Addressing challenges and needs in patient education targeting hardly reached patients with chronic diseases

Varming, Annemarie; Torenholt, Rikke; Møller, Birgitte Lund; Vestergaard, Susanne; Engelund, Gitte

doi:10.4103/2230-8210.149324

Cited by 7 publications

(14 citation statements)

References 4 publications

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“…The first contact with a HCP provides an opportunity for the PAH patient to talk and ask questions, whilst allowing the HCP to gain an understanding of the patient's needs in terms of education and information. Too much information can often be overwhelming [5] and patients may vary in the degree to which they benefit from participation in patient education due to disease burden, literacy levels and socioeconomic factors [32]. HCPs must gauge what level of information is appropriate and how much information the patient is able to process and retain at different stages of their disease.…”

Section: Role Of Hcpsmentioning

confidence: 99%

Patient engagement and self-management in pulmonary arterial hypertension

2016

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Improved care in pulmonary arterial hypertension has led to increased longevity for patients, with a paralleled evolution in the nature of their needs. There is more focus on the impact of the disease on their day-to-day activities and quality of life, and a holistic approach is coming to the front of pulmonary arterial hypertension management, which places the patient at the centre of their own healthcare. Patients are thus becoming more proactive, involved and engaged in their self-care, and this engagement is an important factor if patient outcomes are to improve. In addition, involvement of the patient may improve their ability to cope with pulmonary arterial hypertension, as well as help them to become effective in the self-management of their disease. Successful patient engagement can be achieved through effective education and the delivery and communication of timely, high-quality information. A multidisciplinary approach involving healthcare professionals, carers, patient associations and expert patient programmes can also encourage patients to engage. Strategies that promote patient engagement can help to achieve the best possible care and support for the patient and also benefit healthcare providers.

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Section: Role Of Hcpsmentioning

confidence: 99%

Patient engagement and self-management in pulmonary arterial hypertension

2016

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“…It is also well known that practically all methods used in diabetes management and prevention are less effective in individuals who have access to fewer resources [33]. In other words, there is a need to direct our attention towards those who are most vulnerable and to try to understand how they can be motivated and involved as effectively as other groups.…”

Section: Equity In Health: Not Everyone Has the Same Opportunities Fomentioning

confidence: 99%

“…The approach addresses the challenges that these hardly reached patients face in relation to general patient education programmes and the challenges educators face when conducting patient education with hardly reached patients. In a qualitative study we identified four main categories of preferences for patient education that reaches out to these groups of patients: (1) flexibility related to start time, duration, and intensity; (2) simple and concrete education tools, with regard to design and extent; (3) being together, related to meeting people in a similar situation; and (4) respectful educators, related to constructive patient-educator relationships [33,34].…”

Section: Selected Projects Prominently Guided By the Principle Of Equmentioning

confidence: 99%

Principled Promotion of Health: Implementing Five Guiding Health Promotion Principles for Research-Based Prevention and Management of Diabetes

et al. 2017

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Abstract:Background: Based on widespread critique of the moralizing paradigm that has long characterized much of the work conducted within the field of health promotion, Steno Health Promotion Research has developed a comprehensive health promotion approach consisting of five principles that constitute the framework for a new intervention paradigm. The five principles are: (1) A broad and positive health concept; (2) Participation and involvement; (3) Action and action competence; (4) A settings perspective and (5) Equity in health. Objectives: To describe a comprehensive health promotion approach consisting of five principles; to present research and development projects based on this set of principles; and to discuss experiences and results from implementing the health promotion principles in healthcare practices. Results and conclusion: The principle approach enables consolidation of hitherto disparate approaches into a single comprehensive approach. The principles have turned out to be productive and effective "management tools" that have led to new discoveries, but also helped to identify limitations.

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“…HEPs have been used to provide individuals with information concerning mental health, social health, physical health as well as emotional health 7–9. The other notable benefits that are associated with HEPs include the prevention of diseases and the reduction of the level of engagement of individuals in highly risky behaviours 10 11. When there are well-implemented HEPs, there can be various positive changes in behaviour.…”

Section: Introductionmentioning

confidence: 99%

“…When there are well-implemented HEPs, there can be various positive changes in behaviour. This has been shown to have the ability to significantly lower the risks that are associated with alcohol, tobacco as well as other types of drugs 6–11…”

Section: Introductionmentioning

confidence: 99%

Barriers to the implementation of sexual and reproductive health education programmes in low-income and middle-income countries: a scoping review protocol

2019

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IntroductionHealth education programmes (HEPs) have been associated with a number of benefits. These include providing individuals with information on matters related to their mental, social, physical as well as emotional health. HEPs also play a major role in preventing diseases and reducing the level of engagement of individuals in risky behaviours. While this is the case, there are barriers to the effective implementation of HEPs, especially in low-income and middle-income countries (LMICs) where resources are scarce. Available evidence has revealed socioeconomic challenges ranging from literacy issues, discomfort about issues of sexuality, and cultural barriers to financial constraints as key barriers to the implementation of sexual and reproductive health HEPs in LMICs. We will focus on HEPs related to sexual and reproductive health; all age groups will be considered with no restrictions on geographical setting nor model of HEP delivery. This review will map literature on the barriers to the effective implementation of HEPs in LMICs to guide future implementation research.MethodsArksey and O’Malley’s 2005 scoping methodological framework will act as the guide for this review. We will search the following electronic databases: EBSCOhost (Academic search complete, PsycINFO, Health Sources, CINAHL and MEDLINE with full text), Google Scholar, PubMed, SCOPUS, Science Direct and Web of Science. Grey literature from Mount Kenya University theses and dissertations, governments’ as well as international organisations’ reports, such as WHO, and reference lists of included studies will be searched for eligible studies. We will limit our search to publications from 1 January 2000 to 30 September 2019. Using thematic content analysis, we will employ NVivo V.12 to extract the relevant outcomes from the included articles. We will conduct a quality appraisal of the included articles using the mixed methods appraisal tool (MMAT) version 2018.Ethics and disseminationNo ethical approval is needed for the study as it will not include animal nor human participants. The results of the proposed scoping review will be disseminated electronically, in print and through conference presentation as well as at key stakeholder meetings.

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Addressing challenges and needs in patient education targeting hardly reached patients with chronic diseases

Cited by 7 publications

References 4 publications

Patient engagement and self-management in pulmonary arterial hypertension

Patient engagement and self-management in pulmonary arterial hypertension

Principled Promotion of Health: Implementing Five Guiding Health Promotion Principles for Research-Based Prevention and Management of Diabetes

Barriers to the implementation of sexual and reproductive health education programmes in low-income and middle-income countries: a scoping review protocol

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