Adding Value to Palliative Care Services: The Development of an Institutional Bereavement Program

Morris, Sue; Block, Susan D.

doi:10.1089/jpm.2015.0080

Cited by 60 publications

(54 citation statements)

References 21 publications

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“…When a client is in deteriorating health, DCWs should be informed about the client's health status, so that they can prepare themselves for the impending death. Management must consider that such information is delivered sensitively and in accordance with privacy practices (Barooah, Boerner, van Riesenbeck, & Burack, ; Morris & Block, ). Automated emails, for example, can be distributed to staff about a client's death (Baker et al., ).…”

Section: Discussionmentioning

confidence: 99%

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Direct care workers’ experiences of grief and needs for support

Kim

2017

Research Intellect Disabil

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Section: Discussionmentioning

confidence: 99%

“…Management must consider that such information is delivered sensitively and in accordance with privacy practices (Barooah, Boerner, van Riesenbeck, & Burack, 2015;Morris & Block, 2015). Automated emails, for example, can be distributed to staff about a client's death (Baker et al, 2011).…”

Section: Implications For Practicementioning

confidence: 99%

Direct care workers’ experiences of grief and needs for support

Kim

2017

Research Intellect Disabil

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“…In recognizing the importance of formalized institutional bereavement support, parents proposed 3 concepts integral to the development of an effective institutional bereavement program, which expand on the limited literature addressing the current status of bereavement programs: 1) bereavement support must be personalized because no 2 parents experience the same grief journey; 2) bereavement support must be readily available/accessible to parents at any given time along the grief trajectory because different parents might benefit from services at different times; and 3) bereavement support must be tangible, with concrete resources and institutional contacts provided to families. In addition to grief support, parents also suggested that legacy‐building and memory‐making opportunities should be made available by the institution, both before and after the child's death.…”

Section: Discussionmentioning

confidence: 99%

Helping parents live with the hole in their heart: The role of health care providers and institutions in the bereaved parents' grief journeys

Snaman

Kaye

Torres

et al. 2016

Cancer

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BACKGROUND Bereaved parents experience significant psychosocial and health sequelae, suggesting that this population may benefit from the ongoing extension of support and resources throughout the grief journey. The interaction of hospital staff with patients and families at the end of a child's life and after death profoundly affects parental grief, offering a unique opportunity for the medical community to positively impact the bereavement experience. The current study was conducted to explore the role of the health care team and medical institutions in the grief journeys of parents whose child died a cancer‐related death. METHODS Eleven bereaved parents participated in 2 focus groups. Responses to each of the 3 main prompts were coded and analyzed independently using semantic content analysis techniques. RESULTS Four main concepts were identified within the parental narratives, including the importance of strong and ongoing relationships between providers and bereaved families, the importance of high‐quality communication, the effect of negative experiences between providers and families on parental grief, and the importance of the institution's role in the grief journeys of bereaved parents. CONCLUSIONS Bereaved parents consistently identified the critical role played by medical staff and medical institutions throughout the grief journey. Key components of bereavement support identified by parents should serve to guide the actions of providers as well as provide a template for the development of a comprehensive bereavement program within an institution. Cancer 2016. © 2016 American Cancer Society. Cancer 2016;122:2757–2765. © 2016 American Cancer Society.

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“…[10][11][12][13] This includes development, establishment, and implementation of a system for bereavement follow-up and care, as the high incidence of in-hospital (and in-ICU) death carries risk of complicated or prolonged grief reaction for involved families.…”

Section: Emerging Data Relevant To Organization and Delivery Of Pallimentioning

confidence: 99%

Organization and Delivery of Palliative Care for Pulmonary Arterial Hypertension: Case-based Discussion

Landzberg

Schaefer

2018

Advances in Pulmonary Hypertension

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Our patient, as seen through the eyes of a palliative medicine team This 43-year-old woman presents a history that serves as a valuable foundation for discussion of need for a structured platform for delivery of palliative care for persons with pulmonary arterial hypertension and associated right heart failure; as such, her case vignette is succinctly reviewed, with emphasis placed on features relevant to this topic.

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Adding Value to Palliative Care Services: The Development of an Institutional Bereavement Program

Cited by 60 publications

References 21 publications

Direct care workers’ experiences of grief and needs for support

Direct care workers’ experiences of grief and needs for support

Helping parents live with the hole in their heart: The role of health care providers and institutions in the bereaved parents' grief journeys

Organization and Delivery of Palliative Care for Pulmonary Arterial Hypertension: Case-based Discussion

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