Adolescent Siblings of Individuals With Intellectual Disabilities With and Without Comorbid Mental Health Problems: A Preliminary Comparison of Sibling Perceptions

Shivers, Carolyn M.; Kozimor, Laura Michelle

doi:10.1080/19315864.2016.1271484

Cited by 6 publications

(5 citation statements)

References 42 publications

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“…The findings relate to a Canadian study that found that siblings of children with ID more often presented with mental health disorders, including depression, than those without a sibling with ID [ 27 ]. In addition, it is further revealed by a previous study that siblings experience anxiety which results in hostility and anger towards the children with ID [ 28 ]. Furthermore, a previous study in the Netherlands found that siblings were more worried about taking over future responsibilities from their parents to care for their sibling with ID [ 29 ] which may contribute to maltreatment of their sibling.…”

Section: Discussionmentioning

confidence: 98%

Families’ Experiences on Safety Needs of Children with Intellectual Disability

Modula

Sumbane

2022

IJERPH

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Background: Children with intellectual disability (ID) are known to have a deficit in self-care, social interaction, and learning abilities. Families raising these children experience a range of difficulties that require supportive systems to meet the physical, psychological, and social safety rights of children with ID. The study explored the safety of children with ID through the experiences of their families in the rural Capricorn District of Limpopo Province, South Africa. Methods: In-depth individual interviews and focus group discussion were conducted with 26 families directly involved in raising the children with ID. An inductive thematic analysis of data on the experiences of raising children with ID was undertaken with the aid of ATLAS.ti 8 computer programme. Results: The study revealed that children with ID lack safety at home, schools, and day care centre environments due to a lack of active involvement by nuclear family members, neighbours, and communities, including interaction with their peers and professional service providers in facilities. Safety of children with ID is compromised through exploitation and injuries, leading to marginalisation as they feared further humiliation. Conclusion: The study highlighted that active involvement of family members, communities, and governmental and non-governmental organisations is crucial in ensuring safe environments for children with ID.

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Section: Discussionmentioning

confidence: 98%

Families’ Experiences on Safety Needs of Children with Intellectual Disability

Modula

Sumbane

2022

IJERPH

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“…These findings could be explained by devoting attention to the care and management that the specific type of disability requires. For both groups, caregiving met severe difficulties because of the complex and pervasive nature of the neuropsychiatric disorders and the multiple disabilities (48)(49)(50)(51)(52). These reasons could lead the siblings to not perceive many benefits of parentification.…”

Section: Discussionmentioning

confidence: 99%

Parentification, distress, and relationship with parents as factors shaping the relationship between adult siblings and their brother/sister with disabilities

Levante

Martis²,

Prete³

et al. 2023

Front. Psychiatry

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According to parentification theory, when the siblings of a brother/sister with disabilities assume parent-like duties, this role reversal is known as sibling-focused parentification. It has a significant impact on these siblings’ distress and the quality of their family relationships; 605 Italian adult siblings (19–26 years) of people with disabilities completed the online survey. Measures of siblings’ parentification, distress, quality of family relationships, social support, and perceived benefits of parentification were used. The hypothesized model aims to test, on the target sample, the distress and the quality of the relationship with parents as mediators on the interplay between the siblings’ parentification and their sibling relationship. Additionally, social support and perceived benefits of parentification as protective factors were considered. Results showed that the distress and the low quality of the relationship with parents negatively affected the interplay between the siblings’ parentification and the relationship with their own brother/sister with disabilities. Social support and the perceived benefits of parentification decreased the siblings’ distress levels; the perceived benefits of parentification served as a protective factor for the quality of the relationship with parents. Current findings extend the knowledge regarding the risk and protective factors of the siblings’ mental health when disability occurs in the family. Additionally, they inform family-based intervention programs, which should involve the whole family system for reducing distress and improving the wellbeing of siblings without disabilities.

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“…Affective quality and shared activities. When comparing siblings of children with IDD with those of TD children in families with exactly two children, siblings of children with IDD reported more anxiety toward their brothers or sisters (i.e., feeling tense, afraid, and worried) than comparison siblings (Shivers & Dykens, 2017), particularly when the child with IDD had co-occurring mental illness (Shivers & Kozimor, 2017). Comparisons between subgroups of siblings of children with IDD showed that self-reported relationship quality was better for siblings of youth with DS than with ASD, including higher social support from the brother or sister with IDD, fewer negative interchanges, and higher levels of overall relationship quality (Pollard et al, 2013).…”

Section: Sibling Relationship Quality and Family Functioning In Adole...mentioning

confidence: 99%

Family impact and adjustment across the lifespan: Siblings of individuals with intellectual and developmental disabilities.

Orsmond¹,

Long²

2021

APA Handbook of Intellectual and Developmental Disabilities: Clinical and Educational Implications: Prevention, Intervention, A

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Adolescent Siblings of Individuals With Intellectual Disabilities With and Without Comorbid Mental Health Problems: A Preliminary Comparison of Sibling Perceptions

Cited by 6 publications

References 42 publications

Families’ Experiences on Safety Needs of Children with Intellectual Disability

Families’ Experiences on Safety Needs of Children with Intellectual Disability

Parentification, distress, and relationship with parents as factors shaping the relationship between adult siblings and their brother/sister with disabilities

Family impact and adjustment across the lifespan: Siblings of individuals with intellectual and developmental disabilities.

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