Adjustment processes in chronic aphasia after stroke: Exploring multiple perspectives in the context of a community-based intervention

Mumby, Katharyn; Whitworth, Anne

doi:10.1080/02687038.2013.772559

Cited by 27 publications

(37 citation statements)

References 50 publications

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“…Similarly, members of the CHANT programme referred to the independence they gained via strategy development and experience sharing, with less need for support (Mumby & Whitworth, 2013). Indeed, being able to contribute to peers' development and "recovery" was subsequently reported (Mumby & Whitworth, 2013). Others have attributed an increase in their real-world participation to CAG programmes (Elman & Bernstein-Ellis, 1999b;Mumby & Whitworth, 2012;Tamplin et al, 2013;van der Gaag et al, 2005).…”

Section: Purpose In Lifementioning

confidence: 89%

“…In addition, PWA have reported improvements in communicative ability and competence/effectiveness as a result of group attendance, including speaking and reading (Elman & Bernstein-Ellis, 1999b;Mumby & Whitworth, 2013;van der Gaag et al, 2005). However, this is not the case for all participants: one participant appeared to be reminded of …all the things he couldn't do… during CAG attendance (Elman & Bernstein-Ellis, 1999b, p. 68).…”

Section: Personal Growthmentioning

confidence: 91%

“…Participants attending peer-led groups have recognised the independence they were able to develop when seated less closely to their family members: [It] makes us communicate (Tregea & Brown, 2013, p. 590). Similarly, members of the CHANT programme referred to the independence they gained via strategy development and experience sharing, with less need for support (Mumby & Whitworth, 2013). Indeed, being able to contribute to peers' development and "recovery" was subsequently reported (Mumby & Whitworth, 2013).…”

Section: Purpose In Lifementioning

confidence: 94%

“…Frank explained that his group helps to "get him out" and "keep on his toes", and Daisy agreed that participation helped her feel "alive" (Legg et al, 2007). In addition, Mumby and Whitworth (2013) list various programme experiences reportedly valued by members that suggest purposeful living, including setting relevant goals; raising public awareness about aphasia; and making a contribution or "giving back". Another participant, BH, referred to the drive of seeing peers progress, and feeling that his/her own contribution to the group makes a difference (Elman & Bernstein-Ellis, 1999b).…”

Section: Purpose In Lifementioning

confidence: 94%

“…Other forms of support described include sharing experiences, hope, tips, advice/strategies, and information (Tregea & Brown, 2013;van der Gaag et al, 2005) , as well as obtaining new perspectives on recovery and living with aphasia . Family members have also reported observing the peer support taking place among members with aphasia, including socialisation (Mumby & Whitworth, 2013;Tamplin et al, 2013).…”

Section: Exploration Of Primary Study Findingsmentioning

confidence: 95%

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Consumer perspectives on community aphasia groups: a narrative literature review in the context of psychological well-being

et al. 2015

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Background: Community aphasia groups (CAGs) for people living with chronic aphasia are known to be efficacious for improving various aspects of communication and psychological functioning based on empirical quantitative evidence. However, the specific mechanisms and processes involved are not well understood and only a small number of groups exist. Further, there is a paucity of evidence on this topic from consumers, potentially limiting the development and uptake of these services. In order to proliferate and maintain groups of high quality, a deeper understanding of the potential mechanisms of positive outcomes is required. Aims: The aim of this study was to investigate consumer (people with aphasia (PWA) and family member) experiences of CAGs within the qualitative literature in relation to the theoretical construct of psychological well-being. Methods & Procedures: An extensive review of qualitative research relating to consumer views of CAGs was conducted in a systematic fashion. Study quality was evaluated using the Critical Appraisal Skills Programme, and content was interpreted in the context of a theoretical model for psychological well-being. Outcomes & Results:Eleven key studies and 35 secondary studies were found to include consumer perspectives of CAGs. The findings of the 11 key studies are presented as a narrative literature review. Overall, evidence suggests CAGs contribute positively to the psychological well-being of PWA and their caregivers. Outcomes relate to forming positive relations with others, purpose in life, environmental mastery, autonomy, personal growth, and self-acceptance. CAG characteristics and mechanisms proposed to mediate psychological well-being are discussed. However, the review is limited by a range of methodological issues in the literature. Conclusions: In order to optimise CAGs in practice, clinicians should consider group characteristics and aim to manipulate the possible mechanisms underlying positive outcomes. Further research is needed to understand the long-term lived experience of CAGs members, including those currently under-represented in the literature.

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