Addressing the Needs of Students with Rett Syndrome

Katsiyannis, Antonis; Ellenburg, Jennifer S.; Acton, Olivia M.; Torrey, Gregory K.

doi:10.1177/004005990103300510

Cited by 2 publications

(1 citation statement)

References 17 publications

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“…It is important that caregivers will be acquainted with the daily waking and sleep cycles of person with RS, and will introduce choice-making opportunities when maximal participation is presented by the individual (83). This is true for the general population with ID as well as for individuals with RS (84). In one case study, the participating child with RS seemed to be in an exhausted sleepy state most of the time.…”

Section: Medicationsmentioning

confidence: 99%

Environmental adjustments for the person with Rett syndrome. Adapting the house and the family structure

Danieli-Lahav¹,

Lotan²

2009

International Journal on Disability and Human Development

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In the last 50 years, many conceptual, physical, and environmental changes have been made in the lives of individuals with intellectual disability (ID), especially improvements in the quality of life and self determination area. Because the different environments in which people live, learn, work, and play influence many aspects of their lives, it is imperative to include such elements as self determination, choice and autonomy when changes in the environment are planned. The X-linked Rett syndrome (RS), which affects 1 in 10,000 girls, presents a special challenge in this area. Because individuals with RS have the capacity to show apparent preferences and choice making in their lives, it is called for that the person with RS and her family should participate in any change in their physical environment. This article presents a non traditional concept, stating that environmental changes could be suggested to the family with RS with the intent of not merely changing the physical environment but rather the familial structure by enhancing a balance state among all members of the family. The present article reviews the current state in environmental adaptation for individuals with ID as well as individuals diagnosed with RS. The article reviews the clinical characteristics of RS that should be included with physical environmental changes and concludes with a case study describing the decision making process.

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Section: Medicationsmentioning

confidence: 99%

Environmental adjustments for the person with Rett syndrome. Adapting the house and the family structure

Danieli-Lahav¹,

Lotan²

2009

International Journal on Disability and Human Development

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The Ironies of Human Mind: A Case of Rett Syndrome

Chattopadhyay¹,

Arora²

2014

Ethiop J Health Sci

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BackgroundRett Syndrome (RS) is a chromosome X-linked genetic neurological disorder characterized by developmental regression, particularly in relation to expressive language and use of the hands. It is also associated with profound mental retardation and almost exclusively affects females.Case DetailsA four and a half year old girl reported to our dental OPD for a dental checkup. On complete examination, she was diagnosed to be suffering from Rett Syndrome. Preventive therapies and proper oral hygiene instructions were explained to her mother.ConclusionEarly diagnosis of such disorders is extremely important along with treatment of patients' problems with love and care to prevent them from further pain and stress.

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Addressing the Needs of Students with Rett Syndrome

Abstract: IEPs must include, as needed, functional goals and objectives, adaptive equipment, modifications, communication devices, or a one-on-one aide to achieve stated goals.

Cited by 2 publications

References 17 publications

Environmental adjustments for the person with Rett syndrome. Adapting the house and the family structure

Environmental adjustments for the person with Rett syndrome. Adapting the house and the family structure

The Ironies of Human Mind: A Case of Rett Syndrome

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