Adolescent Asthma Self‐Management: Patient and Parent‐Caregiver Perspectives on Using Social Media to Improve Care

Panzera, Anthony D.; Schneider, Tali; Martinasek, Mary; Lindenberger, James H.; Couluris, Marisa; Bryant, Carol A.; McDermott, Robert J.

doi:10.1111/josh.12111

Cited by 32 publications

(52 citation statements)

References 30 publications

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“…Since caregiver support positively correlates with improved adolescent asthma management, this research confirms that empowering parents to continue support through app medication reminders is warranted. [8] Our study also indicates that adolescent app use has the potential to increase adolescent self-efficacy in asthma self-management. The theme of self-reliance emerged in which both adolescents and caregivers believed that apps enabled adolescents to feel confident about and be proactive in managing their own care.…”

Section: Discussionmentioning

confidence: 65%

Adolescent, caregiver, and friend preferences for integrating social support and communication features into an asthma self-management app

et al. 2016

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Objectives This study examines: 1) adolescent preferences for using asthma self-management mobile applications (apps) to interact with their friends, caregivers, medical providers, and other adolescents with asthma and 2) how caregivers and friends would use mobile apps to communicate with the adolescent and serve as sources of support for asthma management. Methods We recruited 20 adolescents aged 12–16 years with persistent asthma, their caregivers (n=20), and friends (n=3) from two suburban pediatric practices in North Carolina. We gave participants iPods with two preloaded asthma apps and asked them to use the apps for 1-week. Adolescents and caregivers provided app feedback during a semi-structured interview at a regularly-scheduled clinic appointment and during a telephone interview one week later. Friends completed one telephone interview. Interviews were audio-recorded and transcribed verbatim. An inductive, theory-driven analysis was used to identify themes and preferences. Results Adolescents preferred to use apps for instrumental support from caregivers, informational support from friends, and belonging and informational support from others with asthma. The majority of adolescents believed apps could enhance communication with their caregivers and medical providers, and the theme of self-reliance emerged in which caregivers and adolescents believed apps could enable adolescents to better self-manage their asthma. Friends preferred to use apps to provide instrumental and informational support. Conclusions Given preferences expressed in this study, apps may help adolescents obtain social support to better self-manage their asthma. Future app-based interventions should include features enabling adolescents with asthma to communicate and interact with their caregivers, medical providers, and friends.

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Section: Discussionmentioning

confidence: 65%

Adolescent, caregiver, and friend preferences for integrating social support and communication features into an asthma self-management app

et al. 2016

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“…Further concerns about the use of more than one device for asthma management, forgetfulness, [21][22][23] and variable wireless Internet access inhibit the routine use of app-based asthma self-management, which supports Web-based tools that are accessible via smartphones. 11 Whereas nationwide rates of teen ownership of smartphones are on the rise, almost half of our sample did not own their own mobile device.…”

Section: Discussionmentioning

confidence: 99%

“…Previous studies reveal that pediatric asthma patients, their parents, and their pulmonologists desire mobile, user-friendly solutions, such as an app, that tracks their asthma experience, alerts them when their conditions worsen, and strengthens communication among families and their healthcare providers. [21][22][23] The main objective of this study was to engage teen asthma patients in the developmental stages of product design for an asthma self-management app for persons in their age group. We assessed teens' overall impressions of currently available asthma apps.…”

mentioning

confidence: 99%

Engaging Teens with Asthma in Designing a Patient-Centered Mobile App to Aid Disease Self-Management

Schneider

Panzera

Couluris

et al. 2016

Telemedicine and e-Health

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Participants showed interest in using apps for managing their asthma, yet recommended improvements on current design. Whereas national figures point to a more ubiquitous mobile device environment, implementation efforts must respond to participants' recommendations while minding lingering digital divides. Currently available apps lack appealing components that teens seek or desire. Subsequent development should include teens' participation in component design insights.

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“…Research shows that adolescents and caregivers of adolescents with asthma obtain health information from healthcare professionals and have a high level of trust in the healthcare information obtained from healthcare professionals. [31,32] Therefore allowing such individuals to provide clinically-sound asthma information in an asthma app and/or directing adolescents to evidence based asthma resources may prove beneficial. Furthermore, having peers present asthma information or appear in asthma informational shows can increase adolescent self-management efficacy through peer modeling.…”

Section: Discussionmentioning

confidence: 99%

Adolescent Preferences and Design Recommendations for an Asthma Self-Management App: Mixed-Methods Study (Preprint)

Roberts¹,

Sage²,

Geryk³

et al. 2018

Preprint

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Background: Approximately 10% of adolescents in the United States have asthma. Adolescents widely use applications (apps) on mobile phones and tablet technology for social networking and gaming purposes. Given the increase in recreational app use among adolescents, leveraging apps to support adolescent asthma disease management seems warranted. However, little empirical research has influenced asthma app development; adolescent users are seldom involved in the app design process, including identifying components that meet their needs.Objective: The aim of this mixed-methods study was to assess adolescent preferences and design recommendations for an asthma self-management app.Methods: Twenty adolescents with persistent asthma (aged 12-16) provided feedback on two asthma self-management apps during in person semi-structured interviews following their regularly scheduled asthma clinic visit and via telephone 1-week later. Interviews were audiorecorded, transcribed verbatim, and analyzed using SPSS v24 and coded thematically using MAXQDA 11.Results: Regarding aesthetics, app layout and perceived visual simplicity were important to facilitate initial app use. Adolescents were more likely to continually engage with apps that were deemed useful and met their informational needs. Adolescents also desired app features that fit within their existing paradigm/schema and included familiar components (e.g. medication alerts that appear and sound like Facetime notifications and games modeled after Quiz Up and Minecraft) as well as the ability to customize app components. They also suggested that apps include other features such as an air quality tracker and voice command. Conclusions:Involving adolescents in the early stages of app development is likely to result in an asthma app that meets their self-management needs and design preferences. This may lead to increased user engagement and ultimately the adoption and maintenance of positive asthma selfmanagement behaviors.

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Adolescent Asthma Self‐Management: Patient and Parent‐Caregiver Perspectives on Using Social Media to Improve Care

Abstract: A digital media product capable of tracking conditions, triggers, and related asthma activities can be a core element of improved asthma control for youth. Improved asthma control will help decrease school absenteeism.

Cited by 32 publications

References 30 publications

Adolescent, caregiver, and friend preferences for integrating social support and communication features into an asthma self-management app

Adolescent, caregiver, and friend preferences for integrating social support and communication features into an asthma self-management app

Engaging Teens with Asthma in Designing a Patient-Centered Mobile App to Aid Disease Self-Management

Adolescent Preferences and Design Recommendations for an Asthma Self-Management App: Mixed-Methods Study (Preprint)

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