orcid²,

McDonagh³

et al. 2020

Preprint

View full text Add to dashboard Cite

Background Adolescents with chronic musculoskeletal pain experience daily fluctuations in pain. Although not all fluctuations are bothersome, pain flares are a distinct type of symptom fluctuation with greater impact. Since literature on the experience of pain flares is non-existent, the aim of this review was to (i) synthesise the qualitative literature on adolescents’ experiences of fluctuating pain in musculoskeletal disorders in order to (ii) identify knowledge gaps to inform future research on pain flares. Methods Electronic databases (CINAHL, MEDLINE, EMBASE, PsycINFO), grey literature and reference lists were searched from inception to June 2018 for qualitative studies reporting adolescents’ experiences of pain. Comprehensiveness of reporting was assessed using the Consolidated Criteria for Reporting Qualitative Health Research. Studies were analysed using thematic synthesis.Results Of the 3787 records identified, 32 studies (n= 536) were included. Principal findings were synthesised under three key themes: 1) symptom experience, 2) disruption and loss, and 3) regaining control. The first theme (symptom experience) describes adolescent’s perception and interpretation of pain fluctuations. The second theme (disruption and loss) describes the physical, social and emotional constraints faced as a result of changes in pain. The third theme (regaining control) describes coping strategies used to resist and accommodate unpredictable phases of pain. Each theme was experienced differently depending on adolescents’ characteristics such as their developmental status, pain condition, and the duration of the pain experience.Conclusions Adolescents with chronic musculoskeletal pain live with a daily background level of symptoms which frequently fluctuate and are associated with functional and emotional difficulties. It was not clear whether these symptoms and challenges were experienced as part of ‘typical’ fluctuations in pain, or whether they reflect symptom exacerbations classified as ‘flares’. Further research is needed to explore the frequency and characteristics of pain flares, and how they differ from their typical fluctuations in pain. The review also highlights areas relating to the pain experience, symptom management and health service provision that require further exploration to support more personalised, tailored care for adolescents with chronic musculoskeletal pain.

show abstract

A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments

France,

Uny,

Turley

et al. 2023

Cochrane Database of Systematic Reviews

View full text Add to dashboard Cite

Adolescents' Perceptions of Family Dynamics When a Sibling Has Chronic Pain

Cited by 14 publications

References 23 publications

Siblings of children with complex care needs: their perspectives and experiences of participating in everyday life

Siblings of children with complex care needs: their perspectives and experiences of participating in everyday life

Adolescents’ experiences of fluctuating pain in musculoskeletal disorders: A qualitative systematic review and thematic synthesis

A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments

Contact Info

Product

Resources

About