Adolescent oncofertility discussions: Recommendations from a systematic literature review

Impact of legislation and public funding on oncofertility: a survey of Canadian, French and Moroccan pediatric hematologists/oncologists

“…Indeed, Canadian participants highlighted consent/assent as an important ethical issue (17%). There is therefore a need to develop guidelines for clinicians and provide them with resources that facilitate these discussions with families [44].…”

“…Finally, guidelines for best practices in counseling are critical to an ethical offer of OTC. Discussion with a fertility specialist should ensure all relevant information is disclosed to promote informed consent and assent [44,48]. Required general anesthesia, minor surgical procedure, need for research participation, experimental nature, and uncertainty of long-term efficacy should be discussed.…”

Accurate understanding of infertility risk among families of adolescent males newly diagnosed with cancer

“…For example, facilitating and supporting providers with appropriate training, specific guidelines, and additional resources (eg, educational pamphlets, online resources, and fertility specialists available for referral) could be helpful. Currently, guidelines recommend fertility preservation and timely conversations with families/patients with cancer, but little guidance is provided regarding the specific content and delivery of such conversations, especially for youth with cancer . Meanwhile, one easily implementable communication technique may be the “teach‐back method” (eg, could you summarize the information I just reviewed with you?…”

“…Currently, guidelines recommend fertility preservation and timely conversations with families/patients with cancer, 30 but little guidance is provided regarding the specific content and delivery of such conversations, especially for youth with cancer. 33 Meanwhile, one easily implementable communication technique may be the "teach-back method" 34 (eg, could you summarize the information I just reviewed with you? ), which would allow for provider confirmation of families'…”

Oncofertility Decision Making: Findings from Israeli Adolescents and Parents

“…After conducting a thorough systematic literature review of adolescent oncofertility discussions, 26,27 the authors devised two semi-structured interview guides-one for adolescents and another for parents. The study, along with its interview guides and consent forms, was approved by the Swiss Cantonal Ethics Committee (EKNZ and Schneider Children's Medical Center's Research Ethics Committee in Israel (0309-15).…”